Hi Redlizzie

I to have ovarian cancer diagnosed in Jan 2009. I had 3 lots of chemo, operation, and another 3 lots of chemo.

The main problems I had with the chemo were gross taste in mouth and nothing tasted like it should, neuropathy of fingers and feet, these got worse with each chemo, but taste improved after about 6 weeks, fingers and feet improved but I still have neuropathy in my left foot (and right but only when I walk!). Hair loss - very slow to grow back and now have corkscrew curls! Tiredness but only realised how bad once I returned to work!

Most of the complications I had with chemo have been rare ones but then I only got diagnosed with ovarian cancer due to a rare autoimmune disease! I developed arterial bloods clots (aortic settling in left Femeral artery) just before my 4th dose, had daily blood thining injections but still developed another clot 5 days after the 6th dose! The onchologist/haematologist aren't sure if its cancer or chemo related and they don't seem to have personally come across it before so please don't worry about it!

I would be interested in hearing about plans for followup when you get that far.

Best of luck

Jackie

Jackie,

I am worried about you as I have not heard anything from you and the other Ladies..xxxx

Hi Dot, hope alls well with you ive got to go to hospital thursday t see what they have decided to do

ie.surgary or some more chemo dont really fancy surgery again if im honest

ill keep you posted.take care sharonxxx

Hi ladies just to say pleased your all ok

I am going back to work tommorrow on a phazed return.Got my check up 16th feb fingers crossed all ok.

Still not able to do much ie lifting and have trouble with my hip but have an xray on monday to see if its anything or not.Good luck to you all

Best wishes Liz xx 

Hi everyone,

like Jackie, I am hoping you are all getting on with your lives and doing good.

Sharon how did you get on at the hospital, have they made any decisions yet?

I have to be honest and say I wouldn't want any more surgery or chemo either, but we have to think about what is best for us.

Dot xx

Hi Liz,

Good luck with work, I will keep my fingers crossed for you too on the 16th and hope all will be well with you.

It seems never ending, but try to stay strong

Hugs Dot

Hi Ladies,

Sorry I have not been on for a while. Anyway I went to see my Dr last Wednesday and he was pleased with me. I have to go back every 3 months now for blood tests. I am beginning to feel better everyday and I am so glad the chemo has finished as it really floored me. Jackie, Dot, Rose, Sharon, Liz, and if I forgot anyone sorry....I hope we all keep in touch still and we continue to keep healthy..

Love always Eileen. xxxxxxxx

Good luck tomorrow,hope everything goes well for you.

Hi to everyone,things very quiet which I hope means everyone is OK.Roll on the warmer weather and we will all feel better then.

Rose xxx

Thanks Rose, im feeling a little unsettled today like i said dont fancy chemo or surgery again

but what must be must be. ive got to be there for 12 so il let you know how i get on when im back.

thanks for wishing me good luck it really helps.xx

hi all.

hope everyone remains well. I feel better this time round which hopefully means the 2nd lot of chemo was more effective than the first, one can but hope! am picking up colds like they are going out of fashion, on the 3rd one since the new year but otherwise feeling really good, legs working and arms not to bad, even done a load of weeding down the allotment!

Good luck for tom julygirl, I'm thinking this is the second time as it was for me, I was suprised that I found it more intimidating than the first time, thought it would be better as i knew what to except but didn't work that way so can well understand how your feeling. Let us know how you get on

All the best

Jackie

xxx

Hi Rose,Eileen.Jackie.and all you other lovely ladies out there.been to see new oncoligist today

seems very nice! news is ive got to have chemo again having he first one in 3 weeks time.

hairs going this time! so this is new for me didnt happen last time!.feel a litle numb about it at

the minute.but what must be must be, speak to you all soon big hugs sharon[julygirl58] xxxx

So sorry Sharon.Take time to get your head round this ,thump a few cushions and throw a few things.Do you know which chemo you will have?

Loads of good wishes for you

Rose xxx

So sorry Sharon.Take time to get your head round this ,thump a few cushions and throw a few things.Do you know which chemo you will have?

Loads of good wishes for you

Rose xxx

Hi to all you wonderful ladies out there you know who you are! your words of comfort have cheered me up

so i thank you for that. just really scared about the hair thing! im normally quite a strong person but this

as got to me.my family are fine about it and really asure me it will be fine just wonder what my grandchidren

will think of nannie with no hair! [oldest one bein 6] im going to be having carbol/taxol.when does you hair start

falling out and how soon does grow back?.not sure about the wig thing either!.my daughter is going to put my

photo on over the weekend[just my best side mind!] so you can see who your speaking to!bye for now and

thanks again.and a big welcome to new members sarah and john.were always here for a chat or a moan!

sharon [julygirl58] xxxxxx

Hi Sharon,

Don't worry about the Grandchildren as my 2 boys aged 10 this year thought it was cool. Try not to make a big issue about it and they will be all right. I bought some lovely bandanas from a shop near me and have a few different colours to mach what I am wearing, I went out the other day with a red & white striped top ( very loud ) with a red & white polka dot scarf, I do like to noticed ha ha but don't try and hide away let people see how you / we are positive people with a lust for life..

Love to you and your family xxxxxxEileen xxxx

Hi Ladies & John!

John - just to say my boyfriends dad has a picc line for his chemo & said it's the best thing, it makes things so much easier. I'm gonna try and carry on as I am as I only have 5 more to go. Although my veins are very small and it is rather painful when they start stabbing!

Sharon - I'm with you with your worries of hair loss. I too am very scared. I've cut my hair short, but think there might come a time to shave it when it starts falling out. I'd only just bought some new hair straighteners when I was diagnosed how typical is that!

Well for a 33yr old I feel like a 90yr old today! My joints have started to ache and it's very uncomfortable. Didn't sleep very well last night. I felt so guilty that my boyfriend had to cook tea and stuff when he'd been at work all day. There was I moaning that I hurt. But I was so tired I had no energy, which isn't like me I'm always doing stuff.

Anyway, hope you are all well have a good day & keep smiling,

Sarah x

Bless you Eileen you so make me smile!!. you like your colours then!.

im thinking of goin to have my hair cut next week so maybe i wont feel

so bad then.its coller length at the minute.my partner isnt taking it to good either

weve been together 23yrs he always says im stronger then him!

but i dont feel it since all this crap started!.but im trying really hard.

anyway on a lghter note hope to put my photo on later! with hair!!!

lots of love sharon.xxxxx

Hi Sarah, this will be my second cycle of chemo but i didnt loose my hair with the first one.

so im rather scared this time.hear i am moaning i have a daughter a year younger then you.

you shouldnt be having to deal with rhis crap!!! anyway were always hear to listen day or night.

keep in touch.a BIG HUG to you. sharon [julygirl58] xxx

Hi everyone

John welcome to the group, I've never heard about the japanese method but I've been here from the start and therefore know that none of us have had exactely the same treatment though generally the drugs used are the same! As for the PICC line go for it!!! I would have, I even asked for it but then managed to take the dr and myself out of it due to my blood clotting disorder! Generally PICC lines do not cause problems, there is no faffing about trying to find veins that only get worse as treatment progresses and they are eary to care for, 1 needles verses 6 wins in my opinion lol

Sharon and John's wife, hair loss usually happens at week 3, best too get the shave over and done with as soon as it starts to seriously fall out. Chances are you won't (I didn't either time!!!!!!!!!) but it really is the thought of it more than the reality, once the hairs gone its fine its the lead up to it thats tourcher. I don't have kids but as a baldy seem to attract every youngster in the place, tiny little uns smile and grin at me and I find myself playing peek a boo when in que's!!! Older kids are a bit more reserved, thnk they've learnt that women should have hair but they soon get past it. As for it growing back thats the fun bit, it takes ages (bearing in mind how often we visit hairdressers normally) both times I've grown back very grey but gradually it fades and I get my old colour back, the frist time I ended up with corkscrew curls this time it seems to be straight!

Eileen, old yes but i doubt wise lol

take care people

Jackie

xxx