I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2 chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..
Hello everybody. I got back home last night and ploughed through a mountain of washing. Oh for a nice sunny day. Had to dry indoors.
Been for my 5th chemo today and have not had the paclitaxol as my fingers were getting affected with neuropathy. Probably have a reduced dose on my 6th one on 25th August. I am hoping the aches stay away this time as it is probably the taxol which causes them. Time will tell. Anyway we are going back to the Dales to the caravan tomorrow - got to do my ironing first ugh.....
I have read through the posts and was very upset to hear your news Dot and Jayne. Hang on in there. I met a lady with inoperable lung cancer given 18months and that was in 2004. So there is HOPE....
That was really good news Becky so pleased for you.
The nearer I get to my last chemo I am getting apprehensive about scan. Anyway what will be will be. I cant do anything about it.
Hope you are feeling better Eilleen.
Also thinking of you Jackie and Rose.
Hope I haven't forgotten anybody. I have continued to think and pray for you all whilst away.
Take care everyone, keep positive and strong.. Will be back 24th August unless the rains dont go away in which case we will be back sooner. Cant believe we still have a hose pipe ban and they have closed one of the canal links because of lack of water. Obviously wrong kind of rain falling in the wrong place.........
Jayne- hope the chemo improves you and you are one of the lucky ones and can tolerate it well despite not really being 'fit' enough. My experience (both times) is that it works quickly and as I am assuming its your bowel causing the problems I will pray that it attacks that one first! I understand that you don't want to put others through this but they also don't want to see you go through it, I think a happy medium is you accept the treatment your happy with and withdraw once your not. Provided you family understand you reasoning they will support you however its got to be about you because (in my experience with relatives) they have trouble excepting the person they love declining treatment because you don't want to put them through something (they want to prove they will put up with anything for you cos they love you as much as you do them, hope that makes sense).
Eileen - how did the blood results go or do you have to wait till next week for the results? Well done in staying out of hospital OK you spent a long time in bed but at least it was your own!!!
Hilary - This time round I've been given Doxil instead of Taxol and have had NO problems with hands or feet, so I think your right however (for me) the effects of the Taxol took a long time to wear off, in fact my left foot is still a bit weird! Have fun in the caravan and fingers crossed its neither to wet or too dry!!!!!!!
Dot - hope things are 'normalising' for you. Glad the meditation works for you. Have you felt any positive effects from the chemo?
Second dose of chemo tom, bloods all normal so no excuses, hair on the way out but happy to shave when it starts annoying me!
None of us will pass through this journey unchanged, all of us have fears about treatments and the future, not all of us will make it (sorry ) but we have each other for support, through good, bad and B++++++ awful times and in my eyes its the least we can do for each other because we understand and its also invaluable to all of us.
Obviously having an odd moment sorry !!!!!!!!!!!!!!!!!!!!
Keep fighting it ladies its the only way
Love and Hugs
Jackie xxxxxxxxxxxx
Message was edited by: Plaxie forgot the spell check and reading my previous posts its desperately needed!
Hi all you lovely ladies,I wont name you in case I miss someone,
Just wanted to share my good news .As you know i have been out of sorts with the trial drug,really breathless and wiped out.I had thyroid tabs as this treatment affects the thyroid .Had my ct scan Monday and the nurse rang today and all the tumours in my neck and chest have shrunk.The smallest are too small now to measure.So dont ever give up girls,things are changing all the time and new things being found daily.I will never be free of this but any good news is fab.
Hope you are all coping with your chemos and rads.So much suffering because of this horrid thing but always hope :love:
I am still feeling strong in thought and in body, my hair started to fall out yesterday, I thought it might upset me but I am fine, I guess I have come to terms with all of this and I still intend to deal day by day, I am putting it out to the universe lol.
Jayne you are constantly in my thoughts!!
Rose I am so pleased for you, your words give hope to all, we must never give up.
Hilary and Jackie, hi glad to see both your posts, hopefully any side effects of chemo will be minimal.
Eileen it will be good to hear from you and hope any results are positive.
Dot if you can avoid washing, brushing hair you can keep it till just after the 2nd dose on the other hand if you start eating it its time to get rid of it! I've still got mine and as I cut it really short I'm not eating it yet but either way it will be gone by Sunday evening! 2nd dose today, went well. A friend (chemo specialist) told me to wear a glove prior to cannula, so I 'acquired' a plastic glove and put it on for about half an hour, took it off for the hot water and I've never had such promemient veins, they got it first time! neat little trick which none of the other nurses knew about! Got the horrible Thrush back again so saw Dr and have another week of Fluconizole and then go onto a maintaince doses mon, wed, and Fri. Very tired today due to only 2 hours sleep last night all caused by Dex 16mgs and Pred 17, at least some of the 'high' should be dampened by the chemo so fingers crossed for tonight.
Glad your still feeling strong Dot, still thing thats the main key
Hi Jackie,Dot,EileenJayne and where are you Becky?Long time no hear !!
Hope you are all coping with the side effects and managing to have a good weekend.Have you still got any hair Jackie? Good tip about the glove.
Dizzie has started a blog site where we can follow each others journey if anyone wants to add to it.It is theraputic writing things down and handy if you forget when things happened.I am useless on the computer but even I did it !! It is under other discussions
Hope you are OK Eileen,I was hoping you would escape the horrible side effects.Jayne I hope things are better for you .You certainly deserve a break.Dot how are you my flower?Any more appts lined up ?
Jackie I couldn't bear the hair coming out so I cut it all off lol and my daughter shaved it to neaten it up, I feel much better, my little four year old grand-daughter kept asking me to put my wig on, but my scalp is sensitive so I declined lol, she will get used to it eventually, everyone else seemed to accept it, I thought I would want to hide but I am fine, in fact I like it as long as I put make up on which I only used to use if I went out lol. My next chemo is on Friday 13th, good job I am not superstitious lol.
Good tip with the glove, I haven't had problems with any of my veins until it came to the chemo, they used the warm water trick and got it straight away. Sorry to hear about the thrush, hopefully it will clear up quickly.
I loved your blog, I wrote a lovely long post but I couldn't post it as I don't have a blog, at least I think that is why lol.
You are an amazing lady Rose, I was tearful reading it, your journey hasn't been an easy one, yet you are always strong and helpful to everyone on this site, you have always been able to make me feel better with your kind and thoughtful words.
It was lovely to see the photo of you and your beautiful grandchildren. I am so glad I got to read it
