Hi Nichola

I'm so sorry to hear about what happend with your

Peg procedure,

I hope you are feeling better soon and you can spend

Lots of fun days with you lovely daughter.

Hugs

Nicola it really does seem that if you didn't have bad luck you wouldn't have any luck at all!

As you say you have been going through quite enough without this extra problem that apparently could have been avoided but I hope you can manage to regain some of the confidence you had in the doctors although I completely understand how frustrated you feel when they get something so wrong and then can't seem to make up their mind as to how long it will take for this air to dissipate.  Have you tried asking the nurses on here?  They may be able to give you a clearer answer or just put your mind to rest a little.

All the best to you Nicola and good luck.

Garf.

Oh Nicola, what bad luck.

I really feel for you and I can't begin to imagine the impact this must have had on your confidence. I can well understand your anger with the doctor that did this. It's also disappointing that you were sent home with just paracetamol - it sounds like it was obvious that this was going to cause you a good degree of pain, and in my view there is little need for anyone to suffer pain nowadays.

We're on a long road and we know it's going to be rocky at times - this is something that needs to be got over to allow you to move onto the next stage. You will get over this and you will get through the treatment phase and return to a normal life. I know it's difficult at times but I think it helps  to try and keep this in mind. 

My thoughts are with you.

Best wishes.

Simon

Oh, Nicola,

Just seen your post and like the others who've posted, can't believe your bad luck and I really feel for you!

I'm so sorry you've lost your faith in the medical team. Understandable though.

Do let us know how you're getting on over the next few days.

I hope you soon feel a little better and able to do something with your little girl.

Big hugs, honey! Jo xxx

Hi nicola

I can't believe what an awful time you are having! It must be time for your luck to change.

I really hope they are able to fit the PEG tube on the next attempt. It's bad enough having these things done once let alone twice!

Try and keep smiling!

Debbie

Hi Nicola,

So sorry to hear of your peg problems. I have never heard of that happening before. I would have thought they could use something like a trocar

and bleed off the air. I suppose they are afraid of puncturing you stomach again. I was told early on that if the peg became displaced I must

get to emergency immediately as the hole starts to heal after 3 hours. If they sort out the peg on Friday I would assume the air will disperse when

they make the hole in your skin. Especially as it must be well off your stomach if you look pregnant.

Early on, my peg became blocked and I went to emergency. They called in a doctor to change it. She said you can't just come in and expect service

right away. As it was early morning I had not had any food or water since the day before I thought 'Do I starve?.  I now change it myself.

I am lucky that I have never been depressed. I think there are plenty worse off - I can't imagine being blind, so I think myself kind of lucky, relatively speaking.

I got out of hospital on Sunday and am slowly getting back to normal.

Best wished for Friday, perhaps they will delay your RT a little to allow you to gain some weight.

Let us know how it all goes.

Kind Regards

Colin

Thanks everyone for your replies.

It's been an awful week, since my last post I was admitted to hospital again for the third time in a week. The stomach pains were so bad I called the hospital ward and they told me to go in. I waited 7 hours in the waiting room to see a doctor and he talked me into staying so they could sort it out. Then in the morning the same consultant said he was going to send me home again without doing anything. I was angry and upset and felt they had wasted my time but then my cancer nurse and Oncologist expressed their concerns for me and then I was taken to theatre that same day! I had a laparoscopy (key hole surgery) where they sucked the air and fluid from my tummy and put the peg in at the same time. When I woke up it was done and I was discharged yesterday. Two days on from the op I'm still in some pain from the peg and the keyhole surgery but I think it's improving now with Tramadol.

I hope I didn't sound like I was moaning before, but this damn peg has caused a lot of problems for me so far - my tummy is still really swollen although not as much as before. I'm finding the peg quite uncomfortable but hopefully I will get used to it. All of the doctors commented on how unusual it was for the peg procedure to fail so I have been really unlucky. Radiotherapy is scheduled to start on Monday, my mask was made last week and my verification is on Friday. Chemotherapy is now delayed by a week due to the tummy problems as it all needs to settle down a bit first so looks like I'll be having chemo on Christmas Day! Oh well.

I hope all is well with everyone else. I'll let you know how I go with radiotherapy next week.

Nicola

Just sending Virtual hugs Niccola, look forward to hearing of your progress.

Best wishes

Annabel. xx

Goodness me, what a dreadful time you've been through! I can only offer you my sympathy and total respect for coping with a truly horrible illness.

It amazes me how resilient you all are.

I had a PEG fitted reluctantly as I was struggling with out food and supplements , I'd been admitted to hospital twice as I was dehydrated and sick, I felt very sorry for my self and was worrying everyone. My PEG was inserted - a totally unpleasant experience! But by the morning it had fallen out? That was it for me, I vowed never to have it again! I forced the horrible supplements down which was very difficult with a mouthful of holy, horrendous ulcers! Slowly but surely I began to improve.

You are an amazing person who will get through this, I know these things!

Please contact me any time.

Victoria

Ps I year post radiation for base of tongue and throat cancer.