i also completed 6 months of chemo for fallicular cancer  and saw the doctor as requested but he told me that studise show maitainance treatment has no effect . i am  now very confuses as what to do,  doroty

Hi Doroty,

Follicula Lymphoma is a very confusing illness. All doctors have their own ideas how to treat and what drugs to use and when to use them. I had RCVP 12 years ago and a complete response and no maintenance needed. Six years ago I relapsed and had RCHOP which did not do a great deal, but two years of Maintenance afterwards gave an almost complete response. so was very worth while. You only get one go at maintenance so it is best to use it when it is needed. If I had had it 12 years ago after my complete response I could not have had it when I relapsed and definately needed it.

I hope this helps and makes things a little clearer.

Christine.

hello christine thankyou for your response its difficult to know what to do  this is why i am collecting info mation from the people that have to go through this. i am seeing  the doctor in october  and am not leaving his office untill this iis made clearer to me. i hope you are keeping well  and thankyou again for your support    

doroty

Hi iv just came across this post..I too have follicular lymphoma stage 4 an have had 6 cycles of rcvp I am now on a maintenance of rituximab for 2years. I feel nauseous an tired all the time but my doc says it's nothing to do with the cancer or the treatment. I don't feel they give you enough information about this cancer. I was first lead to believe it was a slow growing cancer but I really don't no now if this is so. Can anyone give advice please

Popta

Hi Popta

have Mantle cell lymphoma which is the same treatment for follicular lymphoma, I was stage 4 and have just finished my 6th treatment in February.  My consultant said the CT scan showed no cancer now and I didn't need the maintenance treatment so I was really pleased as I had a few infections in the 2nd half of my treatment.  Then I got a phone call from my consultant to say the MDT said I could have the maintenance treatment Rituximab for 3 years, she wants me to make the decision.  Don't know what to do as I have no statistics to make this decision so in a bit of a quandary at the moment.  I am worried about  the side effects and infections!  My lymphoma is low grade which is slow growing.  High grade is fast growing so you could ask one of the specialist nurses which one yours is.  

Maureen

Havel just started the rutiximab injections again after a 7 month delay due to illness pneumonia which l contracted twice ,because of the chemo.  I have had 5 injections so far, with 7 to go. I have B cell  lymphoma non Hogkins. The full chemo definitely wortked but ended up in hospital 3x during the course of this because of infections. The maintenance for me is a bit iffy. Do not feel well at all after the injections. High temperature , sore throat , dry cough. Has anyone else suffered the same 

   Colin

Havel just started the rutiximab injections again after a 7 month delay due to illness pneumonia which l contracted twice ,because of the chemo.  I have had 5 injections so far, with 7 to go. I have B cell  lymphoma non Hogkins. The full chemo definitely wortked but ended up in hospital 3x during the course of this because of infections. The maintenance for me is a bit iffy. Do not feel well at all after the injections. High temperature , sore throat , dry cough. Has anyone else suffered the same 

   Colin

Welcome to Cancer Chat Colin although I'm sorry you've not been feeling too good after your injections.

I'm just responding to you as I noticed you were trying to get in touch with Malinowski. This member hasn't returned to the forum since making this post back in 2019 so there is a chance you may not hear from this member or anyone else on this discussion.

I hope that isn't the case and they do return to share their experiences with you but as a back up it may be worth starting a new discussion or reaching out to others on more recent discussions.

You can also seek information and advice from Lymphoma Action.

I hope this helps and I wish you all the best with your last 2 injections. You can do it Colin!

Kind regards,

Steph, Cancer Chat Moderator