Some goodish news, but more tests needed.

Hi forum buddies,

I hope you don't mind if I have a bit of a rambling rant, but I'm just  back from the appointment to discuss the results of my last lung CT scan.

I only had the scan last Friday and was pleased that the requesting doctor (liver surgeon) was 'on the ball' and had sent a clinic appointment for today. (Turns out it was the specialist nurse who was actually on the ball with the appointment.)

Unfortunately, the doctor hadn't been able to meet with the radiographer before today's appointment so although he was 'reading' the report to me, he didn't seem as up to speed with information as he usually does!

The upshot was, there is still only one lung lesion, but it has doubled in size since the last scan back in May (still very small at 6mm.)

So next steps are an MRI of my liver to rule out any recurrence of cancer, another PET scan to see if the lung lesion is still 'hot' and that it is the only hotspot in my body and then an MDT meeting to discuss results and treatment options.

The liver doctor was talking chemotherapy again, but as I reminded him, I was intolerant to the mildest form I had last year!

He also said that the lung surgeons in this health authority region, are notoriously reluctant to do metastasised lung resections from primary colorectal cancer, but given my age he would argue my case and advise me to have it done. This of course, is all dependent on a clear liver scan and no other hotspots!

The specialist nurse was unavailable today, but she is going to ring me tomorrow, hopefully having arranged these two scans. (Hope she's on the ball there!)

As we left, the doctor did reassure me that the timescales involved wouldn't make any difference to my lung and to "try not to worry" and to "go and get on with your life."  I know what he meant, but once again, it's the age old 'waiting game' scenario!

I'm focussing on the positives that it's still only one lesion, but I think I'd stressed myself out so much before the appointment (worst case scenario mode!) I felt deflated rather than uplifted as I left the hospital.

(Apologies for any insensitivity in my rant, as I know many of you would do anything for this result!)

Rant over! Thank you for reading.

Love Jo xx

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  • Dear Jo,

    Have only just read your post and want to give you a big hug friend.No need for apologies from you as you have been such a giver on here so our turn to listen.

    Would also offer to rub your chest to make sure you've got it all off.LOL.

    It's the classic the good news and the bad news syndrome.

    We don't want some of each in this situation thank you, we just want good news.

    So it's very understandable that you left hospital rather deflated.

    That said it's time to pull yourself up again and takle the next stage.

    Once you've had the scans and heard from the MDT I am sure you'll feel more positive as you will know the direction you will be taking.

    and we will be here routing for you my friend, or even rooting.!!!!

    Speak soon and anytime.

    hugs

    Annabel. xx

  • Hi Annabel,

    Thank you for your lovely words and the offer to rub my chest to get it all off!

    Having had today to 'get a grip' and realise that I need to keep things in perspective, I feel much calmer and just want to get on with the next phase of the journey!

    I have a day off tomorrow and I'm going to give the specialist nurse a call and let her know I can get to hospital if any cancellations become available!

    As I said to Lorraine and Hope, I function better with a plan in place! Maybe I'm a bit compulsive, but it would help to know whether we can book a holiday in October or whether I need to tell the head teacher to book some supply cover for me etc! Maybe 'organised' is a better description!

    I hope your London visit went well and you had a lovely celebration of little Ava's first birthday! Will PM you soon.

    Love and hugs, Jo xx

  • Hi Jo

    Thanks for your update though a shame you have to face another mini op before proceeding with other planned treatments.  How do you keep that wonderful sense of humour?  Sounds like your consultant is well on the ball and hopefully you will have a date through sooner rather than later so he can deal with the hotspot blighter. Did you ask for them to fit you in during half term break, I wonder?  Sorry you  have a small 'hedge' to jump before your next 'hurdles' but am sure you can win the race.  Sending load of virtual hugs.Jules x

  • Hi Jules,

    Thanks for your kind words. I will confess to the sense of humour not always being apparent, but on the whole, I try to be upbeat . . .  I know how much this helps my nearest and dearest! It tends to be my partner who sees my melt downs though!

    I hold on to the fact that today, the doctor said he would continue to offer (or refer me for)  any appropriate surgery as long as he is able to. (And as long as the biology of my cancers support surgery.) He says I'm not curable, but treatable.

    It's fair to say I'm anxious about the next op because of the 'unknowns' that may be lurking, but fingers crossed it's just another little hedge and not Beecher's Brook!

    As for dates, it would be great if it tied in with half term, but already, the Head has reduced my teaching commitments and allowed me to concentrate on the special needs aspects of my job (just as well as there have been recent amendments to the SEN guidelines and it means a few changes to get my head around!) I think the Head rightly anticipated that my head may be full of other things over the past few weeks. I'm so lucky in my workplace!

    Thanks for your continued support and all those hugs, Jules.

    Hugs returned to you, Jo xx

  • Morning Jo

    It so helps when the workplace can be adaptive to your needs (I have been offered 6mths unpaid leave if I need it at anytime) and lovely that you have a sensible 'head' who reacts to your changing situation.  Keep hold of your 'treatable' status and.of course, anxiety is tobe expected (meltdowns too) but continuing love and support of family and friends (virtual buddies too) are alongside your journey (as is your ongoing support for people including myself on this forum).  Hope your medical team are able to keep you feeling comfortable with pain control  and I am happy to listen to any necessary 'offloading rant/ramble' to keep you company.

    As you know our family situation is a little different so I rarely have a meltdown with the other half (though I wish he would release some of his feelings so I could offer comfort) but I too am lucky in having supportive children (we help each other), workmates (they have been the tissue providers on occasions) and a couple of really good mates (plus this unbelievable forum) to keep me 'on the level'.   We all know that there is nothing easy about dealing with illness but having others beside you helps with the coping mechanisms.  Take care and have a good day. hugs Jules x

  • Hi Jo,

    I was so sorry to read that you are facing another op, however on a positive note sounds like you have a good consultant who will continue to operate to ensure the cancer continues to behave.  You have faced so much and remain so upbeat, you are truly inspirational.  Wishing you lots of luck and best wishes for your next treatment and please keep in touch.  Hope x

  • Oh Jo,

    I am sorry to hear about your latest problem. I love what you said about Beechers Brook and it just proves to me me that you still have that wonderful sense of humour even when you have just had bad news. Good for you Jo for I'm sure it helps. You know your forum buddies are wishing you well and are here for you just as you have been here for us

    Sending big hugs, Brian.

  • Morning Jo,

    Sorry I hadn't seen this thread earlier.

    Dissappointed, with you, that you have to have further unexpected surgery.

    As you say we advocate one step at a time but when new items are pushed into the agenda it seems rather unfair.

    So it's just a little hop over a hedge for you this time. Not anything too grand like Beeches brook. !!!! LOL.

    Your head sounds a very thoughtful person like yourself.

    I am glad she is there for you and obviously keeping an eye on you.

    Well I hope you get the op soon (and obviously half term would be convenient) and that it is easy to recover from.

    How's that lovely man of yours?

    And how's your little pup who no doubt is no longer little but no doubt still puppyish.

    Will be here for you whenever you need.

    Love and hugs

    Annabel. xx

  • Hi Jo,

    Apologies, I've only just come across this thread. I was saddened to learn of your latest news and that you face another operation but as the others have said, you sound upbeat which goes a long way. I hope the operation goes as well as it can do and that you will pop on here when you can to let us know how you are doing. Glad to hear that your employers are supportive, however you sound like a saint for continuing with your work whilst you have other things on your mind but I suppose it's a good distraction too.

    Hope to hear from you soon Jo,

    Nicola xx

  • Hi Hope,

    Thank you for your continued support and kind words. Things are beginning to move as I've received an appointment for my pre-op assessment - the usual routine of swabs for MRSA, bloods, height, weight, many questions etc etc!

    I always seem to be able to answer 'No' to so many of the questions they ask  (do you have diabetes, heart disease, kidney problems? etc etc) and I'm always amused at the irony of how healthy I appear to be . . . on paper at least!

    I hope you and your family are well? Presumably, you and both your boys are well into the new academic term now?

    We've just one more week to go before half term - it's been a long 8 weeks, but as I mentioned in another post, my Head has really lightened my work load by relieving me of teaching. Though I really miss the children!

    Take care and we'll chat soon,

    Jo xx

  • Hi Brian,

    Thank you for the big hugs! I've been enjoying your Amazing Quotes each day. I don't always comment though, as these days, with being back at work, I seem to spend less time on the forum! Thankfully, half term is just a week away, so I will endeavour to 'catch up' with everyone!

    Wishing you and Mrs B a lovely weekend,

    hugs to you both, Jo xx

  • Hi Annabel,

    So lovely to see your post.

    My lovely man is being as lovely as ever! We went out for lunch today (my treat, giving him a day off from the kitchen, haha! )

    We worked out it was nearly a year since we'd been out for a meal - mainly due to my 'stoma anxieties' but I'm much more confident about it these days - good job, as I get to keep it for at least a few months more!

    Paddy the pup is pretty big now. I really hope he's stopped growing as he's certainly big enough as he is! He's still a very bad traveller and gets car sick when we take him anywhere! Not ideal as our families live 90 miles away!

    I hope you're ok and not overdoing things at the cottages!

    I'll PM you soon, but in the meantime, I'm off for a canter to get some training in for this next hurdle!

    Love and hugs to you, Jo xx

Reply
  • Hi Annabel,

    So lovely to see your post.

    My lovely man is being as lovely as ever! We went out for lunch today (my treat, giving him a day off from the kitchen, haha! )

    We worked out it was nearly a year since we'd been out for a meal - mainly due to my 'stoma anxieties' but I'm much more confident about it these days - good job, as I get to keep it for at least a few months more!

    Paddy the pup is pretty big now. I really hope he's stopped growing as he's certainly big enough as he is! He's still a very bad traveller and gets car sick when we take him anywhere! Not ideal as our families live 90 miles away!

    I hope you're ok and not overdoing things at the cottages!

    I'll PM you soon, but in the meantime, I'm off for a canter to get some training in for this next hurdle!

    Love and hugs to you, Jo xx

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