Ovarian Cancer

Hi,

I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2  chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..

Parents
  • Hi Redlizzie

    I to have ovarian cancer diagnosed in Jan 2009. I had 3 lots of chemo, operation, and another 3 lots of chemo.

    The main problems I had with the chemo were gross taste in mouth and nothing tasted like it should, neuropathy of fingers and feet, these got worse with each chemo, but taste improved after about 6 weeks, fingers and feet improved but I still have neuropathy in my left foot (and right but only when I walk!). Hair loss - very slow to grow back and now have corkscrew curls! Tiredness but only realised how bad once I returned to work!

    Most of the complications I had with chemo have been rare ones but then I only got diagnosed with ovarian cancer due to a rare autoimmune disease! I developed arterial bloods clots (aortic settling in left Femeral artery) just before my 4th dose, had daily blood thining injections but still developed another clot 5 days after the 6th dose! The onchologist/haematologist aren't sure if its cancer or chemo related and they don't seem to have personally come across it before so please don't worry about it!

    I would be interested in hearing about plans for followup when you get that far.

    Best of luck

    Jackie

  • Jackie,

    I am worried about you as I have not heard anything from you and the other Ladies..xxxx

  • Hi Ladies,

    Sorry I have not been on for a while. Anyway I went to see my Dr last Wednesday and he was pleased with me. I have to go back every 3 months now for blood tests. I am beginning to feel better everyday and I am so glad the chemo has finished as it really floored me. Jackie, Dot, Rose, Sharon, Liz, and if I forgot anyone sorry....I hope we all keep in touch still and we continue to keep healthy..

    Love always Eileen. xxxxxxxx

  • Good luck tomorrow,hope everything goes well for you.

    Hi to everyone,things very quiet which I hope means everyone is OK.Roll on the warmer weather and we will all feel better then.

    Rose xxx

  • Thanks Rose, im feeling a little unsettled today like i said dont fancy chemo or surgery again

    but what must be must be. ive got to be there for 12 so il let you know how i get on when im back.

    thanks for wishing me good luck it really helps.xx

  • hi all.

    hope everyone remains well. I feel better this time round which hopefully means the 2nd lot of chemo was more effective than the first, one can but hope! am picking up colds like they are going out of fashion, on the 3rd one since the new year but otherwise feeling really good, legs working and arms not to bad, even done a load of weeding down the allotment!

    Good luck for tom julygirl, I'm thinking this is the second time as it was for me, I was suprised that I found it more intimidating than the first time, thought it would be better as i knew what to except but didn't work that way so can well understand how your feeling. Let us know how you get on

    All the best

    Jackie

    xxx

  • Hi Rose,Eileen.Jackie.and all you other lovely ladies out there.been to see new oncoligist today

    seems very nice! news is ive got to have chemo again having he first one in 3 weeks time.

    hairs going this time! so this is new for me didnt happen last time!.feel a litle numb about it at

    the minute.but what must be must be, speak to you all soon big hugs sharon[julygirl58] xxxx

  • So sorry Sharon.Take time to get your head round this ,thump a few cushions and throw a few things.Do you know which chemo you will have?

    Loads of good wishes for you

    Rose xxx

  • Hi Sharon, at least you now know! Hate the hair loss, know its ridiculous but hate it anyway . I've been through my second lot of chemo and am now out the other side feeling better than ever, so stay calm and try and fill the next 3 weeks with things you like doing if you can! I spent my 3 weeks on holiday, I explored lots of local places I didn't even know existed. I struggled with walking but did it anyway cos it was what I wanted, I went out to lunch somewhere new everyday and really enjoyed myself. It kept me going once the chemo started but I have to be honest I found the chemo psychologically second time round, though physically it was a lot easier! obviously now am really glad I had it, just spent the day walking which I haven't been able to do for the last couple of years (weird symptoms but that's me all over lol)

    Chin up you can do it

    Best wishes

    Jackie

    XXX

  • Hi ladies I hope you don't mind me writing this, but I've been reading your posts on and off the last few months and I have to say you are all such an inspiration.

    I was diagnosed with serious borderline ovarian cancer with invasive implants in Nov 2010. I had a hysterectomy and have just started my first lot of Chemo - Taxol/Carbo on Tues 15th. I'm starting to feel very tired and have a bit of numbness in my fingertips. But I am mostly apprehensive about the hair loss that is to come. I have felt very down today and can't face the next 5 cycles. I'm scared.

    Take care ladies I hope all goes well for you - stay strong x

  • Hugs Sharon,

    I agree with Rose, throw those cushions around.

    I dreaded losing my hair too, but you know I love it lol, mine started growing back even through the hair loss. I don't even wear a wig, it was not upsetting like I thought it would be.

    You are bound to be apprehensive, but we are here if you need to let off steam.

    Big hugs and try not to worry too much!!

    Dot xxxx

  • Hi Sharon,

    Well that takes us all back about the hair loss, remember Dot ? you were dreading it and then found it wasn't as bad as you thought. I think I was prob the only one who it didn't bother. ( I have always been a bit odd ) Anyway just remember it grows back, maybe a different colour and it could be curly, straight, but it does come back. Just keep your thoughts on getting better and the only way is more chemo. Mine grew back and I had to have more chemo I must admit it was harder the second time as it was winter so not good having a cold head .

    We are all still here for you Sharon and keep chatting. I know we have been very quiet for a while but we are here.. Just think how much you will save on shampoo and no more washing your hair.Sorry bad joke but keep laughing and don't let it get you down please. 

    Welcome to our new girl lovely to hear from you. xxxxxxxxxxxxxx

Reply
  • Hi Sharon,

    Well that takes us all back about the hair loss, remember Dot ? you were dreading it and then found it wasn't as bad as you thought. I think I was prob the only one who it didn't bother. ( I have always been a bit odd ) Anyway just remember it grows back, maybe a different colour and it could be curly, straight, but it does come back. Just keep your thoughts on getting better and the only way is more chemo. Mine grew back and I had to have more chemo I must admit it was harder the second time as it was winter so not good having a cold head .

    We are all still here for you Sharon and keep chatting. I know we have been very quiet for a while but we are here.. Just think how much you will save on shampoo and no more washing your hair.Sorry bad joke but keep laughing and don't let it get you down please. 

    Welcome to our new girl lovely to hear from you. xxxxxxxxxxxxxx

Children
  • Eileen it is so good to hear from you and that you are doing good!!

    Yes I remember worrying about my hair lol. Mine started to come back pure white but turning to a grey now lol, the back and sides are really thick but the top is a lot thinner, I could become Friar Dot lol.

    hugss

    Dot xxxxxxxx