Some goodish news, but more tests needed.

Hi forum buddies,

I hope you don't mind if I have a bit of a rambling rant, but I'm just  back from the appointment to discuss the results of my last lung CT scan.

I only had the scan last Friday and was pleased that the requesting doctor (liver surgeon) was 'on the ball' and had sent a clinic appointment for today. (Turns out it was the specialist nurse who was actually on the ball with the appointment.)

Unfortunately, the doctor hadn't been able to meet with the radiographer before today's appointment so although he was 'reading' the report to me, he didn't seem as up to speed with information as he usually does!

The upshot was, there is still only one lung lesion, but it has doubled in size since the last scan back in May (still very small at 6mm.)

So next steps are an MRI of my liver to rule out any recurrence of cancer, another PET scan to see if the lung lesion is still 'hot' and that it is the only hotspot in my body and then an MDT meeting to discuss results and treatment options.

The liver doctor was talking chemotherapy again, but as I reminded him, I was intolerant to the mildest form I had last year!

He also said that the lung surgeons in this health authority region, are notoriously reluctant to do metastasised lung resections from primary colorectal cancer, but given my age he would argue my case and advise me to have it done. This of course, is all dependent on a clear liver scan and no other hotspots!

The specialist nurse was unavailable today, but she is going to ring me tomorrow, hopefully having arranged these two scans. (Hope she's on the ball there!)

As we left, the doctor did reassure me that the timescales involved wouldn't make any difference to my lung and to "try not to worry" and to "go and get on with your life."  I know what he meant, but once again, it's the age old 'waiting game' scenario!

I'm focussing on the positives that it's still only one lesion, but I think I'd stressed myself out so much before the appointment (worst case scenario mode!) I felt deflated rather than uplifted as I left the hospital.

(Apologies for any insensitivity in my rant, as I know many of you would do anything for this result!)

Rant over! Thank you for reading.

Love Jo xx

Parents
  • Hi Jo, sounds like you had quite a visit with your specialist. I hear your rant and I can commisserate. This entire cancer thing stinks for sure. I wish there was some way for me to put a positive spin on this for you, but I just don't know where to start. I had a terrible reaction to chemo when I had it for my colon cancer - so bad that they couldn't complete the treatment plan with it. I think if it was suggested to me again, I would think very seriously of refusing it.

    Let us know how this goes for you and what comes out of further scans.

    Take care and sending virtual hugs to you today.  XXXX

    Lorraine

Reply
  • Hi Jo, sounds like you had quite a visit with your specialist. I hear your rant and I can commisserate. This entire cancer thing stinks for sure. I wish there was some way for me to put a positive spin on this for you, but I just don't know where to start. I had a terrible reaction to chemo when I had it for my colon cancer - so bad that they couldn't complete the treatment plan with it. I think if it was suggested to me again, I would think very seriously of refusing it.

    Let us know how this goes for you and what comes out of further scans.

    Take care and sending virtual hugs to you today.  XXXX

    Lorraine

Children
  • Hi Lorraine and Hope,

    Thank you both for your lovely, supportive comments. As I said to Brian (and on your new thread, Lorraine) when I read my post back, it sounded more of an unnecessary moan really! But too late . . . I'd already hit the 'Post message' button haha!

    I think I'd made the mistake of pre-guessing the possible outcomes that the consultation would bring. So when none of my  preconceived ideas came about, it threw me a bit!  But then when chemo was mentioned (with the doctor already knowing it's not an option for me)  my confidence in the quality of the consultation went out of the window! I felt the doctor was quite unprepared for the appointment and had probably only looked at my notes/results a few minutes before I'd arrived!  He's a brilliant surgeon, but unfortunately, tends to lack clarity in his consultations!

    I waited with baited breath today for a call from the Specialist Nurse, but only had two calls from car insurance companies!

    Fingers crossed that tomorrow will bring some news. I tend to function better when I've got firm dates or concrete plans of action in place!

    (I'm sure I'm a bit OCD! )

    Have a great weekend,

    Love and hugs to you, Jo xx

  • Hi Jo, glad to hear that you're more settled now that you have dates for your scans, etc. I think you and I have a lot in common, in that, like you, I also like to think my doctor has at least read the chart prior to meeting with me. Often that does not happen and when I ask a question, he looks at me with a blank look on his face, which is bad enough, but then when he tries to come up with an answer that usually doesn't make any sense at all, that really irks me. I know they're really busy and stretched to the limit, I know this in my heart, and he is an excellent doctor/surgeon, one of the best. I guess its' a matter of which would I prefer, a good surgeon, or a guy with a good bedside manner. Perhaps I would like both, and it ain't gonna happen I don't think. A good and knowledgeable surgeon is likely the best way to go.

    Always good to read your posts and don't ever apologize for ranting, or whatever you call it. I look forward to getting updates from you, so keep them coming.

    Take care.

    Lorraine    Hugs.