An anxious wait . . . is now back on again

Hi everyone,

Just a quick update, straight from the horses mouth, so to speak!

The specialist liver nurse has just rung to say that my latest MRI scan results have shown no new tumours!!!  

Still the original three little blighters!

One of three has remained the same size, but the other two have slightly increased in size.

Next step is to have a PET scan (will need to look this up on here!) thought the nurse did explain it was like a CT scan only with glucose - I'm guessing to highlight markers elsewhere in the body?

If this scan is ok, liver resection and stoma reversal is next on the cards!

No timescales yet, but I'm wearing a smile as big as the sun today!

Thank you everyone for all your supportive messages during my 'anxious wait'

Love to you all, Jo xx

Parents
  • Good Luck Jo. My thoughts are with you

    Skye

  • Lovely forum buddies,

    Thank you all for your good luck wishes. They boosted my morale no end

    The X-ray went well. Thankfully the clinic was running on time and we were back home by 10.30! The consultant radiologist gave me a good indication that the surgery site was well sealed - no leaks!

    I then had a call from the specialist liver nurse and she asked if I could attend an appointment this afternoon to get the CT scan results from last week.

    So we hot footed it back across the city.

    I was anticipating bad news (coping mode!) but this didn't help soften the blow of what I was told. The lung hotspots are cancer so I've now got to weigh up whether to have liver surgery or not as my life expectancy is 2 to 3 years and the surgery won't lengthen this time.

    I can't write all the whys and wherefores at the moment as I'm struggling to take this in. My partner and I have some big decisions to make over the next few weeks. I know some of you may suggest a second opinion - and once I've got my head round it all, I'll probably do this!

    Forgive me if I drop off the radar for a few days. I'll be thinking of you all though.

    Much love to everyone, Jo xxxx

  • Much love to you Jo.

    Will be holding you in my thoughts.

    Annabel. xx

  • Oh Jo, I am desperately sorry for the latest blow this damn disease has given you and like so many others I wish there was something I could do other than offer what little support I can in writing.

    You are a true star Jo and if you are going to dissappear for a while then, before you go I just want to thank you for the help and support you have given me and to let you know there are always people here who care a great deal about you and will always do what is possible to help.

    Take good care of yourself my stalking friend and all my very best wishes to you.

    Garf. xxxxx

  • Jo

    So sorry to hear your news.  We will be here whatever your decision.

    Love and hugs coming your way..

    Gill

  • Jo

    I'm so sorry to hear your latest news, what a dreadful blow for you and your family. I was so hoping for something better. You have supported me with just the right words when I needed help and I admire you greatly. I hope I can find the right words to support you too. Bless you my dear, take care.

    Love Gina xx

  • Dear Jo,

    I want to say something to help you but I just don't know how.  I am so sorry to read your latest blow, I'm wishing you strength and sending a virtual hug.  Your forum buddies will be here whenever you need us.  Hope xx

  • Oh Jo,

    I am so sorry to read your latest news; you must be feeling devastated. As others have said, your friends will be thinking of you.

    Take care Jo, sending you best wishes, Brian.

  • Jo,

    I'm so sorry to hear this. This is such devastating news after all you've already had to cope with. You've been so strong and strong for me and others on this site too. Take your time to come to terms with this and we will all be waiting to support you in anyway that we can when you are ready to talk again.

    Thinking of you always,

    Nicola xx

  • Jo,

    So sorry to hear your news.  Sending a bit cyber-hug your way.  Hope you hubby is giving you plenty of real ones.  Katielouie x

  • Hi lovely Forum Friends,

    Wow! Thank you all so much for your wonderfully supportive messages. It's a real boost to read them and feel the support through cyber space.

    Garf, I was thrilled to read news of your friend on your thread - great to hear some good news and thanks to you and the others who mentioned me on that thread too!

    Well, I hope you all don't mind a group, semi-update.

    I've kept a bit of a low profile over the past few days I've much to consider at the moment; this isn't helped by not having all the info and answers to my questions. Why do a hundred questions pour into your head the minute you step outside the consultation room?!

    I've made another appt to see the specialist and it's come through for  Weds. I've also had an appt through for a pre-op assessment which is for tomorrow (Mon) so although I haven't made a concrete decision about the surgery, at least I'm 'in the system' and ready to go, if I decide to go ahead with the resection.

    I also received a letter that I had been copied into, which informed my GP about my current situation. Seeing it in black and white seemed to clarify a few things (better that sitting in the doctor's room and hearing a load of jumbled words coming at me!)  so I have compiled my list of questions and I'm just waiting for Weds afternoon, when hopefully, more answers will be available and I will be able to decide which way I want to jump!

    I spent a few days back in my hometown (Shrewsbury) and told my family where I'm upto! This has been something I've struggled with - telling those closest to me. I still haven't told my kids as they're both in the middle of exams - my son is sitting his finals, but he finishes next week, so a few more days of 'not knowing' isn't going to harm! Also, hopefully by then, I'll have the full picture on the health front, so I can tell them in one go.

    Well, it's time to get up and take the pup out for a walk and then get ready for school next week - just hope I can remember where I left my pencil case and P.E. kit

    Love and hugs to you all, and thanks again for your support - it really helps so much

    And I will catch up with all your threads and respond individually asap!

    Xxxxx

    p.s. Gill, have I got it right that you're back to work tomorrow? If so, hope it all goes well and don't tire yourself out - little steps! Xx

  • Jo

    Can't begin to imagine how you get your head around everything thats going on but suspect being a teacher you are good at planning.  Am sure you will be in a better position after Wednesday's appointment when you have your questions answered and can fully appreciate the need for you to time telling your kids what you need to.  As you know and can see the forum jumps in to save our 'emotional heads' and thanks for the update. Take care of 'you' and we are here to listen whenever you are ready to share.  Sending huge virtual hugs (but am sure the family are doing better) and hope the pup is helping the time pass - lovely day for a walk though I plan laziness in the back garden (free and not far to travel hah). Jules xx

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  • Jo

    Can't begin to imagine how you get your head around everything thats going on but suspect being a teacher you are good at planning.  Am sure you will be in a better position after Wednesday's appointment when you have your questions answered and can fully appreciate the need for you to time telling your kids what you need to.  As you know and can see the forum jumps in to save our 'emotional heads' and thanks for the update. Take care of 'you' and we are here to listen whenever you are ready to share.  Sending huge virtual hugs (but am sure the family are doing better) and hope the pup is helping the time pass - lovely day for a walk though I plan laziness in the back garden (free and not far to travel hah). Jules xx

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