Hi Nicola, 

Great to see your latest news! Glad to see you're managing to eat new things - I'm with you on the avoidance of curry,  though for wholly different reasons haha! 

Have a fantastic time in California and good luck with the new job. Really glad that your thread is still active and offering support to the newer forum members. 

How's the fatigue? Hope you're still pacing yourself! 

Well, off to catch up with Irene and Deb on another thread! It's all go haha! 

Sending big hugs to all on this thread, Jo xx

Irene, good to hear from you too and thanks for the Facebook message. Wow 17 months already, that's flown by. I've struggled a little during this lovely weather recently, my thirstyness is terrible and BBQ food not so good for me but I manage. I hope we will arrange our Liverpool meet up sometime this year, it would be lovely to see everyone again before the year is out. I might give the chaps a nudge on fb and see how they are.

speak soon,

Nicola 

Hi Nicola, yes I share your sentiments on BBQ food (not that we've had much BBQ weather in Scotland - it has been just dreadful up here, no summer weather to speak of really)!  It certainly would be lovely to have our Liverpool meet, so nudge away!  

Hope all goes well with the new job.

Love Irene x

Hi all how are we all doing

sorry been a bit absent just trying to sort work out before a went on hols for two weeks

i had a great time away but was very ill at the start not due to food poisoning but I think my immune system is just a bit low and just could not deal with the new bugs....that's my theory anyway

Even though I ate like a pig 3 courses 3 times a day i only managed to put on 5lbs and appeared to have now lost 6lbs and I have only been back 2 days

wierd

anyway will catch up soon hope you are all ok

HI all.

I went for my yearly checkup (8th) and all was OK. But they want to remove

the lump  under my chin to give me more flexibility of movement.

Its about 2 inches square. They will take a piece from my stomach  level

with my navel to fill the ensuing hole. This will take place Dec 3rd.

Just 2 nights in hospital (I hope) and I will look as lovely as ever once the scars heal.

Colin

Hi Irene, Colin & Varch, good to hear from you all.

Vatch sorry to hear you were unwell on your hols, hopefully it didn't spoil it too much. It's still early days for you so may well be the tail end of your recovery affecting your immunity. This weight gain problem is annoying isn't it. I seem to just gain it around my middle now, still only weigh 6 stone 3 !!

Colin, I hope all goes well with the op although you have a while to prepare. Is the lump caused by lymphedema? I have a friend who also had tongue cancer and the same surgery and treatment as me (we have identical scars and tongues!) and she has lymphedema under her chin. She has recently had some laser treatment to try to help it but she says it hasn't yet made a huge difference. Hopefully your op will be worth it and you will notice the difference.

Gary J has suggested we organise a Liverpool meet up for later this year. What's everyone's thoughts?

speak soon,

Nicola xx

Hi Guys,

Good to hear from you Nicola. Glad you are doing well with your new job and that your lump was nothing sinister. A new job is great and like a fresh start.

I see the photo of your meetup, looks like you had a great time, I will have to try and come along to one, would be good to meet others and hear different experainces. 

Just to say hello to everyone else as well, I do still visit here and try and help when I can.

Thanks for all your help everyone at diagnoses nine months ago, time has flown past. I am getting a new job as well, one which is much less stressful, cancer is differently a wake up call. Strangly I feel a lot more calm at life, I am no longer in a rush as I used to be, take each day as it comes.

My recovery is going very well, tongue has healed very good as has the neck, speech is much better as welll. I had a lump pop up but like Nicola was told its nothing sinister, just a node. Eating is good, I struggle to eat chips which is no doubt a good thing.:)

My neck plays up every now and then with stabbing pains, and pain sometimes when swallowing. Does anyone else get this after a neck dissection? Its weird because it only started happeneing in the last few months, under my ear. They did an ultrasound scan to check the lump and all was well.

I hope you all have a great summer and thanks again for the support.

Space

a.k.a Roz_dog

I shall start learning scouse right now ...."eeeeeeeeeeee"

Space, Roz dog

glad to hear you are moving on well.  A few problems but I guess with what we have all been through... We just take them in our stride regardless of how annoying they are.

congrats on the new job too all the best for that

i guess during our treatment  and aftercare we tend to post on here quite a lot.. Then comes that time when we are nearly back to normal and start to enjoy living life a bit. We dip in and out of here for the great friends we have and to help those new to the club but the desire and enjoyment in tryingt to be normal again detracts from being on here. I sometimes think that I might be back to normal then go and play 5-a-side football and my body reminds me that I'm not quite my old self yet.... But I am now enjoying getting there

have a great weekend all and space if we get to arrange liverpool in autumn come on down... We can discuss how UFO was so much better than space 1999