Some goodish news, but more tests needed.

Hi forum buddies,

I hope you don't mind if I have a bit of a rambling rant, but I'm just  back from the appointment to discuss the results of my last lung CT scan.

I only had the scan last Friday and was pleased that the requesting doctor (liver surgeon) was 'on the ball' and had sent a clinic appointment for today. (Turns out it was the specialist nurse who was actually on the ball with the appointment.)

Unfortunately, the doctor hadn't been able to meet with the radiographer before today's appointment so although he was 'reading' the report to me, he didn't seem as up to speed with information as he usually does!

The upshot was, there is still only one lung lesion, but it has doubled in size since the last scan back in May (still very small at 6mm.)

So next steps are an MRI of my liver to rule out any recurrence of cancer, another PET scan to see if the lung lesion is still 'hot' and that it is the only hotspot in my body and then an MDT meeting to discuss results and treatment options.

The liver doctor was talking chemotherapy again, but as I reminded him, I was intolerant to the mildest form I had last year!

He also said that the lung surgeons in this health authority region, are notoriously reluctant to do metastasised lung resections from primary colorectal cancer, but given my age he would argue my case and advise me to have it done. This of course, is all dependent on a clear liver scan and no other hotspots!

The specialist nurse was unavailable today, but she is going to ring me tomorrow, hopefully having arranged these two scans. (Hope she's on the ball there!)

As we left, the doctor did reassure me that the timescales involved wouldn't make any difference to my lung and to "try not to worry" and to "go and get on with your life."  I know what he meant, but once again, it's the age old 'waiting game' scenario!

I'm focussing on the positives that it's still only one lesion, but I think I'd stressed myself out so much before the appointment (worst case scenario mode!) I felt deflated rather than uplifted as I left the hospital.

(Apologies for any insensitivity in my rant, as I know many of you would do anything for this result!)

Rant over! Thank you for reading.

Love Jo xx

Parents
  • Greetings stalker!

    I have been something of a stranger for a while but I saw your update and had to rspond.

    Brian is absolutely right in that there is never any reason to appologise for ranting - especially you and everything you have been through.  It is totally understandable that the good news you received was blunted by the prospect of more tests and waiting on results and still not being sure what the future holds. As for those four little words, "try not to worry" they are actually more likely to make us do completely the opposite.  When Dad first told me that they had found a shadow on his lung and he was going for tests he said those very same words to me.  As a result all I did from then on was worry constantly.

    Anyway Jo I just wanted to pass on my best to you and let you know that even though I haven't been around much my forum friends - and stalkers - are in my thoughts.

    Take care of yourself.

    Garf. x

  • Hi Garf,

    Thanks for dropping by with your kind wishes.

    Needless to say, a week on from the appointment and I'm feeling much calmer and less 'ranty'

    It also helps that both my scan dates are now booked, so my tendency to be a bit 'compulsive' has been soothed!

    Hope you're ok, Garf.

    Take care.

    Hugs from your number 1 stalker!

    Jo xx

Reply
  • Hi Garf,

    Thanks for dropping by with your kind wishes.

    Needless to say, a week on from the appointment and I'm feeling much calmer and less 'ranty'

    It also helps that both my scan dates are now booked, so my tendency to be a bit 'compulsive' has been soothed!

    Hope you're ok, Garf.

    Take care.

    Hugs from your number 1 stalker!

    Jo xx

Children
  • HiJo

    Sorry I missed the rant (we all feel better once its out) - been a bit slow on checking round the forum - big hugs with apologies.  Am pleased that you  now have dates to take things forward and think we all cope a little better when a plan is in place.  Take time out for yourself forum buddy as you give so much support to us all here. Jules x