CIN 3 and HPV

In March 2013 I had a regular smear test which came back with high risk HPV and mild dysplasia, I had a colposcopy and biopsy, with results stating I had CIN 1, on the 17th November 2013 I had my follow up colposcopy and smear test, today I got results which state I have severe dysplasia and have to have treatment in a few weeks, the Dr advised this is not cancer and she doesn't think it will be either. Just seeing whether anyone else has had these results and treatment and whether the treatment was successful, I am having treatment done under local anaesetic also- I also one day want to have children but today with these results this seems a long shot now, I am 28 years old and this has gutted me and hope that I could maybe get a bit of reassurance and advised of anyone going through the same thing.

Kayleigh

Parents
  • Hi Kayleigh,

    Please don't get too down hearted. I know this is an awful and scary time for you but I have been through a similar experience, although mine was HPV with CIN 1. I had laser treatment to clear the pre cancerous cells, this was done under local anaesthetic, it took minutes and I was fine within a few hours afterwards, just a little cramping and bleeding.

    I too was worried about pregnancy but I since had a baby without any problems. Remember that this pre cancerous cells which could turn to cancer but would take 15-20 years to progress that far - so I was told. You will be having treatment to prevent these cells becoming anything more serious and it doesn't mean pregnancy can not happen and there are procedures that can help with that when the time comes should you experience any problems in that area.

    Keep your chin up. When it's all done you'll wonder why you were so worried!

    Nicola xx

  • Hi Nicola

    Thanks for the reply, I actually got my appointment for the treatment yesterday so at least I know in 9 days the cells will be gone, I had the cin 1 in May and they left me for 6 months and then it's turned to cin 3, it was such a shock that it had gone from 1 to 3 in such little time, and yeah I am looking forward to the day I can look back and think why did I worry so much, I haven't been able to be positive about it yet but I only have 9 days to wait now until the treatment!!

    I've never from day 1 understood the hpv, how long ago did you have the treatment? And has everything been ok since??

    Regards

    Kayleigh

  • Thank you for your reply x

    So at this stage if I did have cancer they would know ? X

  • Normally you would need a biopsy to confirm cancer. Even though I had a tumour visible to the naked eye on examination, the gynaecologist did not confirm it was cancer until he had the results of my biopsies. Hopefully your treatment will simply remove the abnormal cells. x

  • Oh ok thank you 

    so I've had two biopsy one in Jan that was clear and one 

    recently this month and this is where it's come back CIN 2-3

    do you mean when they send off after my laser treatment ? Will that be classed as a biopsy ? I'm feeling so scared about all this x

     

  • Hi Maxmill

     

    Your recent biopsy has not identified cancer, just abnormal cells, so I would take comfort from this. I know it can be very scary but treatment should remove the abnormal cells before they have a chance to develop into cancer and then you would have regular monitoring. x

  • So today I've found out my appointment has been bought forward to this Tuesday 21/7/20

    to have LEETZ treatment for abnormal cells CIN 2-3

    HPV

    But I'm feeling pain in my lower tummy achy pain like my cervix is dialating like labour 

    just wondering if anyone else has had this ?

    hurts to walk too ‍♀️
    appreciate anyone's opinion on this or a nurse ?

  • Hi Maxmill

     

    CIN and having hpv should not give pain. You really need to mention this when you go for your treatment on Tuesday, and the gynaecologist should be able to advise. All the best for your treatment. (Nurses are not here at the weekend)

  • Hi Maxmill

     

    I am in the same situation as you, could I ask how your treatment went and what they said about the pain? I have pain too, not like yours but mines like where the side of my womb is, if that makes sense.. between public bone and hip- just on one side. Had biospy 2 weeks ago and got cin 2-3 results yesterday but they are taking it to the MDT meeting? At the end of this month to decide my treatment and then go from there. I am worrying as to why it needs to be taken to this meeting first and why I cant just go ahead with the standard treatment, its making me worry that they think it could be cancer :( x

  • Hello

    so I had LETTZ 3 weeks ago this Tuesday 

    that gets sent off and my results were back friday

    originally they thought CIN 2-3 now it's come back CIN 2 

    amd the HPV is obviously still there 

    they said it was only a small area on my cervix that was affected 

    I go back in 6 months for a check smear to clear and colposcopy 

    pains still there Doctor's referring me for gynaecologist and a laposcopy where a camera goes in thru navel and looks round to check what's going on 

    I also have an ultrasound booked for 2/3 weeks time 

    try not to worry honest at least you r in the right place the system being checked xxx

Reply
  • Hello

    so I had LETTZ 3 weeks ago this Tuesday 

    that gets sent off and my results were back friday

    originally they thought CIN 2-3 now it's come back CIN 2 

    amd the HPV is obviously still there 

    they said it was only a small area on my cervix that was affected 

    I go back in 6 months for a check smear to clear and colposcopy 

    pains still there Doctor's referring me for gynaecologist and a laposcopy where a camera goes in thru navel and looks round to check what's going on 

    I also have an ultrasound booked for 2/3 weeks time 

    try not to worry honest at least you r in the right place the system being checked xxx

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