Ovarian Cancer

Hi,

I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2  chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..

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  • Hi Redlizzie

    I to have ovarian cancer diagnosed in Jan 2009. I had 3 lots of chemo, operation, and another 3 lots of chemo.

    The main problems I had with the chemo were gross taste in mouth and nothing tasted like it should, neuropathy of fingers and feet, these got worse with each chemo, but taste improved after about 6 weeks, fingers and feet improved but I still have neuropathy in my left foot (and right but only when I walk!). Hair loss - very slow to grow back and now have corkscrew curls! Tiredness but only realised how bad once I returned to work!

    Most of the complications I had with chemo have been rare ones but then I only got diagnosed with ovarian cancer due to a rare autoimmune disease! I developed arterial bloods clots (aortic settling in left Femeral artery) just before my 4th dose, had daily blood thining injections but still developed another clot 5 days after the 6th dose! The onchologist/haematologist aren't sure if its cancer or chemo related and they don't seem to have personally come across it before so please don't worry about it!

    I would be interested in hearing about plans for followup when you get that far.

    Best of luck

    Jackie

  • Jackie,

    I am worried about you as I have not heard anything from you and the other Ladies..xxxx

  • Thanks Eileen,

    just about to leave......ugh have to prepare for rush hour traffic lol

    Dot xxxxxxxxxxx

  • Jackie,

    You don't know how good it is to have you back on here.

    I think I am in a much position having to move again as all that work and mess will be awful ( get to Ireland for a few weeks )  I am dreading it as tomorrow I getting nearly all my furniture moved to my daughters. She is putting it in her conservatory as the cottage I am moving to is a small one bed on 3 floors ( It is so quirky ) and it has lots of built in cupboards so I am only taking my settees, bed, Mexican chest, and boxes oh and my plants from outside. my kitchen is downstairs with a galley kitchen & patio doors opening up to a large patio area with woodland and a stream running at the back . Just what I need....

    I like you Jackie always expect to hear the worst news possible as then anything good is a bonus. It's not that I am negative but I think it pays not to be too complacent if you understand that.

    Love always Eileen .xxxxxxxxxxx 

  • Hi everyone.........good news ctscan was completely clear, my lungs, liver and pelvic area, not a trace.............sooooooooooo happy, on my way there I had a lovely feeling that all was good and it wasssss. I have been booked in with the Lymphoedema nurse for fluid build up around my body, I think it consists of massage and those really fashionable compression stockings lol, they said it is a very common complaint.

    Eileen I am hoping that you will have some good news, but I am a prime example of being given a bleak prognosis and have come through it........I will still live day by day and be thankful for that.....so no more appointments until Christmas.

    Jackie and everyone else I wish you all positive progress.

    Much love Dot xxxxxxxxx

  • Dot Brilliant news,

    I am soooooooooo happy for you and yes I was thinking that yesterday about the bad news you had.  Well get yourself a very large glass of wine tonight.

    Love always......Eileen xxxxxxxxxxxxxxxxxxxxxxxxxx  xxxxxxxxxxxxxxx

  • Dot,

    I am so happy for you, it is so great for all of us to hear good news.

    Thanks and with love.

    Tony xxxx

  • That's great news Dot! really pleased for you.

    Yep, a celebratory drink is in order I think.

    Take care,

    John

  • Hi Dot, best news ever, get you out and celebrating!

    up to us to keep up with you now lol

    Jackie

    xxx

  • Hi Everyone,

    Well I got my results yesterday very late actually after 5pm and I was the last one.

    Not good results as the tumour is back and its growing fast. They are not sure if it's in the bowel just the pelvis ? I have to wait now for 2 weeks after they have their meetings and discus what they want to do.

    I am moving today & tomor as well so very busy. I was awake all night thinking this is it this time but then I thought of others that have scraped through so I am trying to be positive again...

    Love always Eileen xxxxxxxxx

  • Hi Eillen

    I ofen read your posts and i am sorry to hear the results sucked.I just throught that i would write because it is in my bones but lovely biophosphates and of course chemo means that they cannot find it on the scans.I only go back every 6 months.Scraping through is not what you wish for but it gets you there.

    Good luck

  • Hi Eileen sorry to hear your in the come back group but that dosent mean its not treatable! I only got 6 months from my initial chemo but when he swapped the taxinol to doxil I've done much better so don't give up! There bible (nice guidelines) says if you get 6 months from initial chemo they can re-use it so they may go that way. Are they sure about the bowel? You said you felt well apart from groin pain so thats got to be a good sign. Its probably a good time to be moving as it gives you something else to focus on, so I hope the next couple of days go well for you and the settling in process keeps you busy till they decided what to do next.

    keep your chin up, while its not the best news its not the worst either!

    Lots of love and hugs

    Jackie

    xxx

Reply
  • Hi Eileen sorry to hear your in the come back group but that dosent mean its not treatable! I only got 6 months from my initial chemo but when he swapped the taxinol to doxil I've done much better so don't give up! There bible (nice guidelines) says if you get 6 months from initial chemo they can re-use it so they may go that way. Are they sure about the bowel? You said you felt well apart from groin pain so thats got to be a good sign. Its probably a good time to be moving as it gives you something else to focus on, so I hope the next couple of days go well for you and the settling in process keeps you busy till they decided what to do next.

    keep your chin up, while its not the best news its not the worst either!

    Lots of love and hugs

    Jackie

    xxx

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