Hi. I have had the same op and will be starting radiotherapy in a couple of weeks. I would love to compare notes once we start . All the best and let's hope neither of us have too many side effects. xx
I would love to compare notes with you as we seem to be in the same boat on this, although I have a feeling that you may be several weeks ahead of me, treatment wise.
My initial oncology appointment is not until tomorrow and then I'm guessing I have to wait a couple for weeks for the planning session and then another two to actually start the treatment. Why does everything always take at least two weeks?!
Anyway, hoping to find out a bit more on the timings tomorrow...
Fingers crossed for both of us and please do keep in touch.
My oncologist gave me a prescription for diprobase cream. I can use it in the morning before I go as long as it's absorbed :-) number five done and starting to look a little pink .
like Daisyboo, I was given Diprobase cream by the radiotherapy team, use twice a day to keep the skin moisturised, I had dose 6 today and can't see much difference yet, nice to compare notes and advice, please all continue as every little helps!
Another week over for you then, enjoy your two zap free days!
Sorry, but a bit of a rant coming up now...
My appointments came through today and the 15 x 3 sessions are being done at a totally different hospital to where I had been going and is almost 40 miles away from home and over 50 miles away from work!! The oncologist didn't mention this other hospital at all on Monday and we even discussed how convenient it was that I work so close to the hospital where we had our meeting. I called them but, after consulting with colleagues, had a call back to say that they could not change me back to the original hospital as it was fully booked up and I would have to go to this other place after all.
To add insult to injury, they had also booked me in for 20 sessions instead of 15 but, having doubled checked, admitted that it was their mistake and they will be sending me a revised schedule shortly!
As you can imagine, I am not happy about all this and am now going have to rethink whether I can work at all whilst having the treatment. I would like to try but my work is in the opposite direction to this "new" hospital so the daily round trip will be pretty horrendous, never mind if any side effects kick in as well.
I really think someone could have warned me that this might have been a possibility.
Still, my first session is not until 13th May so I have just under a month to calm down (!) and decide what to do about work in the meantime. I understand that they are changing some poor souls over from one hospital to the other mid-treatment which would be much worse for them so I guess I can count myself lucky in a way?
Apologies, rant over now!
Take care and I hope next weeks goes as well for you.
Gosh, that is terrible news, no wonder you are having a rant. I really sympathise with you, but looks like there is not a lot you can do.
Hopefully you can get your head round these changes before your sessions start? Have a restful weekend and think positive. Shirley x
For some reason your last post didn't come through until after I had sent my rant so sorry to hear that your skin is starting to react now and I hope it doesn't get too uncomfortable for you.
Thank you for bearing the brunt of my ranting....as you say, there isn't a great deal I can do about it, it is what it is.
