VIN 3

Hi, I'm new to this site but feel like I could really do with some support from people who have had/have the same condition.

I was diagnosed with VIN3 in December and am currently being treated with Immiquimod (Aldara).  I have not yet seen my original consultant so don't know if it's working or not, although looks a bit better to me. 

I'm finding it hard to not let it get it down, sometimes just feels like I will never be normal again!  I am lucky in that my husband has previously had testicular cancer so he is very understanding and supportive.

However, the consultant only gave me 2 options, Aldara and surgery.  I worry that if this treatment doesn't work, I will have to have disfiguring surgery.  I'm trying hard not to look too far ahead and just deal with the situation as it is now but sometimes I just want to hide from the world and not have to deal with work, bills etc.

Thanks for taking the time to read this and if anyone has any advice, I would be very grateful.

Parents
  • Hello unicorn,

    Welcome to our forum!  I hope others who have had the same condition will pick up your post soon and share their story with you. We had a member who posted about being VIN3 quite a while ago, but perhaps you could respond to her and see how she is getting on? You can find her posts here and her original thread is here.

    We have another useful resource which is our cancer nurses - they are available to help with any questions you may have about your treatment options. Do give them a call on freephone 0808 800 4040 Monday to Friday 9am to 5pm or you can also drop them a line in the Ask the Nurses section of our forum.

    Best of luck making those difficult decisions and I hope this forum will be helpful to you. I will now let our friendly forum members come and say hello to you!

    Best wishes,

    Lucie, Cancer Chat Moderator

     

Reply
  • Hello unicorn,

    Welcome to our forum!  I hope others who have had the same condition will pick up your post soon and share their story with you. We had a member who posted about being VIN3 quite a while ago, but perhaps you could respond to her and see how she is getting on? You can find her posts here and her original thread is here.

    We have another useful resource which is our cancer nurses - they are available to help with any questions you may have about your treatment options. Do give them a call on freephone 0808 800 4040 Monday to Friday 9am to 5pm or you can also drop them a line in the Ask the Nurses section of our forum.

    Best of luck making those difficult decisions and I hope this forum will be helpful to you. I will now let our friendly forum members come and say hello to you!

    Best wishes,

    Lucie, Cancer Chat Moderator

     

Children
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