Hi Kayleigh,

Please don't get too down hearted. I know this is an awful and scary time for you but I have been through a similar experience, although mine was HPV with CIN 1. I had laser treatment to clear the pre cancerous cells, this was done under local anaesthetic, it took minutes and I was fine within a few hours afterwards, just a little cramping and bleeding.

I too was worried about pregnancy but I since had a baby without any problems. Remember that this pre cancerous cells which could turn to cancer but would take 15-20 years to progress that far - so I was told. You will be having treatment to prevent these cells becoming anything more serious and it doesn't mean pregnancy can not happen and there are procedures that can help with that when the time comes should you experience any problems in that area.

Keep your chin up. When it's all done you'll wonder why you were so worried!

Nicola xx

Hi Nicola

Thanks for the reply, I actually got my appointment for the treatment yesterday so at least I know in 9 days the cells will be gone, I had the cin 1 in May and they left me for 6 months and then it's turned to cin 3, it was such a shock that it had gone from 1 to 3 in such little time, and yeah I am looking forward to the day I can look back and think why did I worry so much, I haven't been able to be positive about it yet but I only have 9 days to wait now until the treatment!!

I've never from day 1 understood the hpv, how long ago did you have the treatment? And has everything been ok since??

Regards

Kayleigh

Hi Maxmill

Your recent biopsy has not identified cancer, just abnormal cells, so I would take comfort from this. I know it can be very scary but treatment should remove the abnormal cells before they have a chance to develop into cancer and then you would have regular monitoring. x

Thank you

So today I've found out my appointment has been bought forward to this Tuesday 21/7/20

to have LEETZ treatment for abnormal cells CIN 2-3

HPV

But I'm feeling pain in my lower tummy achy pain like my cervix is dialating like labour 

just wondering if anyone else has had this ?

hurts to walk too ‍♀️
appreciate anyone's opinion on this or a nurse ?

Hi Maxmill

CIN and having hpv should not give pain. You really need to mention this when you go for your treatment on Tuesday, and the gynaecologist should be able to advise. All the best for your treatment. (Nurses are not here at the weekend)

Thank you x

Hi Maxmill

I am in the same situation as you, could I ask how your treatment went and what they said about the pain? I have pain too, not like yours but mines like where the side of my womb is, if that makes sense.. between public bone and hip- just on one side. Had biospy 2 weeks ago and got cin 2-3 results yesterday but they are taking it to the MDT meeting? At the end of this month to decide my treatment and then go from there. I am worrying as to why it needs to be taken to this meeting first and why I cant just go ahead with the standard treatment, its making me worry that they think it could be cancer :( x

Hello

so I had LETTZ 3 weeks ago this Tuesday 

that gets sent off and my results were back friday

originally they thought CIN 2-3 now it's come back CIN 2 

amd the HPV is obviously still there 

they said it was only a small area on my cervix that was affected 

I go back in 6 months for a check smear to clear and colposcopy 

pains still there Doctor's referring me for gynaecologist and a laposcopy where a camera goes in thru navel and looks round to check what's going on 

I also have an ultrasound booked for 2/3 weeks time 

try not to worry honest at least you r in the right place the system being checked xxx

Hi Molly May,

How did your meeting go?

I'm in the same position as you and have had a biopsy last week and the letter came today saying CIN 2-3. I need to go in for exact words 'our monthly meeting ' to discuss treatment options.  

This wording makes me think it may be worse too why monthly?  

Hope the outcome for you was okay and not what I'm thinking now too. 

Best wishes.

Hi all,

I remember when I was first diagnosed with HPV and abnormal cells (Both CIN2 and VAIN2) how worried and unsure I was. I checked so many forums but usually just saw more worry and stress - so I wanted to tell my story to help put other women at ease..

My case was extreme. After over 6 years involving 2 operations and numerous smears and colposcopies I can now say that I'm free of both CIN/VAIN and HPV and have gone back to the 3 yearly NHS screening.

HPV is SO common and can’t be stopped completely with any kind of contraception. Don’t feel bad that it’s happened to you. Chances are loads of your pals and family have had the same virus - in fact 80% of sexually active people worldwide have had it. Any CIN whether mild (CIN1), moderate (CIN2) or severe (CIN3) ISN’T cancer and the chances are it won't develop into cancer - and even if it does it can take YEARS to develop. See it as a positive thing, your doctor can do something NOW that will prevent you getting cancer in the future - how great is that?!

Yes, colposcopies are a little uncomfortable but they're fine really, only 15 minutes out of your life and the nurses and doctor will always put you at ease. If you're worried or the position is uncomfortable, tell them - they're there for you. I've had biopsies and a polyp removed and hardly felt both. If in the rare chance you have a bad experience you can ask to be referred to another hospital – it’s YOUR body.  If you have questions after any examination or result, call them. Don’t Google. They are the experts and have always been happy to take any of my calls.

My body took a while to fight the infection so I started taking vitamins to help it along. Leading up to my first normal (yay) smear result I took a good multivitamin every day and also daily capsules of green tea. I can't say that this definitely did the job but it seemed to work for me.

All really want to say is, don't get down about this, it's super common and how lucky are we that we live in a day and age where this (potential) disease can be stopped?! Go to your smears, go to your colposcopies, if you need treatment then fine, go for it. I've had treatment both under local and general anaesthetic and I will say go general if you can as you wake up with just a little cramping for a few days then all is back to normal. 

My case is a rare one as the cells returned after treatment and yours will likely be gone much quicker. There were times that I got upset or frustrated with yet another positive result or biopsy but I persevered and got there in the end. Take a loved one or pal with you to your examinations (to wait outside) and congratulate yourself after each one with a nice meal or glass of wine.

You’ve got this. Stick at it girl. Honestly, you’ll be so proud of yourself when you get that first all clear!

Hi 

just been reading Through this post and wondered if anyone can help me. So I was due a smear in April 2020 but I was pregnant at the time so I missed this smear and had my smear in January 2021 when my son was 12 weeks old. This come back with abnormal cells low grade and I was sent for a colposcopy on February 4th 2021 I received my results back from This a few days ago and an appointment letter for the 17th March to have the loop procedure done. After the colposcopy and the biopsy it has come back cin3 and not low grade like they origanlly thought. I'm really worried as I have been bleeding nearly continuously for the last two months I would have a period a longer period then stop for a few days then start again and there is always blood when I wipe. Did anyone have these kind of symptoms with cin3 at all. Waiting for my loop procedure just seems like forever as I'm so worried. 
 

thanks x

Hi 

just been reading Through this post and wondered if anyone can help me. So I was due a smear in April 2020 but I was pregnant at the time so I missed this smear and had my smear in January 2021 when my son was 12 weeks old. This come back with abnormal cells low grade and I was sent for a colposcopy on February 4th 2021 I received my results back from This a few days ago and an appointment letter for the 17th March to have the loop procedure done. After the colposcopy and the biopsy it has come back cin3 and not low grade like they origanlly thought. I'm really worried as I have been bleeding nearly continuously for the last two months I would have a period a longer period then stop for a few days then start again and there is always blood when I wipe. Did anyone have these kind of symptoms with cin3 at all. Waiting for my loop procedure just seems like forever as I'm so worried. 
 

thanks x

Hi Sara, I've been on this forum trying to find answers to myself aswel as i am booked in to see the doctor tomorrow at 3:00pm, i had my last smear 3 years ago this October they were HPV positive with CIN 1 and cervical erosion, the past two months i have had a period that lasted two days then literally nothing, when i can put pound to a penny mine are always 5 days, i am 30 years old and have been off contraception for over a year and a half, from the pill which i had taken since i was about 14. I had regulated my periods nicely. Anyway due to the cervical erosion it causes me to bleed abit after sex which hasn't happened in a couple of years until very very recently I've had a steady partner and I've ruled out pregnancy by a test, since my last 'period' of two days ended i have heavy bleeding again (currently now) two week later which didn't happen on the first time, this has had my head in a total flap because i asked my doctor a year ago before I started medication to sort my skin breakouts out when can i have another smear because I am sure people who have had abnormal ones get one yearly! But she said no tapping away on the computer to check you're not due one until October of this year, i said all this to my doctor at the same surgery and he has told me he wants to see me for an examination which is the one i am going to tomorrow, since i had that conversation with him on the phone last week i have started bleeding again which was after sex once again but this one hasn't stopped yet and is heavy. 
sorry for the really long post- i felt like ours were similar so wanted to give you a full picture albeit abit TMI  

hope you're well x 

Hi Rhea 

since my last post I had my loop procedure done and my results come back cin2 and they think they removed it all and for a smear again in 6 months. 
I also have still been bleeding a lot and spoke with the doctor who thinks this is due to being On and off the mini pill as o take it for a while then stop and then started again. I have just stopped taking it all together now to try and regulate my periods but still not 100 percent this is the cause of the bleeding. 
Try not to worry as you are up to date with your smears, and you have bled before because of your cervical erosion so could be just this again. And your doing the right thing by getting an examination hopefully this will put your mind at rest.

let us know how you get on x 

So glad you've had the procedure done and get followed up again in 6 months i hope that has helped put your mind at ease :) 

I personally found myself better off the pill than on it so fingers crossed once your body has made the adjustment to settle down into a routine it will be fine for you but make sure you keep in contact if you're not feeling 100% happy because you lnow your body better than anyone else does! Thankyou so much for replying hearing from someone else in the situation has made me feel less wobbly and i shall post an update tomorrow x 

Just a little update haven't really got anywhere he did an internal check but wasn't satisfied fully because he wanted me to do another pregnancy test but I couldn't wee!! With the amount of bleeding i very very much doubt i am. So he didn't want to examine to an extent where it could cause potential damage if i was so off to buy a stick in a while. He's bookede in for a blood test on Friday morning and sending me for an ultrasound in the next couple of weeks also writing to the gynaecologist to see weather they want to see me aswel.. glad i have tests coming up to try and find the problem anyway.

all the best xx