Hi ladies

I just want to wish you all a Happy and as Healthy a New Year as possible - bring on 2012.

Its good to drop in and see what others are up to - scan and more treatment (fingers crossed!) in January for me.

Best wishes

Sue x

Hello everybody, may I join you and introduce myself?  I opened a new thread on this subject the other day in the "introduce yourself" section, but I really wanted to get onto this site.  I  am 67 yo and live in Essex, UK and have recently been diagnosed as having tumours on both ovaries, plus some areas on the omentum and outer bowel.  However, my hospital MDT  wants to ascertain whether my ovaries are the primary site or secondary to breast ca I had 15 years ago before planning my treatment, so I've just had a biopsy and await results on 22nd Feb.  I found your site about a month ago and was both heartened by all your posts, and at the same time scared - not of the treatment particularly but the outcome.  Some days I feel that I won't get through this, other days I think "No, you won't get me, you (expletive deleted!)"

The last post on your site was 28th Dec, I have been checking, so I hope you are all getting along OK

Best wishes, Hazel. X

Hello, John,

Thanks for your vote of confidence - had another today from my next door neighbours while I was gardening -  they said the wig looked nice and that they wouldn't say anything if they thought otherwise.  So all that has bucked me up!

I bought it in a shop in the Vicarage Fields arcade in Barking, not far from me - it's really a shop aimed at black girls - they do love their wigs and hairpieces -  but there were a few lighter coloured styles to choose from as well.  I still can't believe my luck with the price!

I see Mary has started to get itchy fingers re. the gardening, but she beat me to it - she did some last week didn't she?  Afraid I was a bit incapacitated!  I will have to get a few plants soon as well for pots and hanging basket.

Hope you have another nice weekend, is it really a week since you said you were going to the ball?

Love to you both,

Hazel xxx

Hi Hazel,

So pleased to hear you are feeling good at the moment and got some gardening done, hope it lasts. Yes, Mary does like her garden too and she was out again today pottering. I'm not into gardening myself but I do like to see the garden looking nice, and I don't mind doing the donkey work to help her. Yes she did make a start last Sunday and got me mowing the lawn and strimming etc. We went out for a steak meal tonight, just trying to take advantage when Mary feels well enough to do stuff.

Did you have your treatment yesterday? I thought you went on Thursdays or was it your week off? Is it Carbo/Taxol you're having?

Mary has started taking her anti-sickness tabs (Metoclopramide) three times a day, It's difficult to tell if it's this that is making her feel better as it's all subjective, maybe it's just the chemo doing it's work (there's one almighty battle going on I guess).

Hope the rest of the ladies are doing ok,

Best wishes to everyone,

John

x

Hi John,

No, no chemo this week, thank goodness, I am on the basic three weekly treatment of TaxolCarbo at the moment, as it's my first time for ovarian ca - next one is on 29th.  I think they start almost everyone off with that one, as far as I can gather from reading all the stories on here. The plan is 3 chemos at three weekly intervals, then CT, then if tumours have shrunk enough a hysterectomy, then 3 more chemos every three weeks again to "mop up".  I couldn't have the hysterectomy first unfortunately (got that to look forward to) as my tumours are attached to the bowel as well and I would probably have needed a colostomy - not that that would have bothered me, as an ex-auxiliary nurse I've seen and dealt with a few of those in my time - but the decision was made to do it this way.  I'm hoping it does all go to plan, but we all know what Robbie Burns said about plans!

Hope Mary enjoyed pottering in the garden - it's very therapeutic, you know - I find that while I'm gardening I'm not thinking about anything else, just concentrating on what I'm doing.  I've always thought that, but even more so now.  (It was a bit nippy today, but the old "syrup" kept me warm!)

Love to both,

Hazel xxx

Eileen,

Hope you are home and reasonably OK after treatment.  Thinking of you all the time.

Lots of love,

Hazel xxx

Hi All

Nice to see that everyone is keeping their spirits up whatever they are going through, and some of it sounds pretty unpleasant!

Neutraphylls were up to 2.1 so just had 2nd chemo this week - Carbo/Gem - not had the best few days but think I'm coming round now, just wish I could get out in the garden while the sun is shining but everything feels such an effort! Ah well there'll be other weekends I guess.

Love to you all Sue x x x

Hi Everyone Happy mothers day to all you lovely moms out there

take care sharon xxx

Hello, Sue,

Course there'll be other weekends, and lots of them, God willing!

Hope you'll feel better soon, nothing lasts forever - though I must admit I was beginning to wonder myself last week when I felt bad!

Chin up,

love Hazel xxx

Message was edited by: haze44

Hi Sue,

I feel the same wanting to get out in the sun, at least we can see it shining through the window. I hope you start to book up a bit in next few days.

My bowels are back to normal ( well as normal as they can be ) I have slept really good for 2 nights now which makes such a difference. I am still a bit nausea's but nothing like I was. I have a 2 week break now from my chemo and then another 3 to go.

Good  your nuetrophyls are up. mine have been ok up  to now ...

Love to everyone.

Eileen xxxxx

Hi Hazel,

Yes I am feeling good ( dare I say )  I do think my bowels had a lot to do with me feeling so bad.

I am still in my pjs all day but I have been down all yest to watch the football. I have been sleeping really good as well...

Happy Mothers Day to all you mums and I hope you all have a lovely day.

Eileen xxxxxxxxx

Hi everyone,

it is great to see everyone so positive even through their struggles.

I got myself into a pickle......I had a little dry patch on my calf, I scratched it trying to see what it was and thought no more about it, a wart appeared (yes on my leg) how the heck that happened I have no idea, anyway it was inflamed and was painful, waited a while then saw the Doc, as most of you know I have lymphoedema following the removal of my lymph glands (this doesn't happen to everyone by the way) I was told to be careful to not break the skin as once there is an infection it is difficult to control.........as you can guess it is infected lol I am on antibiotics and Doc said if it didn't clear up I had to go back as I could get Cellulitis, so I am sitting with fingers crossed.

This isn't a whinge, just thought I would update you all.

On a lighter note, I take it you all had the vertical cut for your hysterectomy, now this is a whinge,  they stitched my belly button back wrong hahaha, I am now lopsided, when I saw the hospital doc I joked around with him and told him I wanted a tummy tuck lol, I have put on a lot of weight which I hate and my belly swells up and down, no chance I will ever wear a bikini again hahahahahah.

Hi everyone,

it is great to see everyone so positive even through their struggles.

I got myself into a pickle......I had a little dry patch on my calf, I scratched it trying to see what it was and thought no more about it, a wart appeared (yes on my leg) how the heck that happened I have no idea, anyway it was inflamed and was painful, waited a while then saw the Doc, as most of you know I have lymphoedema following the removal of my lymph glands (this doesn't happen to everyone by the way) I was told to be careful to not break the skin as once there is an infection it is difficult to control.........as you can guess it is infected lol I am on antibiotics and Doc said if it didn't clear up I had to go back as I could get Cellulitis, so I am sitting with fingers crossed.

This isn't a whinge, just thought I would update you all.

On a lighter note, I take it you all had the vertical cut for your hysterectomy, now this is a whinge,  they stitched my belly button back wrong hahaha, I am now lopsided, when I saw the hospital doc I joked around with him and told him I wanted a tummy tuck lol, I have put on a lot of weight which I hate and my belly swells up and down, no chance I will ever wear a bikini again hahahahahah.

Oh dear, Dot,  what ARE we going to do with you, eh? Here we all are thinking you're OK, and now what do you do?!

Seriously though, please be careful, never mind about the bikini!   (Do you know, I've never worn one, always too plumpish, and now I'm skinny for a change I'm too blooming wrinkly and saggy!  Can't win!   Not that I really want to at my age, prob scare everyone off the beach!)

Take care, Dot,

Love Hazel xxx

PS. I haven't even had my hysterectomy yet, so I'll make sure I give them instructions to sew me up neatly!

xxx

Hi Dot ,

That is funny about your belly button. I couldn't get into mine after the hysterectomy so I couldn't clean it. Anyway since my tummy started to swell it opened like a flower ha ha so I now have a clean one.

Hazel so now you know what instructions to tell the surgeon..

Dot that sounds painful and I hope you can get it sorted out soon. Always something new to worry about.

Love Eileen xxxx

...was it something I said? Hope everyone is ok.

Oh, poor John - don't be daft, of course not.  Don't know why but we all seem to be resting at once, for some reason.

Hope Mary is OK and pre-assessment goes well today.  Wish her good luck for tomorrow, sounds like a busy one!

Love to both,

Hazel xxx

Hi,

I am feeling nausea's again and am taking  6 anti-sickness tablets a day. I can't say I wait to take them but as soon as I lift my head off the pillow in morning I need one. I am eating even though I feel sick. I keep trying to watch tv in the evening but can't settle. I am in touch with a girl who is on same chemo ( she has finished her 6 cycles ) she has been desperately sick and no signs of it clearing. I still have 3 to go and god knows how I will get through it.

Hope everyone is doing good.

Eileen xxxxx

Hi everyone, I know I am not writing much but I do try to read the posts, I sometimes just don't know what to say.

Eileen I feel so much for you having this nausea it is an awful thing to have to tolerate, I just hope it will settle soon and you can have some peace.

I wanted to say that I feel very sad that Carole (Dizzie) passed away, she fought hard and long, I have been following her blog along with Tony and our dear Rose, my thoughts go out to her lovely family, Carole helped a lot of people on this site and was much loved. This made me think of Jayne and her lovely family too. I have to say I avoided checking her blog and the main site this week as I didn't want to read what I knew I would find.

Thinking of you all

Dot xxxxxxxxxxx

Just kidding Hazel although my post was quite long looking back, thought it may have made everyone sleepy. Pre-assessment done and ok, we have an 8.30 start tomorrow, onc, port and chemo, all day job! Mary still feeling good.

Best wishes,

John

Dear Dot,

I didn't know any of the people you mention, though I have read bits of their stories on here and elsewhere, and I would just like to send my condolences and sympathy to all their families and friends. 

God bless and love to them all, and to you, Dot.

Hazel xxx

Hi Eileen,

Ask your doctor if you can try some different anti-sickness tabs, worked for Mary.

John

x

Hi John,

These are the new ones. It is the cistplaten that makes you sicker than the other chemo's..

xxxx