I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2 chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..
thanks for your good wishes Dot, Eileen has told me a bit about the treatment. I have problems with Lymphoedema too - in my left arm, it developed after breast cancer about 15 years ago. It's quite stable now and I gave up with the sleeves long ago as they didn't seem to help me but hope they work for you. Sue
God that's all you need your mum being poorly as well, I hope she is ok.
Great news about you not having to go back until Feb. At least hopefully if your mum is alright you can have a nice Christmas. We never seem to get long, I remember Dot saying she didn't have to go back til Dec and here we are already in it. I hope next year we get at least a 12 month break before it rears it's ugly head. I don't know about you ladies but it gives me so much comfort knowing I have all of you out there.
I am dreading next Thursday as I get my scan results and while I am sitting waiting in that very lonely place, I think of all of you. My hospital is a cancer hospital only in Manchester ( I am sure you know which one ) anyway even though I know we are all in the same boat it gives me more comfort thinking about you lot.
Well Sharon and ladies take care and will let you know next week...
Try and take it easy about your mum ( easier said I know ) but stress is not good for you...
I am not sure about the Gem/Carbo as I thought Carbo/Taxol was hard but I don't know if it's because I had not had chance for my body to get over the last chemo but my bloods are continually low and I have to inject myself for 5 days after with filgrastim.. I expect it will be the gem what they put you on as it's for ovarian cancer.
You don't get the aching legs or neuropathy with this one or lose your hair but It does upset my bowel. I like Dot have IBS though so I think with anything that is weak in your body it will affect.
The main thing Sue is whatever they offer you is a bonus and I would have it ( even though I feel most days so ill ) Let me know how you get on anyway and any other questions please ask.. Oh after the one that you only have the half hour gem you don't have to go home with any steroids so it is easier and then you have the free week before your double bag..
Thanks Eileen for that info. I too am at a cancer hospital in Manchester (i'm sure you know which one) so we may even be in that big waiting room together on some appts! You are right, whatever they offer I will take willingly if it gives me half a chance but its the unknown again. With the Carbo/Taxol you knew what to expect - you had a dip then picked up again, but with Gem/Carbo is it the same or does it dip after the second dose too?
Only time will tell and I guess I'll find out soon enough, just have to wait for the scan in the New Year. Did you get offered the ICON 6 trial? I've been on that so far but think they'll take me off it now. Hope you are keeping OK ( I won't say well!). Good luck with your scan results. Sue x
I am sorry to hear that your Mum isn't well, the stress must be awful for you. Fortunately you have good news about yourself and have a breather until February.
Try to take time out for yourself, which is hard when you have a poorly Mum, just wanted you to know I am thinking of you.
Hi everyone hope you are still coping sorry I have not been in contact for awhile life is just so busy and I try to keep things as normal as I can and enjoy my little ones that's what it is all about for me now.We have a 7th great grandchild due in march our second girl looking foreward to that. I am considering my self very lucky at the moment the radiotherapy has been the only treatment that has really worked for me in the five and a half years I,ve had this cancer.Its unbelievable how much it has shrunk, as I said before it was like a hard cannon ball in my abdomen and now I can hardly feel it and and every thing is soft again ,plus the bleeding has stopped and I am not getting any pain at all.WOW,It's still there I know that but I feel more positive it has bought me a lot more time.Still get very tired but I can deal with that. Love to everyone take care Maisie x x x .
got the all clear for another 3 months, I mentioned not feeling well and I was thoroughly checked over, could be the time of year getting to me, it was my birthday on the 5th and Hospital on the 6th and all I could think of was that I didn't want to have to tell my family anything negative at the moment.........I didn't so all is good!!
I lost 2lbs lol... got weighed at the Lymphoedema Clinic, I have lost 200ml of fluid off left leg and similar on the right, but the left is still bigger, hopefully I will keep losing it don't want to be lopsided forever hahahaha.
My thoughts are with you all, haven't heard from Jackie, hoping she is busy with her renovations, Eileen I hope you are coping well, Sharon and everyone else hugsssssssss
Hope Eileens doing better on this round of chemo, sorry have not replied but still have builders 8-4 mon to Fri and watching them is so tiring lol, I'm sure it will be worth it when its done but in the meantime its a massive disruption though its easier now its starting to take shape
Health wise I'm doing ok, still having lots of skins problems from rash to itch to ulcers! have reluctantly increased the steroids to 20mg but now everything tastes horrible so they are decreasing from today lol. saw the dermatologist and he's started me on an anti malarial drug! apparently its effective in controlling the skin problems and dosn't prevent me being given chemo when i need it, so fingers crossed it works. Am determined no chemo till all house finished which will be feb at the earliest, so far so good but my legs are slowly going downhill and I need my non-bath shower real soon lol
I know I've missed lots of you in this post, memory is bad lol know somwone else was about to start chemo and I hope they are doing ok
Wish cancer uk would allow reading of other posts while replying, would make my life a lot easier!
Here's hoping you all don't find the build up to Christmas to tiring
