Ovarian Cancer

Hi,

I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2  chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..

  • So glad you have positive news at last. I love Turkey,we always used to take an empty suitcase to bring back all our shopping !!

    I hope Mary ,s strength picks up now and things are on a happier phase for you all.

    good luck

    Rose xxx

  • Brilliant news John, & Mary ,

    It shows that the light is at the end of the tunnel. A very long one I know but  it gives us all hope and as you say this site has given all of us so much positive thoughts and has helped us through dark days.

    I hope you get your insurance sorted out and I am not sure what sites you have checked out but cruk has an insurance company I think or some cancer site has.

    Enjoy you both deserve it... John you are a wonderful man, can we mold you and have one please...Mary you are a very lucky lady..

             Love Eileen xxxxx

  • Oh John,  Brilliant, fantastic, wayhay news Brought a tear to my eye reading your post.

    I hope you have a great time in Turkey, spoil Mary rotten (she deserves it after what she has been through) and keep some for yourself

    Please don't be a stranger, you have been a huge support to so many people, you are now part of the furniture.

    Much love to you both, Miras xx

  • Thank you all for your kind words, you are very kind. Of course I will carry on posting, if I can share something that may be of help to anyone then I will.

    I took Mary out for a nice meal last night to celebrate, and we got quite emotional again talking about the past six months. Tonight our daughter is cooking us a nice steak meal and her boyfriend has bought a bottle of pink champagne.

    I hope that the chemo has done it's job, we'll find out in 3 months no doubt. Stay positive all of you.

    Best wishes,

    John

  • Hi Everyone,

    Haven't posted on here in a while. John your news is so fab really made me smile!  Hope you both enjoyed your meal and champagne!

    I have my last Chemo tomorrow and I can't wait to get it over and done with! It's been a struggle the last few months, but I'm so nearly there. Have a scan in 4 weeks and a check up with results in 6 weeks. Keep your fingers crossed for me!

    Hope everyone else is ok, take care,

    love Sarah x

  • Hi Sarah,

    Good to hear from you, I know you had been struggling with the chemo and I was getting concerned about you. So glad that you have reached the final hurdle, I am certainly keeping everything crossed for you, I hope that you have positive news very soon.

    The meal and champagne went well, although I ended up cooking the steak and vegetables myself, and cleaning up the kitchen afterwards! Our daughter did make a nice apple crumble though and bought her Mum a nice bouquet of flowers, so I'll forgive her for that

    Hang in there Sarah, I know you can do it! I'm glad that our news made you smile, may it also give you some inspiration for the next few weeks.

    Best wishes,
    John

  • Dear John

    I just wanted to say how happy i am to hear things have gone well for Mary.The meal sounded lovely.

  • Thank you Grumpy, we had a very nice weekend celebrating the end of Mary's chemo.

    I was just searching the forum for "neuropathy" and came across Eileen and Sarah's posts back in February. Mary seems to be getting quite a build up of this now, particularly in one foot. A small price to pay maybe if the chemo has done it's work, just wondered if anyone had tried anything to relieve it, or has any advice.

    There is a lot of info on the macmillan site if you're interested: http://www.macmillan.org.uk/Cancerinformation/Livingwithandaftercancer/Symptomssideeffects/Othersymptomssideeffects/Peripheralneuropathy.aspx

    John

  • Hi Jackie & everyone,

    I had my bloods taken on Tuesday and got a phone today to say my CA125 has gone up from 32 to 42. I am concerned as I know anything above 33 is worrying in. I have to see GP tomor as I am in Manchester now so the hospital in Wales are faxing my notes up here. My last CA125 was Feb so I don't suppose it has gone up that much. Any takes on it girls...Hope they do a full body scan and not just around that area where the cancer was.

    Hope everyone ok xxxx

  • HI Eileen

    CA125 varies for lots of reasons which it why its not diagnostic. If you are feeling well and have no symptoms chances are they will ignore it and continue to monitor it. They don't do all body scan but ct scan chest, abdo and pelvis. Hope this helps and its merely a blip.

    I saw oncol on Mon he thinks my rash/itch is an indication that its back again despite my ca125 being low for me, he said if I didn't have the rash he would have been happy. As it stands I have a ct scan next week and then see him again in a few weeks time. Getting bored with it all now and just wish I had normal symptoms! Don't feel like heading off for chemo mumber 3 yet as feel fine or at least I would if i could get some relief from the itch. Have booked a dermatology app but not till the 30th so meantime have increased the steroids (my own idea)  which has helped a bit. Am getting very confused as oncol says something different each time, not remotely consistant, doesn't seem to specialise in ovarian cancer and admits to being no expert in skin condition (which is acceptable!). I accept that my presentation is rare but surely that don't equate to no one with any experience of it???? but to me 6 doses of chemo to get rid of rash seems excessive!!!!!!!!! sorry for rant but feeling confused and helpless, wish I had pain at least thats treatable but an undescribale, soul destroying, itch is beyond them  - cure = ct scan and put up with it till results - great.

    Once again, sorry for rant

    Hope your all doing well

    Best wishes

    Jackie xxx