Refusing chemo

After a successful removal of a bowel tumour 12 months ago, I had one dose of oxitaliplatin with 5FU. I was so ill, physically and mentally that I had to stop and I have refused any more chemo. If I have a shorter life, so be it. Now I have secondary peritoneal cancer and there's nothing to be done. I wonder if there are other people in this position? I don't regret my decision one bit. I'd love to hear from others. Am I brave or foolish? Mary

Parents
  • Hi Mary.

    I'm not in a position to answer as to brave or foolish in your decision. I'm a carer rather than someone who has experienced cancer.

    I've seen my wife through awful investigation treatments, two operations and a round of chemotherapy. The doctors describe her as "cured" but they actually mean "in remission"

    I'm pleased for her. I'm pleased for myself. If the circumstances were reversed and I had to face what she's been through ....I wouldn't. It's stronger than that, I couldn't.

    Janet was very brave to go through what she went through. I couldn't be that brave.

    I think you are very brave to face what is likely to happen to you.I see it as not at all foolish.

    It is, of course, your choice. Anybody who has to face cancer is brave whether they want to be or not. Any choice made by somebody with cancer is a brave choice.

    I hope you will be given palliative care  to make your own brave choice less unbearable.

    Russ

  • I've come off the oxi stuff after 5 infusions - still on herceptin & xeloda (5fu). Left me with numb fingers & feet ... and up to an additional 6 months - just about worth it but wouldn't have wanted any stronger side effects (incuded arthitis scares, severe sensitivity to cold etc). I couldn'tbe critical of anybody refusing.  Hope you find some other treatment to try .. I've gone vegan & juicing to help cope with the chemo (it's been a great help) and would up the ante even more in that direction if I stopped chemo.

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  • I've come off the oxi stuff after 5 infusions - still on herceptin & xeloda (5fu). Left me with numb fingers & feet ... and up to an additional 6 months - just about worth it but wouldn't have wanted any stronger side effects (incuded arthitis scares, severe sensitivity to cold etc). I couldn'tbe critical of anybody refusing.  Hope you find some other treatment to try .. I've gone vegan & juicing to help cope with the chemo (it's been a great help) and would up the ante even more in that direction if I stopped chemo.

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