I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2 chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..
Not a good start, boarded the plane and was told there will be a 1.5 hour delay due to Portuguese air traffic control action! Hence I have switched my smartphone back on. Due to take off at 8:10 now, not sure why they made us board knowing this. Oh well never mind, not long now.
How did the new anti sickness measures work out in the end?
Hope you've arrived safely by now and can get messages!
Enjoy yourselves, anyway, hope it's sunny!
New anti-emetics only marginally better, in that nausea just as bad, just no actual vomiting, and whole thing lasted one day less! Still, guess I have to be grateful for small mercies!
Hi everyone have not been in touch for quite a while not since I had my radiotherapy last October.Well I was pleased with the results even though the side affects were worse than I expected.Felt really well for a while once I got over them but by Feb the lymph glands were up in my left groin!! Not charmed with that.Have been ticking over since but have other problems now won't go into them suffice it to say it seems to be spreading downwards.See my oncologist Monday she rang me and said they may do some more radiotherapy and I can try another chemo.Hey ho here we go again!!!.Dont know what I will decide one good thing is she always gives me (and everyone else )the choices in writing so you can go home and think about it and consider side affects etc also every patient has a personal oncology nurse you can ring between appts if you have any queries hope everyone is ok I will keep in touch and let you know how I get on. Maisie x x x
Hi hazel as I expected I have a choice radiotherapy or more chemo have opted for chemo as I can have localised R T later if the chemo doesnt deal with the vaginal cancer .Problem is I have to choose between having just carboplatin on its own or carbo and /taxol.I didn't have the two beforehand kept my hair as I did with calyx.Dont know if it will be worth losing it and having worse side effects. I am trying to find some statistics about results and if the two drug combination is any more successful than the one but I am not having much luck!!!! Thank you for your kind thoughts Maisie x
Just got back from the Algarve, the weather wasn't great but it was a nice break and we were forunate to be given one of the best hotel rooms with a panoramic sea view! Mary was absolutely fine while we were away, thank goodness! Starting cycle 4 after clinic on Thursday.
Sorry to hear there's not much improvement with the nausea - I guess the wrist bands didn't help either? How did the scan go? (I am guessing it was a CT) Did you get the results?
Welcome back, and sorry to hear of your continued troubles.
I believe that Carbo/Taxol is the first line treatment for ovarian cancer, but not to say it is best for everyone as people may respond better to other treatments. Mary had a Japanese dose-dense regimen of carbo/taxol (first time around) which worked well in trials. Mary got about 8 month out of it but unfortunately had a recurrence in January, so is back on chemo, this time Gem/Carbo. You may want to read my thread about it by clicking this link >>>> http://cancerchat.cancerresearchuk.org/message/28186#28186 and maybe discuss the option with your onc.
Main side effects of Taxol for Mary were hair loss and some neuropathy (some of which has remained in her toes).
