I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2 chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..
Well I got my results yesterday very late actually after 5pm and I was the last one.
Not good results as the tumour is back and its growing fast. They are not sure if it's in the bowel just the pelvis ? I have to wait now for 2 weeks after they have their meetings and discus what they want to do.
I am moving today & tomor as well so very busy. I was awake all night thinking this is it this time but then I thought of others that have scraped through so I am trying to be positive again...
I ofen read your posts and i am sorry to hear the results sucked.I just throught that i would write because it is in my bones but lovely biophosphates and of course chemo means that they cannot find it on the scans.I only go back every 6 months.Scraping through is not what you wish for but it gets you there.
Hi Eileen sorry to hear your in the come back group but that dosent mean its not treatable! I only got 6 months from my initial chemo but when he swapped the taxinol to doxil I've done much better so don't give up! There bible (nice guidelines) says if you get 6 months from initial chemo they can re-use it so they may go that way. Are they sure about the bowel? You said you felt well apart from groin pain so thats got to be a good sign. Its probably a good time to be moving as it gives you something else to focus on, so I hope the next couple of days go well for you and the settling in process keeps you busy till they decided what to do next.
keep your chin up, while its not the best news its not the worst either!
I always find the worst time to be positive is right after the 'bad' news. We all feel we should pick ourselves back up and continue moving forwards, however easier said than done. At times like this I remember our good friend Rose and quote:
"Come on now you are only allowed to be down for 10 minutes. then you must pick yourself up and continue the fight"
Now I know Rose appreciated that it was not always easy to stay upset for 10 minutes then switch it off but the sentiment stays with me...The thought of Rose wagging her finger at me makes me smile and that gives me the strength to move on up!
Good luck with the move etc and come back to us to let us know how it is going or how it went!
I can imagine how you are feeling at this moment, I am sorry you have to have this worry again, Rose's words that Tony quoted are wise words.
Everyone has said what I wanted to say to you, what we don't do Eileen is give up (I nearly did). I am only mentioning myself because as you know mine travelled from the ovaries to the liver and my both my lungs....you heard my results the other day, who would have thought that could happen?
We are all here for you
Much love, you are in my prayers and thoughts xxxxxxxxxxxx
Aw Thank You all for your messages, it really is good to know you are all out there.
I am not online yet with the move, and I had a change of plan. I should have moved to a lovely cottage I told you about and I let the owners know that my cancer had returned so they ummed and arred so I didn't go. I felt they didn't want me there so my friend had moved in with her boyfriend so I am renting her house now and it's closer to my firends and family so a better choice..
I am not sure how long they will take to decide what to do but I am sick of the not knowing and this time around I am finding it harder to stop worrying, prob as we all know whats in store this time. Jackie the Dr said he is reluctant to give me the carbo/toxol as I was ill so much last time but will the other chemo's work as good. ?
I will message you all in a few days as I am at my daughters so using her laptop.
Hope you are all doing good. xxxxxxxxxxxxxxxxxxxxxx
sorry to hear you are up in the air about your move, you have enough to worry about with your new treatment looming, it is awful not knowing where this is heading, but I remember Jackie having to change her treatment too and she is still supporting us all and dealing with it all over again, it is so hard having to keep positive when all of this is going on. You had a bad experience with your last chemo and I wouldn't want to see that happen again, using a different treatment may be the way to go, I just wish they would let you know what was happening as the gremlins pop in very quick!!
I think of you every day and I pray that all will turn out good for you.
Yes Eileen the dr changed my chemo and its actually worked much better for me, its not the 'gold' standard but what use is the gold standard if it damages you so much that you have no life for 5 months? I had no problems with the carbo/taxol except neuropathy but I still had it when I needed more chemo which is why he decided to change it, but my cancer is growing much slower this time round. I managed a 3 mile walk the other day so muscles are still more than adequate and i hope to get another 6 months before I give in having said that I did try to run a couple of steps - top half obeyed legs didn't = fell flat on face!!!! lesson = can't run so don't try, stitches hurt and face can look uglier than normal
I found it harder second time round but I never did work out why! even going for treatment was harder though I had less problems than the first time. The only thing I came up with was that the first time you hope for a cure the second time you know its not a cure but a treatment. As for the third time so far is not bothering me at all but that could be because treatment is not imminent! What i don't understand is why you are being kept in the dark for 2 weeks, I have a scan followed by appointment with oncologist, at the appointment he decides what he's giving and when. The only thing I can think of is they think another operation may help, Don't want to worry you but at least if you think its a possibility you will be prepared when they see you.
Sounds like you house move has worked out better, I certainly hope so. I have men in my front garden digging out the foundations of my new extention as I type! very impressed so far as the dogs have just ignored them! not sure that makes them any good as guard dogs but hey at least I know I won't be driven insane for the next few weeks/months
Hi dot I'm new to this site.I was diagnosed with ovarian cancer in 2006 found by accident whilst having an ultra sound for something else.It was1st stage I had surgery and was told the chances of it coming back were very remote .It came back in 2008 and I had carboplatin tolerated well a scan confirmed it had disappeared. However it was back within 4 months in my abdominal wall and vagina.I had no further treatment until 2010 when I had further chemo calyx that was pretty difficult lots of side effects chest infections sore throats mouth ulcers and skin discolouration. It did shrink 2centimetres but it was growing again 6 weeks later. Since then I have been taking 40mgms of tamoxifen daily I seemed to lose every bit of energy so I stopped taking it 6days ago,and i feel a bit better already.It's also spread to the lymph glands in my right groin. Do you know anyone with a similar treatment history! On Monday 19th I see my consultant and she says I should consider further chemo or radiotherapy and to be honest I don't know which way to go.I have tried my own method telling it to sod off but it's not working!! Kind regards Maisie
