I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2 chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..
Had my 3 month check up, the lymphs in my chest haven't changed and they were pleased with that, my tumour marker is 8 .......yay......another 3 months rest for me then blood tests, Doc said she would have to discuss whether I need another ctscan after that, all news was good. She checked out my swollen feet and hands and didn't have a clue why they should be like that, because my blood test results were good, from the hospital and my own doc, she saw no reason for concern, great help when I am wobbling around like a weeble teehee.
Jackie and Eileen hugs xxx, it is good to see your posts and everyone else out there too. I haven't been on the computer much as I was told to keep my feet elevated, have you ever tried to type with your feet up in the air, putting my feet up on my desk was just not lady like hahaha.
Rose I hope you are doing good, big hugs for you too xxx
Mary hardly slept at all last night, my daughter and I survived the Lamb curry but I think perhaps her tummy is more sensitive than usual, so lesson learned. She is feeling a bit better now, just washed out and tired, understandably. My youngest son is coming home from Uni for the weekend tonight, so that'll cheer her up.
@Jackie - re-spreading out the Taxol doses, I'm inclined to think it is a better way too, Mary has got off pretty lightly in respect of side effects when I listen to other stories here, considering she is over half way through cycle 3. It's a bit inconvenient having to go every week for treatment, but she only has bloods and clinic 3 weekly so it's not too bad. She is quite happy with the hickman line now, it is definitely going to make things easier.
@Eileen - How dare you malign my cooking! HAHA! Seriously, perhaps you should try that Floradix, I'm sure it makes a difference with regard to tiredness.
@Dot - That's great news, keeping everything crossed for you getting the all clear!
Havent been posting much but still reading as I have cellulitis in my arm and it is swollen and awkward to type.Antibiotics kicking in so starting to go down a bit..
10 o,clock is late for me,I,m in bed by 8 !!! New chemo isn,t too bad so fingers crossed.Hope your new baby is doing well,they are a godsend.
Take care and we shall meet in Carmarthen when the sun comes out/
Good to hear from you Eileen, Dot and Rose (others to of course but these were the originals!)
I've gone from sleeping for 4 hours a night to 91/2! but hey at least I can do more and more during the day
Like Dot I've just had my 3 monthly, bloods all normal (fist time ever!) CA125 lower than at any point last year so fingers crossed gonna last longer this time, told him I had no intention of getting it back as quick this time but he didn't look convinced I do so love proving him wrong! Am a tad fed up at the mo as have had 4 colds since January and now a UTI (urinary infection) these things are not allowed during my precious 'well' time, fortunately I've not felt ill with them but do wonder if I would feel less tired without them! In the last week hair has grown to a point where it is simply short, its not gone curley this time but has a pronounced wave in it! very grey but that should calm down in time (post hair cut I suspect!). Need a decent head of hair as need my passport renewed and refuse to have a picture of me bald for the next 10 years
Dot love the vision of feet on desk and typing! I have my feet up and type all the time.............. I use a laptop
Rose you are certainly going through the mill, you are always in my thoughts!!
Cellutis is so painful, hopefully the antibiotics will sort it out quickly.
I do hope this round of chemo works for you, it is hard for you having tried so many, fingers and everything else crossed for you. The tiredness is understandable, it has been a very long road for you.
Big hugs chuckie egg xxxxxxx (geordie endearment lol)
By the way my swollen legs are a boon, they take the wrinkles out of the calves lol......I really can't complain about anything!!!!!
Jackie it is great to hear your blood tests came back good!!
Hopefully no more colds for you, they can be very wearing, we need the nice weather to come now, I am looking forward to light evenings.
I have heard that being bald is in the 'in thing' lol.....I can't believe how little it has bothered me, going out wigless was the best thing for me, I do have very short hair now, waiting for it to thicken on top, bald is better than looking like Friar Tuck haha.
Great to hear from you and sorry about your cellulitis Hope you begin to improve .....
Isabella is 7 months now, it soon goes doesn't it ?
I would like to ask you and the others if any of you have pain ( not bad but a twinge ) were your ovaries were ? I keep having one on my right side were the tumour was...Plus my bladder is feeling full all the time. Any feedback would be great.
We will def meet soon Rose as soon as the weather and you improve...
Hi Jackie, I'm new on the forum and came across all your posts re ovarian cancer. Your story is very similar to mine and I just felt the need to contact you. I was diagnosed Dec 2009, 6 lots chemo Feb - May 2010 then full op in June. Felt great, 3 monthly checkup OK and back to work.
Then check up in Feb 2011 showed raised ca125 levels and yes its back. Just started 2nd round of chemo and am taking part in the ICON 6 trial with a new drug called Cediranib that cuts off the blood supply to the tumours, hopefully. I think you've had two lots of chemo haven't you?
Been thru all the 'why me' scenarios, feel really cheated to be fighting it again after all I've been thru (had breast cancer 16 years ago too, apparently unrelated just unlucky I guess). Scared about what the future holds and feel so alone sometimes.
shame about the circumstances but nice to hear from you! Yes I finished my second lot of chemo in Oct, only had 8 months between 1 and 2nd lot but do feel this one may keep me going longer! The fact you are involved in a trail is generally considered to be better (closer monitoring etc) so fingers crossed this will work well for you. I have heard about the drugs that limit/stop the blood supply to the tumour but I would be excluded due to the clotting disorder I developed, never-the-less I hope the trial is successful as it would give further treatment options to many people.
The only time I thought why me was immediately followed by why not me? I'm not any different to anyone else and cancer is random, just one of those things. To be honest I refuse to worry about something I can't change, life's to short so I enjoy what I can! No need to feel lonely, just pop on here and the ladies (and 1 man!) will support you through the dark times. As to what the future holds who knows? just look at Japan and you realise that none of us know when our times up or when our lives will be turned upside down for whatever reason, I know I will probably not have to worry about old age, senility or nursing homes but in the meantime my body is not telling me I've lost the fight and till it does I live as I always have! Guess I can't cope with constantly thinking I've got cancer and I'm dying sooner rather than later, time to cross that bridge when my body starts to tell me . I refused a prognosis as in my eyes its a guess based on that doctors experience, of other people (not me!!!) and it acts as a countdown, I couldn't cope counting the months/days and thinking I've only got x,y,z, left and what about when you pass the sell by date!!!!!!!!!! It just wasn't for me and would have destroyed my positive self, I would urge anybody who is offered a prognosis to consider it very carefully.
Eileen - no I've never had any abdominal pain and my bladder has been a lot larger since the op if you see what I mean . Can't see any reason why you should have ovary pain, but the bladder may be due to a urinary infection. have you mentioned it to your Dr? if not then I would (GP if not due for any other appointments soon).
My oncologist is now measuring my CA125 every 3 months (after the first lot of chemo he said that they don't treat blood results or scans as research had shown that the same results came from waiting for symptoms to develop). I am assuming as my symptoms are far from normal he don't trust me to tell him when they are back . Actually he's probably right as I felt we jumped in to quick with treatment this time!
