Hi ladies

Sorry I've not posted for a while, trying to push it to the back of my mind I guess but its always there tapping away at your head.

Anyway, just found out it is on the move again - I finished my secound round of chemo back in June and I was really hoping for a bit longer this time but it looks like its not mean to be. Ca125 was around 10 but has gone up to 42 so  waiting for scan then more chemo in January. They have mentioned another type this time - Genti something I think, I didn't quite catch the name. Does anyone know anything about it?

I know a few of you are in the treatment 'loop' and my thoughts are with you whether you are on chemo or off chemo, it is good to hear your experiences tho I always feel I've got nothing worth saying.

Bye for now

Sue

Hi Sue,

I am on Gemcitibine/Carboplatine,  I was on Carbo/ Taxol last year but have had 3 cycles of the Gem/Carbo. They usually give it with an hour bag of Carbo then half hour bag of Gemcitibine. The week after just the half hour bag of Gem then a free week.

Dot I did manage to get my scan today which was good as there was only a handful of people having scans. I go to clinic next Thursday so should have results. I hate the results day as you all know it is hard waiting to hear the Drs words. Anyway fingers crossed for me.

I hope everyone else isok and Jackie you are getting straight with the house. Mary, John, Sharon, and everyone else keep us updated.

Love as always Eileen. xxxxx

Hi Eileen and everyone else who knows me hope your all as best as you can be.

sorry i avnt been on for a while my moms been in hospital for the last 7wks and

has im the only one its all down to me loads of stress! i could do without i went

for my check up last wk everything ok at the moment dont go back until feb.

so that was abit of good news. anyway lots of love to you all  be strong

speak soon. xxxxxxxxx

Thanks for replying Eileen, its good to hear from someone having that type of chemo - how have you found it? are the side effects similar to the carboplatin/taxol treatment? usually by day 8 you are picking up again so does the second dose of it make you feel rough again. Sorry so many questions but my head is spinning and I'm not 100% sure that is the treatment I will have! Best wishes Sue

Hi Sharon,

God that's all you need your mum being poorly as well, I hope she is ok.

Great news about you not having to go back until Feb. At least hopefully if your mum is alright you can have a nice Christmas. We never seem to get long,  I remember Dot saying she didn't have to go back til Dec and here we are already in it. I hope next year we get at least a 12 month break before it rears it's ugly head. I don't know about you ladies but it gives me so much comfort knowing I have all of you out there.

I am dreading next Thursday as I get my scan results and while I am sitting waiting in that very lonely place, I think of all of you. My hospital is a cancer hospital only in Manchester ( I am sure you know which one ) anyway even though I know we are all in the same boat it gives me more comfort thinking about you lot.

Well Sharon and ladies take care and will let you know next week...

Try and take it easy about your mum ( easier said I know ) but stress is not good for you...

Love always Eileen xxxx

Hi Sue,

I am not sure about the Gem/Carbo as I thought Carbo/Taxol was hard but I don't know if it's because I had not had chance for my body to get over the last chemo but my bloods are continually low and I have to inject myself for 5 days after with filgrastim.. I expect it will be the gem what they put you on as it's for ovarian cancer.

You don't get the aching legs or neuropathy with this one or lose your hair but It does upset my bowel. I like Dot have IBS though so I think with anything that is weak in your body it will affect.

The main thing Sue is whatever they offer you is a bonus and I would have it ( even though I feel most days so ill ) Let me know how you get on anyway and any other questions please ask.. Oh after the one that you only have the half hour gem you don't have to go home with any steroids so it is easier and then you have the free week before your double bag..

Love as always Eileen xxxx

Thanks Eileen for that info. I too am at a cancer hospital in Manchester (i'm sure you know which one) so we may even be in that big waiting room together on some appts! You are right, whatever they offer I will take willingly if it gives me half a chance but its the unknown again. With the Carbo/Taxol you knew what to expect - you had a dip then picked up again, but with Gem/Carbo is it the same or does it dip after the second dose too?

Only time will tell and I guess I'll find out soon enough, just have to wait for the scan in the New Year. Did you get offered the ICON 6 trial? I've been on that so far but think they'll take me off it now. Hope you are keeping OK ( I won't say well!). Good luck with your scan results. Sue x

Hi Sharon,

I am sorry to hear that your Mum isn't well, the stress must be awful for you. Fortunately you have good news about yourself and have a breather until February.

Try to take time out for yourself, which is hard when you have a poorly Mum, just wanted you to know I am thinking of you.

Dot xxxxxxxx

Thanks Dot, could do without the stress of it but when im the only one to look after her its hard.

shes been diagnosed with dementia she may be home in a day or to dont know if thats good

or bad news for me!.im worn out now and xmas round the corner! oh well keep me occuppied

i suppose. yeah no hospital for me till feb  im ok just get tired so easy! anyway lets hope we

all have a good new year. lots of hugs sharon xxxxxx

Hi everyone hope you are still coping sorry I have not been in contact for awhile life is just so busy and I try to keep things as normal as I can and enjoy my little ones that's what it is all about for me now.We have a 7th great grandchild due in march our second girl looking foreward to that. I am considering my self very lucky at the moment the radiotherapy has been the only treatment that has really worked for me in the five and a half years I,ve had this cancer.Its unbelievable how much it has shrunk, as I said before it was like a hard cannon ball in my abdomen and now I can hardly feel it and and every thing is soft again ,plus the bleeding has stopped and I am not getting any pain at all.WOW,It's still there I know that but I feel more positive it has bought me a lot more time.Still get very tired but I can deal with that.     Love to everyone take care     Maisie x x x .

Hi everyone hope you are still coping sorry I have not been in contact for awhile life is just so busy and I try to keep things as normal as I can and enjoy my little ones that's what it is all about for me now.We have a 7th great grandchild due in march our second girl looking foreward to that. I am considering my self very lucky at the moment the radiotherapy has been the only treatment that has really worked for me in the five and a half years I,ve had this cancer.Its unbelievable how much it has shrunk, as I said before it was like a hard cannon ball in my abdomen and now I can hardly feel it and and every thing is soft again ,plus the bleeding has stopped and I am not getting any pain at all.WOW,It's still there I know that but I feel more positive it has bought me a lot more time.Still get very tired but I can deal with that.     Love to everyone take care     Maisie x x x .

Hi Maisie,

it is lovely there is a new baby coming soon, such excitement and planning, gives you something to look forward to.

I love that you are feeling positive as it is always the best way to be, especially after the length of time you have been dealing with this.

Good to see you in the forum again.

Hugs Dot xxxxxxx