More Bad News

Hi my forum buddies. I got bad news this morning when I had a follow-up with my lung surgeon. The CT scan I had last week shows two new cancers on my lung, just about the same area that I had a cancer removed 2 years ago. We discussed where we go from here and I made it clear that I'm not going through another surgery on my lung, along with all the surgeries I'm having re bladder cancer. She agreed with me that I've been through the mill for the last almost 5 years now and she understands where I'm coming from. She will order a PET scan as that will tell us what else may be going on. Certainly not what I thought I'd hear today as I actually don't feel too bad, other than the awful issues I'm having with this bladder cancer. Besides which, everyone tells me how well I look. I guess looks are deceiving for sure.

Lorraine

  • Hi Lorraine,

    Sorry to hear about this latest turn of events - it sometimes feels like it's just one thing after another doesn't it? 

    I've just had a chuckle at Max's rant, she has such a way with words ;-) I was at a conference last week and was surprised by how many people said I looked well. Though after a few drinks someone did add "... for someone who is supposed to be dead by now!" He was a doctor though ... never the most diplomatic, sensitive or politically correct folk when not in work. 

    Keep on keeping on :-)

    Dave

    x

  • Hi Lorraine

    Slowly but surely finding my way to catch up with 'buddies' threads.  Your latest news would have me punching the wall with anger and frustration so feel free to carry on venting your feelings.  We know it does not make things go away but we are all here to support each other.  Really hope that your next round of scans/appointments can give you some way to  move forward with treatment to make you more comfortable.  By the way did you know that 'beauty is in the eye of the  beholder' so those that are supporting you think you need to hear these things.  Its like Max says (hey Max good to see your name cropping up too - sending hugs) they mean well.  Its a line I do not use on my hubby for fear he would get me 'put in a safe place' but its not easy knowing what to say (he is now over four stone lighter because of his illness) and all I can do is buy new clothes that fit.  It does not make it feel better but means I am doing something.

    Anyhow Lorriane hope the weather (well I am British what else should I talk about) where  you are is better than here and am sending virtual hugs and listening ears anytime you need to offload. Regards Jules x 

  • Thanks Max, Jules, and Dave. You're right Max, if we didn't laugh and make jokes once in awhile,  we'd go absolutely mad! And, Jules, punching the wall might help too, although now that we live in an apt., we'd likely get evicted. LOL  Dave, I know what you mean about doctors; some of them have a "sick" sense of humor when they unwind. Really though, they are only human too and I know for many of them, seeing the ravages of illness of one kind or another on their patients day after day has to be depressing for them too. I'm sure there must be days when they question why they stay in the business, but like many professions that are related to a lot of human suffering in one way or another, its' what they do. Thank goodness they are there.

    I'm counting the days until I get through this PET scan and follow-up with the doctor. At least then I'll know what I'm dealing with here. I'll be sure to let you guys know the outcome. I have a feeling it isn't going to be great.

    Take care everyone. Hugs everybody.

    Lorraine

  • Hi Lorraine, Just wanted to let you know you are in my thoughts. The waiting is such a stressful period , as you say , once you know you can plan a course of action. Wanted to add my best wishes to the rest of the groups. Sending you hugs across the miles Kathy xx
  • Hi again everyone, I'm just back from meeting with my lung surgeon to get the results from my PET scan I had last week. So, there's good news and there's bad news. The good news is that the cancer has not come back in my colon, which is huge great news! The bad news is there are two cancers in my lung, one being a fair size and the other a smaller one. She has decided that it is not a good idea to do radiation in this case, so it means another lung surgery very much like the one I had two years ago. That was BIG and not fun at all. However it is what it is, so I guess I'll bite the bullet and go for it. She plans to do that in the next few weeks. I'll certainly let you guys know when I have a definite date, so you can all pull for me.

    Of course, the bladder cancer is also ongoing, but now we have a conflict with surgery dates as I'm supposed to have another surgery for that too, but I guess it will have to wait until I recover from this lung surgery. WOW! Life is sure complicated. I'll keep you posted.

    Thanks for being there everyone. Your support is so comforting.

    Lorraine

  • Hi Lorraine

    Its no comfort to read that you are having to face further surgery but on the upside you now know once more what you are dealing with and can rant about it on the forum whenever you want.  It was good to hear that you had good news too (massive relief I should imagine).  It sure it one hell of a rollercoaster ride you could do without but hope that the surgery can be arranged sooner rather than later (better out than in!).  Your forum buddies are rooting for you and am sending big virtual hug.  Jules xx

  • Hi Lorraine, thanks for the update. On the one hand it's great news about no recurrence in the colon, but then they hit you with the news about your lung. It certainly sounds as if your medical team are pushing your surgery forward, and you know we'll all be here for you, for any pre and/ or post op rants! I will be following your progress on two levels; that of a forum buddy and that of someone who will going through a similar procedure in due course. But for now, just as your forum buddy, sending you a big hug, Jo xx
  • Hi Lorraine I'm glad that, as always, you are focussing on the positive news. We are all with you on your next bumpy ride! Love Debbie X
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    Hi honey!  Thank you for the update  -  not sure what to say to the good and bad news except we are here for you and will be there by your side throughout.  Max x

  • Hi Buddies - Jules, Jo, Debbie, and Max. Your support is so helpful in this lousy journey and I so appreciate having you guys in there rooting for me. It just means so much to know that even across the many miles between us, you're all out there. As I've said so many times, this forum has been a God send for me as I go down this road with so many of you who are fighting your own battles, but yet have still so much to give others. I'll certainly keep you in the loop when I have more info as to exactly when the surgery will take place. She's hoping for Dec, 11th or 12th if the OR is available and she'll let me know a definite as soon as she can. She is such a wonderful doctor and so good at what she does. Her bedside manner is great and she is so caring. I am very lucky there for sure.

    Jo, are you up for more surgery? When and what for? Let me know my dear. I know misery loves company, but this isn't what this is about. We can commiserate together though, if you tell me what's going on with you.

    Take care everyone and thanks again for being there. Hugs to all of you.

    Lorraine