More Bad News

Hi my forum buddies. I got bad news this morning when I had a follow-up with my lung surgeon. The CT scan I had last week shows two new cancers on my lung, just about the same area that I had a cancer removed 2 years ago. We discussed where we go from here and I made it clear that I'm not going through another surgery on my lung, along with all the surgeries I'm having re bladder cancer. She agreed with me that I've been through the mill for the last almost 5 years now and she understands where I'm coming from. She will order a PET scan as that will tell us what else may be going on. Certainly not what I thought I'd hear today as I actually don't feel too bad, other than the awful issues I'm having with this bladder cancer. Besides which, everyone tells me how well I look. I guess looks are deceiving for sure.

Lorraine

  • Hi Lorraine

    Will raise a virtual glass to your 'pity party'.  Like Max wish it was possible to gatecrash and give you proper hug but am keeping you in my thoughts.  Make sure you have time for some treats before your 'due date' - my mate last year had her celebrations early (and then again on the day as she continued her journey through cancer - double whammy!).

    My hubby has been threatened with hospital for Christmas dinner if he does not eat more and get some weight on and so if  we are lucky  our son and other half are collecting us Christmas Eve for a few days. I am hoping to finish last  bits of shopping this week and then set about writing cards as I want others to  have smiles on their faces when they open them and see they are remembered (but have to admit not finding it easy emotionally).

    Your forum buddies are hear to listen as always when you need to offload - its not rambling, its sharing and caring.  Big Hugs  Jules x 

  • Hi Lorraine, just caught up with your latest news. You are so right to ask, is there a good time in the year to have surgery? I think the run up to Christmas seems a more difficult time to contemplate having surgery though. It sounds as if you are already organised (apart from card writing, which I always seem to put off until the last minute!) so try to rest and relax over the next few days. Your forum buddies will be cheering you on and waiting to hear from you as soon as you're up to it. I get my latest results tomorrow (4th) and from there my next treatments will be decided. I haven't met the lung specialist yet, but I'm guessing that even if I get an appointment before Christmas, surgery before January is highly unlikely. Lorraine, you are an amazing person, stay strong and take care, big hugs, Jo xxx
  • Good mprnong Lorraine,

    Just been catching up with what is happening with you and sorry to hear you are going through the mill again. There is never a good time to have to have surgery, but some are less inconvenient than others. 

    Although all this is going on at the moment , your personality come shining through. I am always a mazed at the people on here who are going through such difficult times themselves have so much time and give for others and you are one of those Lorraine. :)

    As for the pity party , we would all love to join you and raise a glass to having these wonderful virtual friends. I think we get to see the best side of humaity on this site. 

    Will keep you in my thoughts and will look out for news from you post op. 

    Many virtual hugs 

    Annabel. xxx

  • Hi Max, like you, my siblings are no help to me either, and as a matter of fact, they just cause me a lot of stress that I don't need any more of these days. Thank God for friends for sure, and I have lots of them as well. About our weather, well it is wet like yours and fortunately, we are not getting the extreme cold temps as yet, that they are getting in other parts of Canada. Here in Nova Scotia, we tend to get middle of the road weather and very seldom do we get severe either way. Our summers are actually quite nice and we have a beautiful Autumn and that is my favorite time of year. We haven't had any snow as yet here in my end of Nova Scotia, but will likely get some in the next months.

    I've done some Christmas cards, but not near finished. I also hope to get the apt. spruced up pretty good before I go in hospital, so that my Bill doesn't have to do too much to it, other than keep it up. I know the dog, Toby, will miss me for sure. He's my pup and will always be my pup. Since we live in an apt., he has to be taken out and walked several times a day and believe it or not, that's quite a time consuming job, but he is worth it. I likely will be in hospital 4 - 5 days or more, depending on how things go. Here, they kick you out as soon as possible, which is fine by me. I hate being in hospital. Actually, the last time I was in for a big surgery on my kidney/bladder, etc., I was there for a week and near went nuts. When I said I wanted to go home, my doc said no, its' too soon. He wanted me to stay in another few days. I said what can they do for me here that I can't do for myself, (with Bill's help) at home. Besides which, I told him I was going to starve to death. The food was lousy and he agreed with me. The bed was uncomfortable, so I wasn't sleeping, etc. etc. I'm a lousy patient. He laughed then and said OK go home. I'm rambling again.

    Thanks for your love and support. We will talk soon.

    Lorraine  

     

  • Hi Annabel, thanks for your kind words. You are right about the people on here. Everyone has some kind of challenge with all of their obstacles, yet everyone has more to give when and where its' needed. It truly is a give and take forum. We all know that sometimes we're up and sometimes we're down, but we just keep changing positions as needed. It really is quite a miracle that there is always someone ready and able to pick up the ball and toss it to the one who needs it most at that particular time. 

    Wouldn't it be great if we could all get together in person and have a really great party, and it wouldn't have to be a pity party. I will certainly raise a glass, (just a small one) to toast all my great forum buddies on here at Christmas.

    Hugs right back at you Annabel

    Lorraine

  • Hi Jo, be sure to let us know how things go for you when you get your results tomorrow. I will be sure to get in touch with you guys as soon as I'm able after my surgery. It seems as though I gave you the impression that I'm well organized. Well, I must confess, I do need some improvement in that department, but I am working on it though. I think if you knew the whole story, you would likely agree with me on that one. With what's been going on with me these last years, I must say that my priorities have changed somewhat as this cancer diagnosis has been a real wake-up call for me, as I'm sure it is for most people battling cancer. Stay in touch and I will certainly keep posting until S day arrives on the 11th. Of course, you guys know the drill; I had a CT scan today, apt. on Friday to discuss meds, Pre-Op on Mon, etc, etc.Like I said earlier on; this journey is more demanding than a full-time job.

    Big Hugs right back at you Jo. Good luck tomorrow and I'll be looking forward to hearing about your report.

    Lorraine 

  • Hi there Jon, thanks so much for your kind words. I certainly hope that all goes well for me on this next, yet another surgery in this fight for my life. Sometimes it seems like I've been doing this for a very long time and in the normal scheme of things, I guess 5 years is not a really long time, but it is starting to feel like it has taken on a life of its' own.These days, I try to look forward and not backward, but sometimes it gets really hard to put one foot in front of the other on this journey, but I trudge on and keep hoping for a better turn-out each time. Without hope, we have nothing, right?

    I hope you're getting along okay and recovering well. I get you're enjoying those two precious little ones of yours and I also bet they love having you at home too.

    You take care of yourself, so you'll be up and at it real soon.

    Lorraine 

  • Hi there Jon, thanks so much for your kind words. I certainly hope that all goes well for me on this next, yet another surgery in this fight for my life. Sometimes it seems like I've been doing this for a very long time and in the normal scheme of things, I guess 5 years is not a really long time, but it is starting to feel like it has taken on a life of its' own.These days, I try to look forward and not backward, but sometimes it gets really hard to put one foot in front of the other on this journey, but I trudge on and keep hoping for a better turn-out each time. Without hope, we have nothing, right?

    I hope you're getting along okay and recovering well. I get you're enjoying those two precious little ones of yours and I also bet they love having you at home too.

    You take care of yourself, so you'll be up and at it real soon.

    Lorraine 

  • Hi Lorraine, as promised, Just letting you know my results. It was benign mass (neuroma) which was possibly caused when nerves were damaged during my last surgery. Apparently, they can show up as Hotspots on a pet scan. So next steps is to meet the lung team, but as the referral hasn't been submitted yet, it's looking likely to be next February before things start moving. Lorraine, I feel insensitive sharing this news when you're going through the mill, but I know what you'll say - the same as I would when others share their good news! Keep us up to speed with your news! Big hugs, Jo xxx
  • Hi Jo

    Glad your results bring some relief for you and you can now hopefully enjoy the coming weeks without treatment and have a bit more recovery period before discussions move forward.  Have a peaceful weekend.Hugs  Jules x