Hi Redlizzie

I to have ovarian cancer diagnosed in Jan 2009. I had 3 lots of chemo, operation, and another 3 lots of chemo.

The main problems I had with the chemo were gross taste in mouth and nothing tasted like it should, neuropathy of fingers and feet, these got worse with each chemo, but taste improved after about 6 weeks, fingers and feet improved but I still have neuropathy in my left foot (and right but only when I walk!). Hair loss - very slow to grow back and now have corkscrew curls! Tiredness but only realised how bad once I returned to work!

Most of the complications I had with chemo have been rare ones but then I only got diagnosed with ovarian cancer due to a rare autoimmune disease! I developed arterial bloods clots (aortic settling in left Femeral artery) just before my 4th dose, had daily blood thining injections but still developed another clot 5 days after the 6th dose! The onchologist/haematologist aren't sure if its cancer or chemo related and they don't seem to have personally come across it before so please don't worry about it!

I would be interested in hearing about plans for followup when you get that far.

Best of luck

Jackie

Jackie,

I am worried about you as I have not heard anything from you and the other Ladies..xxxx

Hi Jackie,

Sorry you have a cold,they are so draining .Have you retired yet?Lots of time to go for walks in the summer.

Eileen,how are you? Hope you have managed to avoid infections so far this year.

Blue eyedgal,any news yet or is your appt.later on?

Sharon,hope you are getting on Ok and getting around now the snow has gone,very pretty but nice now it has gone.

And Dot,hw are you?Still made up after your news.Which chemo were you on?

I am picking up slowly.Actually drove to the dentist myself yesterday,only a mile but it is surprising how you loose your confidence so quickly.Still trying to put on the 1 1/2 stone that I lost 2 months ago but finding it really difficult.57 years of dieting and now Im trying to put weight on,Sods Law !! My clothes are all too big,I was walking up the stairs t my dentists and stood on the hem of my skirt and the skirt came down over my bum,started laughing which started me coughing so need to visit the sales before Im arrested for flashing !!New chemo seems Ok,scan end of month to see if it has worked but definitely getting a bit of energy back.f only I could breath I would be A 1 but after reading Dots story I am very hopeful.

Hope i havent missed anyone.

Take care girls

Rose xxxx

Hi Jackie & Ladies,

Happy New Year to all of us ....Sorry to hear you have a cold I just hope none of us gets that flu that is circulating.

I should have had my  last chemo on Wed but didn't have it as I had earache  for 3 days and was lightheaded. Anyway I said I didn't want the last one and the Dr had said he wouldn't push me for it. So I am waiting for the appointment in clinic and I expect he will send me for a scan... Fingers crossed everything will be fine.

Hope everyone had a good Christmas especially you Dot...

It will be nice to have no more chemo and Hospital appointments..

Keep in touch  will chat soon now everything is back to normal xxxx Eileen.xx

Rose,

We must have been writing at the same time.

How are you doing ????? Well get down to the shops for lots of new clothes as you deserve plenty of treats this after what you have been through.

I know what you been about driving as I have not drove since Feb so I have def lost my confidence..

Hope you are in good health and you are obviously still laughing.

Has anyone had this flu jab ? And Jackie would you recomend it ????

Love to you Rose and your family... Thanks for the Christmas card ..

  Eileen xxxxxxxxxxxx

Hi Eileen,

thank you for your card also..I asked my oncologist about the flu jab and he gave a resounding NO.but he did say that it was my decision because if I did actually catch flu I might have wished  I  had it but my system was fighting enough.One of those crystal balls would be good It is wierd how many healthy people are dying from it.

Hi Jackie and everyone else.

I hope you are recovering from your cold, I too have had a cold/flu, the whole family have had it and I have been no worse than anyone else, my husband had the injection but still got it, it has left us all with a nasty cough but other than that all is good.

Rose I am trying hard to lose weight, I actually put weight on.. and like you have always kept myself on a diet to avoid becoming a roly poly lol. Seems since my hysterectomy my other organs are fighting to fill the space and left me with a jelly tum lol. I still feel very positive and apart from my initial shock when I was first diagnosed, I have stayed very focused, I think having the support from you girls have kept me on track.

Eileen I hope everything goes well with you and you get good results, think positive chuckie egg!!

Great to see all your posts, you are always in my thoughts xxxxxxxxxx

Hi Rose,

just remembered you asked about my chemo, I was on  Paclitaxel and Carboplatin.

Dot xxx

Hi Rose, Dot, Eileen and jackie and anyone ive forgot! hope your all well im not to bad at present.

just in the process of changing to another hospital  not very happy with my local one  had a few problems.

so looking forward to moving due to have another ct scan end of jan to see whats goin on!.

anyway keep positive ladies! speak soon. and rose i wish i could loose weight i went up 2 dress sizes.

with my treatment still tryin to move it! lots of love to you all xxxxx [my daughter is gonna put my photo

on for me so you can see who your talking to.]

Hi Sharon,

Lovely to hear from you, I hope your next Hospital is better than the first one.

Everyone seems to be trying yo lose weight or put it on. I want another 1/2 stone on and get to 10 1/2 as I am 5ft 7 . I want it on my face but it never works like that. I also would like a face lift ha ha but hey ho we are who we are and as long as we are free from this illness we are lucky....

Keep us informed with your treatment and Happy New Year ..

  Love Eileen. xxxxx

Hi Sharon it is good to see you post. Sorry you are having problems with your hospital, I had a problem with mine too but got it sorted eventually, not something you need!!

We all need to stay positive that is for sure, it won't be long now for your ctscan, all will be good I hope!!

Dot xxxxxxxx

Hi Eileen, i do hope hope so my son was in there last year and they really looked after him

so i think il be ok.its not so close as my local but i feel happier with the move dont know if you

would see it on the news im your area but my locals always on there! lots of complaints not good.

take care. love sharon. xxx

Hi Eileen, i do hope hope so my son was in there last year and they really looked after him

so i think il be ok.its not so close as my local but i feel happier with the move dont know if you

would see it on the news im your area but my locals always on there! lots of complaints not good.

take care. love sharon. xxx

Hi Ladies

Hope the lack of activity on this thread means things are going well and your all getting back to 'normal'.

Thinking of you all on a regular basis!

Lots of love

Jackie

Hi Ladies, just to let you know im still in the land of the living!.hope your all well ive now changed hospitals

went for my first visit last week so far so good.got to go back in 2weeks to discuss treatment ie surgery or

more chemo. [little gremlin showing on my ct scan!] good news was my blood counts dropping but

slowly.anyway l will keep you posted.love to you all. sharon[julygirl58] xxxxx

Hi Jackie good to see you post, I have been waiting for tests to come back for a pain I had in my back, my doc has suggested antibiotics as she thinks all the rest has been attended to by the hospital. Apart from that I feel fine lol.

Eileen I hope you are well, not heard from you for ages, thinking of you too Rose.

Hugs to all xxxxx

Hi Sharon, glad you have sorted out the hospital situation. Hopefully they can sort out the gremlin for you without too much worry, let us know how you got on. Blood count going down is great, even if it is slow

Hugs Dot xxxxxxxx

Hi Dot, hope alls well with you ive got to go to hospital thursday t see what they have decided to do

ie.surgary or some more chemo dont really fancy surgery again if im honest

ill keep you posted.take care sharonxxx

Hi ladies just to say pleased your all ok

I am going back to work tommorrow on a phazed return.Got my check up 16th feb fingers crossed all ok.

Still not able to do much ie lifting and have trouble with my hip but have an xray on monday to see if its anything or not.Good luck to you all

Best wishes Liz xx 

Hi everyone,

like Jackie, I am hoping you are all getting on with your lives and doing good.

Sharon how did you get on at the hospital, have they made any decisions yet?

I have to be honest and say I wouldn't want any more surgery or chemo either, but we have to think about what is best for us.

Dot xx

Hi Liz,

Good luck with work, I will keep my fingers crossed for you too on the 16th and hope all will be well with you.

It seems never ending, but try to stay strong

Hugs Dot

Hi Ladies,

Sorry I have not been on for a while. Anyway I went to see my Dr last Wednesday and he was pleased with me. I have to go back every 3 months now for blood tests. I am beginning to feel better everyday and I am so glad the chemo has finished as it really floored me. Jackie, Dot, Rose, Sharon, Liz, and if I forgot anyone sorry....I hope we all keep in touch still and we continue to keep healthy..

Love always Eileen. xxxxxxxx

Good luck tomorrow,hope everything goes well for you.

Hi to everyone,things very quiet which I hope means everyone is OK.Roll on the warmer weather and we will all feel better then.

Rose xxx