Hi there
I experienced my first seizure at the weekend, four weeks after finishing my radiotherapy (33 high dose sessions) and four months after having the operation to remove all of the tumor. Up until now i have felt ok after all my treatment and have just got back into the swing of normal life and so this came completly out of the blue. I had spoken to 3 people over the last few months that had initially presented with seizures but none that had continued to have them after their op etc (in fairness they were probably on medication at that point anyway). When i got to hospital my MRI was clear and they felt that this was all probably down to either my brain settling down after the radiotherapy or down to scar tissue as a result of the operation. Because my tumor was over the 'motor' region of my brain, it made sense that my seizure started in my right foot (tapping) and then travelled up the right side of my body including my neck and face. It was the scariest thing that i have ever experienced as i was totally aware of what was happening but just didnt know why. The scariest part was not being able to talk and thinking it was never going to end. My husband was with me and said that although i wasn't thrashing around, all my muscles tensed up and i went rigid. I have been put on a drug called Epilim (low dose) and have to see how things go. It's possible this is just a phase that my brain is going through but only time will tell.
I would just be interested to know if anyone else has gone through a similar experience or has any advice?
