HI ALL - Well, I had my scan yesterday and I AM IN REMISSION!!! Now, I of course am THRILLED and am sure you are ALL happy for me, however I have had a hard time posting this with the bad news...BUT, then I said to myself - If I can just let them know there is HOPE!!!! AND THERE IS - I am keeping it short as there is not more for me to say...Docotr every 3 months, my port flushed every 6 weeks - I asked for a blood test in six weeks, when port is flushed, and my nurse is more than happy to do so...that way I have a clue of where my #'s are as well as if anything is "off" - I will know then - I will still be here to offfer my prayers, my thoughts, my aches and pains, and best wishes for ALL of you....XXXXXXXOOOOOOOO - Becky

Ata girl Becky.That is such great news and dont ever feel as if you cannot tell good news.This is what keeps us focussed :love:

Get the wine in and have a fab weekend,you deserve it !!

Rose xxxx

Hi everyone,

no posts from anyone, hope you are all hanging in there. I am feeling good, going to Kent today to visit my daughter and grandkids who are camping there.

My prayers are with you all

Eileen hope you are still at home and coping with the chemo.

much love Dot xxxxxxx

Hi All

Apologies for not posting, Dot you are doing so well, seem to have really got your act together, hope you enjoy your day out! Eileen fingers crossed your stil at home and gradually feeling better. Becky what can I say, thats the best news ever, the system in america is very different and unfortunately for us, appears to give better outcomes but hey thats the way it goes and here hoping positivity is catching!

I've been really well with this lot of chemo (sorry Eileen!), bit tired but it soon passes. Went to my retirement do on Friday, had a great time and even managed to dance (stuck to kiddie partners!!!

Can't believe its chemo time again on Fri! Noticed hair starting to come out in brush this morning, would like it to hold tight till Fri but not bothered if it don't :) .

Hosp for blood test tom, interesting to see what white cells are up to as chemo cannula site looks infected! Do wish I could have a 'port' (long line) like Becky but with my clotting its probably not a great idea, ah well can't grumble.

Hope to hear from you soon Eileen and I hope Jayne is OK, again quite a while without posting so fingers tightly crossed for her.

Love to all

Jackie xxxx

Hi Dot

Hope your enjoying yourself in Kent with your daughter and grandchildren!

Still thinking of you. Don't know how long your gone for but will keep the thread active till you return!!!

Hi Jayne

Thinking of you to and waiting for news!

Love to all

Jackie xxxx

Hi Jackie

Im ok thanks. I havent posted anything on this site recently as I just wanted to wait until I had something positive to say. However, I am now inoperable and they are hoping to start me on a low dose of chemo on thurs. I haver had many complications this past week and have been in hospital all the time.

Love to you and everyone

Jayne x x x x x x x x

Hi Jayne

Nice to hear from you even if the news wasn't welcome. Hopefully the chemo will help your symptoms, when are they talking of letting you home? or does that depend on your symptoms responding?

Take and stay positive though it must be neigh on impossible. Will be thinking of you espicially on Thurs

Take care and all the best

Jackie xxxx

Hi Jayne

Sorry that you are still in hospital.You really are having a terrible time.I hope it is a good hospital and that they are looking after you.Sending you a big hug and loads of good wishes.Hope things improve soon ;)

Rose xxx

Hi Jayne,

sorry to hear you are still in hospital and having such a rough time of it, my thoughts are with you. As Jackie says, try and stay positive and I know how hard that can be. Please post if you need to talk, even if you haven't heard anything new. Big hugs xx

Jackie I only went for the day, I really enjoyed watching the kids having a good time. I have been doing meditations and found them very soothing, I normally can't keep my mind still but they have helped a lot.

Rose great to see you post hope you are doing good.

I am concerned about Eileen, haven't heard from her in a few days, I know she was worried about going back into hospital, hopefully she is just taking it easy.

Hi to anyone I have missed.

Lots of love to all Dot xxxxxxx

Jackie & Rose

Not sure when I will be allowed to go home. Yes it depends on the chemo. But Im not really fit enough for chemo but its the only option. My children are all in their 20's and I hate to put them thru all of this. They are my precious little babies. I have one grandaughter who will soon be 3 and another one due in end of sept. I have set up a sweepstake to guess the sex, date of birth and weight of the baby and all proceeds are going to Cancer Research. Its got off to a cracking start. xx

Jackie & Rose

Not sure when I will be allowed to go home. Yes it depends on the chemo. But Im not really fit enough for chemo but its the only option. My children are all in their 20's and I hate to put them thru all of this. They are my precious little babies. I have one grandaughter who will soon be 3 and another one due in end of sept. I have set up a sweepstake to guess the sex, date of birth and weight of the baby and all proceeds are going to Cancer Research. Its got off to a cracking start. xx

Hi Ladies

Jayne- hope the chemo improves you and you are one of the lucky ones and can tolerate it well despite not really being 'fit' enough. My experience (both times) is that it works quickly and as I am assuming its your bowel causing the problems I will pray that it attacks that one first! I understand that you don't want to put others through this but they also don't want to see you go through it, I think a happy medium is you accept the treatment your happy with and withdraw once your not. Provided you family understand you reasoning they will support you however its got to be about you because (in my experience with relatives) they have trouble excepting the person they love declining treatment because you don't want to put them through something (they want to prove they will put up with anything for you cos they love you as much as you do them, hope that makes sense).

Eileen - how did the blood results go or do you have to wait till next week for the results? Well done in staying out of hospital OK you spent a long time in bed but at least it was your own!!!

Hilary - This time round I've been given Doxil instead of Taxol and have had NO problems with hands or feet, so I think your right however (for me) the effects of the Taxol took a long time to wear off, in fact my left foot is still a bit weird! Have fun in the caravan and fingers crossed its neither to wet or too dry!!!!!!!

Dot - hope things are 'normalising' for you. Glad the meditation works for you. Have you felt any positive effects from the chemo?

Second dose of chemo tom, bloods all normal so no excuses, hair on the way out but happy to shave when it starts annoying me!

None of us will pass through this journey unchanged, all of us have fears about treatments and the future, not all of us will make it (sorry ) but we have each other for support, through good, bad and B++++++ awful times and in my eyes its the least we can do for each other because we understand and its also invaluable to all of us.

Obviously having an odd moment sorry !!!!!!!!!!!!!!!!!!!!

Keep fighting it ladies its the only way

Love and Hugs

Jackie xxxxxxxxxxxx

Message was edited by: Plaxie forgot the spell check and reading my previous posts its desperately needed!

Hi all you lovely ladies,I wont name you in case I miss someone,

Just wanted to share my good news .As you know i have been out of sorts with the trial drug,really breathless and wiped out.I had thyroid tabs as this treatment affects the thyroid .Had my ct scan Monday and the nurse rang today and all the tumours in my neck and chest have shrunk.The smallest are too small now to measure.So dont ever give up girls,things are changing all the time and new things being found daily.I will never be free of this but any good news is fab.

Hope you are all coping with your chemos and rads.So much suffering because of this horrid thing but always hope :love:

Love to you all

Rose xxxxxxxxxxxxx

Hi all,

I am still feeling strong in thought and in body, my hair started to fall out yesterday, I thought it might upset me but I am fine, I guess I have come to terms with all of this and I still intend to deal day by day, I am putting it out to the universe lol.

Jayne you are constantly in my thoughts!!

Rose I am so pleased for you, your words give hope to all, we must never give up.

Hilary and Jackie, hi glad to see both your posts, hopefully any side effects of chemo will be minimal.

Eileen it will be good to hear from you and hope any results are positive.

Love to all xxxxxxxxx

Hi Ladies

Great news Rose so pleased for you.

Dot if you can avoid washing, brushing hair you can keep it till just after the 2nd dose on the other hand if you start eating it its time to get rid of it! I've still got mine and as I cut it really short I'm not eating it yet but either way it will be gone by Sunday evening! 2nd dose today, went well. A friend (chemo specialist) told me to wear a glove prior to cannula, so I 'acquired' a plastic glove and put it on for about half an hour, took it off for the hot water and I've never had such promemient veins, they got it first time! neat little trick which none of the other nurses knew about! Got the horrible Thrush back again so saw Dr and have another week of Fluconizole and then go onto a maintaince doses mon, wed, and Fri. Very tired today due to only 2 hours sleep last night all caused by Dex 16mgs and Pred 17, at least some of the 'high' should be dampened by the chemo so fingers crossed for tonight.

Glad your still feeling strong Dot, still thing thats the main key

Take care

Jackie xxxx

Hi Jackie,Dot,EileenJayne and where are you Becky?Long time no hear !!

Hope you are all coping with the side effects and managing to have a good weekend.Have you still got any hair Jackie? Good tip about the glove.

Dizzie has started a blog site where we can follow each others journey if anyone wants to add to it.It is theraputic writing things down and handy if you forget when things happened.I am useless on the computer but even I did it !! It is under other discussions

Hope you are OK Eileen,I was hoping you would escape the horrible side effects.Jayne I hope things are better for you .You certainly deserve a break.Dot how are you my flower?Any more appts lined up ?

Best wishes and loads of hugs to you all

Rose xxx

Hi all,

Jackie I couldn't bear the hair coming out so I cut it all off lol and my daughter shaved it to neaten it up, I feel much better, my little four year old grand-daughter kept asking me to put my wig on, but my scalp is sensitive so I declined lol, she will get used to it eventually, everyone else seemed to accept it, I thought I would want to hide but I am fine, in fact I like it as long as I put make up on which I only used to use if I went out lol. My next chemo is on Friday 13th, good job I am not superstitious lol.

Good tip with the glove, I haven't had problems with any of my veins until it came to the chemo, they used the warm water trick and got it straight away. Sorry to hear about the thrush, hopefully it will clear up quickly.

Dot xxxxxx

Hi Rose,

two of my friends call me flower, so it was lovely that you used it too, hmmm wondering what type of flower I am lol.

Thanks for the note about Dizzie I will check it out, it does sound interesting.

Hope you are still feeling good.

Dot xxxxx

Oh Rose,

I loved your blog, I wrote a lovely long post but I couldn't post it as I don't have a blog, at least I think that is why lol.

You are an amazing lady Rose, I was tearful reading it, your journey hasn't been an easy one, yet you are always strong and helpful to everyone on this site, you have always been able to make me feel better with your kind and thoughtful words.

It was lovely to see the photo of you and your beautiful grandchildren. I am so glad I got to read it

Love Dot xxxxx

Jackie have you heard from Eileen?

I am hoping she is ok

Dot xx

Hi Dot,

And Ladies of course. I am ok now thanks but I am phoning the Hospital later to cancel my 6th and last chemo as I can't take anymore of it. I was thinking the other day that at first they said I would have 3 chemo then op then another 3 but as I have not had the op they have not given me break, so its been 5 months of hard chemo without a break. Unless they say that it can be reduced then I am not changing my mind. Everyone keeps saying just have the last one and its over with but that's easy to say, and its not over with. Its the begining of the nightmare of feeling so ill for 2 weeks.

I am glad Dot you are happy with your hair or not as the case may be. Its a great feeling I think having no hair and so easy to get ready. You will have to take a pic of it and change your profile. Everywhere I look these days there are celebs on the cover of mags and papers with bald women. And they all look amazing. Do you think we have set a new trend ???

I am still awaiting the birth of my grandchild who was due yesterday but nothing doing. I already Twin Grandchildren Benen & Patrick who will be 9 later this month so its a busy month. I am hoping to be able to go to Manchester to see them all but the way I am feeling I am not ready to go yet.

Anyway I look forward to hearing from you all. Hope your ok Jackie and not feeling to bad after your chemo.

Love as Always Eileen. xxxxxxxxxx