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VIN 3

unicorn
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Hi, I'm new to this site but feel like I could really do with some support from people who have had/have the same condition.

I was diagnosed with VIN3 in December and am currently being treated with Immiquimod (Aldara).  I have not yet seen my original consultant so don't know if it's working or not, although looks a bit better to me. 

I'm finding it hard to not let it get it down, sometimes just feels like I will never be normal again!  I am lucky in that my husband has previously had testicular cancer so he is very understanding and supportive.

However, the consultant only gave me 2 options, Aldara and surgery.  I worry that if this treatment doesn't work, I will have to have disfiguring surgery.  I'm trying hard not to look too far ahead and just deal with the situation as it is now but sometimes I just want to hide from the world and not have to deal with work, bills etc.

Thanks for taking the time to read this and if anyone has any advice, I would be very grateful.

Parents
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    Hi there.  Just joined the forum and wondered how you were doing?

    I had what I thought was a straight forward surgery for removal of a vulvar lesion and it came back from the lab as High Grade VIN,usual type.  I'd never heard of it - and it seems that it is indeed very, very rare.

    I finally got to see my specialist who says doesn't look like further evidence of VIN currently, but she'll see me in September.  I must say, its been such a worry - and it seems that info out there is so out of date, if you can find it

    My specialist says they are not automatically doing additional surgery these days as its disfiguring, the VIN will probably come back anyway and it doesn't mean that it will turn into cancer.  So, its a watch and see programme for me which will last for years and treatment will be on an when necessary basis

    Love to hear how you are doing

Reply
  • Offline

    Hi there.  Just joined the forum and wondered how you were doing?

    I had what I thought was a straight forward surgery for removal of a vulvar lesion and it came back from the lab as High Grade VIN,usual type.  I'd never heard of it - and it seems that it is indeed very, very rare.

    I finally got to see my specialist who says doesn't look like further evidence of VIN currently, but she'll see me in September.  I must say, its been such a worry - and it seems that info out there is so out of date, if you can find it

    My specialist says they are not automatically doing additional surgery these days as its disfiguring, the VIN will probably come back anyway and it doesn't mean that it will turn into cancer.  So, its a watch and see programme for me which will last for years and treatment will be on an when necessary basis

    Love to hear how you are doing

Children
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