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An anxious wait . . . is now back on again

Meerkat@65
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Hi everyone,

Just a quick update, straight from the horses mouth, so to speak!

The specialist liver nurse has just rung to say that my latest MRI scan results have shown no new tumours!!!  

Still the original three little blighters!

One of three has remained the same size, but the other two have slightly increased in size.

Next step is to have a PET scan (will need to look this up on here!) thought the nurse did explain it was like a CT scan only with glucose - I'm guessing to highlight markers elsewhere in the body?

If this scan is ok, liver resection and stoma reversal is next on the cards!

No timescales yet, but I'm wearing a smile as big as the sun today!

Thank you everyone for all your supportive messages during my 'anxious wait'

Love to you all, Jo xx

  • Offline in reply to Meerkat@65

    Jo

    So sorry to hear your news.  We will be here whatever your decision.

    Love and hugs coming your way..

    Gill

  • Offline in reply to Meerkat@65

    Jo

    I'm so sorry to hear your latest news, what a dreadful blow for you and your family. I was so hoping for something better. You have supported me with just the right words when I needed help and I admire you greatly. I hope I can find the right words to support you too. Bless you my dear, take care.

    Love Gina xx

  • Offline in reply to Meerkat@65

    Dear Jo,

    I want to say something to help you but I just don't know how.  I am so sorry to read your latest blow, I'm wishing you strength and sending a virtual hug.  Your forum buddies will be here whenever you need us.  Hope xx

  • Offline in reply to Meerkat@65

    Oh Jo,

    I am so sorry to read your latest news; you must be feeling devastated. As others have said, your friends will be thinking of you.

    Take care Jo, sending you best wishes, Brian.

  • Offline in reply to Meerkat@65

    Jo,

    I'm so sorry to hear this. This is such devastating news after all you've already had to cope with. You've been so strong and strong for me and others on this site too. Take your time to come to terms with this and we will all be waiting to support you in anyway that we can when you are ready to talk again.

    Thinking of you always,

    Nicola xx

  • Offline in reply to Meerkat@65

    Jo,

    So sorry to hear your news.  Sending a bit cyber-hug your way.  Hope you hubby is giving you plenty of real ones.  Katielouie x

  • Offline in reply to katielouie

    Hi lovely Forum Friends,

    Wow! Thank you all so much for your wonderfully supportive messages. It's a real boost to read them and feel the support through cyber space.

    Garf, I was thrilled to read news of your friend on your thread - great to hear some good news and thanks to you and the others who mentioned me on that thread too!

    Well, I hope you all don't mind a group, semi-update.

    I've kept a bit of a low profile over the past few days I've much to consider at the moment; this isn't helped by not having all the info and answers to my questions. Why do a hundred questions pour into your head the minute you step outside the consultation room?!

    I've made another appt to see the specialist and it's come through for  Weds. I've also had an appt through for a pre-op assessment which is for tomorrow (Mon) so although I haven't made a concrete decision about the surgery, at least I'm 'in the system' and ready to go, if I decide to go ahead with the resection.

    I also received a letter that I had been copied into, which informed my GP about my current situation. Seeing it in black and white seemed to clarify a few things (better that sitting in the doctor's room and hearing a load of jumbled words coming at me!)  so I have compiled my list of questions and I'm just waiting for Weds afternoon, when hopefully, more answers will be available and I will be able to decide which way I want to jump!

    I spent a few days back in my hometown (Shrewsbury) and told my family where I'm upto! This has been something I've struggled with - telling those closest to me. I still haven't told my kids as they're both in the middle of exams - my son is sitting his finals, but he finishes next week, so a few more days of 'not knowing' isn't going to harm! Also, hopefully by then, I'll have the full picture on the health front, so I can tell them in one go.

    Well, it's time to get up and take the pup out for a walk and then get ready for school next week - just hope I can remember where I left my pencil case and P.E. kit

    Love and hugs to you all, and thanks again for your support - it really helps so much

    And I will catch up with all your threads and respond individually asap!

    Xxxxx

    p.s. Gill, have I got it right that you're back to work tomorrow? If so, hope it all goes well and don't tire yourself out - little steps! Xx

  • Offline in reply to Meerkat@65

    Jo

    Can't begin to imagine how you get your head around everything thats going on but suspect being a teacher you are good at planning.  Am sure you will be in a better position after Wednesday's appointment when you have your questions answered and can fully appreciate the need for you to time telling your kids what you need to.  As you know and can see the forum jumps in to save our 'emotional heads' and thanks for the update. Take care of 'you' and we are here to listen whenever you are ready to share.  Sending huge virtual hugs (but am sure the family are doing better) and hope the pup is helping the time pass - lovely day for a walk though I plan laziness in the back garden (free and not far to travel hah). Jules xx

  • Offline in reply to Meerkat@65

    Good morning Jo,

    It was good to open the forum today and see your name at the top of the list. That puts you at the top of two lists today although since my list of stalkers has a total number of one you are always at the top of that one.  I understand what you mean about coming out of a meeting and then remembering all the questions you should have asked as I do it all the time at work.  As things come to my mind I write them down on a piece of paper so that I have them when the time comes.  Of course it's difficult to plan for things like losing said piece of paper!   My filing system at work is very simple! Anything I want or need is simply "in the office".

    Anyway enough pointless rambling from me for one day I am just happy you didn't stay away too long which is further testament to your strength which really does help a lot of us here so, as Jules has already said, we are always here whenever you feel that strength waning.  In the meantime I will again keep my fingers crossed for you on Wednesday, just don't lose that piece of paper.

    Sending best wishes as always.

    Garf. xx

  • Offline in reply to Meerkat@65

    Hi Jo

    So good to see your post.

    We have all done it.  Walked out of the office and as you say thought of all the questions you should have asked.  Like most I made the mistake of not writing them down the first time but now if I have any I always write them down even if it is only one.  Hopefully you will get all the replies you need on Wednesday.

    I can understand your reluctance to tell your children at present.  Given the pressure on them with exams I think you are vey wise to hold of telling them until these are out of the way and as you say things should be a bit clearer by then.  My daughter does not cope well with exams at the best of times and something like this would have wrecked her chances.  She has just done her first year exams at Uni and even though I am at the end of my treatment the Uni wanted all dates and everything of my diagnosis and treatment as they have said this will be taken into account in marking her exams - according to her they have to be nice to her!  It must have been difficult telling your family but it is something that has to be done.  I think there is nothing worse  for families that not knowing.

    It is so sweet of you to remember that I am back to work tomorrow.  Given all that is going on it is something that I would expect to be in your mind at all.

    Very best wishes.

    Gill

    P.S.  The pencil case and PE Kit are always in the last place you look!

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