Ovarian Cancer

Hi,

I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2  chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..

Parents
  • Hi Redlizzie

    I to have ovarian cancer diagnosed in Jan 2009. I had 3 lots of chemo, operation, and another 3 lots of chemo.

    The main problems I had with the chemo were gross taste in mouth and nothing tasted like it should, neuropathy of fingers and feet, these got worse with each chemo, but taste improved after about 6 weeks, fingers and feet improved but I still have neuropathy in my left foot (and right but only when I walk!). Hair loss - very slow to grow back and now have corkscrew curls! Tiredness but only realised how bad once I returned to work!

    Most of the complications I had with chemo have been rare ones but then I only got diagnosed with ovarian cancer due to a rare autoimmune disease! I developed arterial bloods clots (aortic settling in left Femeral artery) just before my 4th dose, had daily blood thining injections but still developed another clot 5 days after the 6th dose! The onchologist/haematologist aren't sure if its cancer or chemo related and they don't seem to have personally come across it before so please don't worry about it!

    I would be interested in hearing about plans for followup when you get that far.

    Best of luck

    Jackie

  • Jackie,

    I am worried about you as I have not heard anything from you and the other Ladies..xxxx

  • Hi ladies, Eileen, Dot,Rose and Jackie its been a while hope your all well just want to wish you all a merry christmas.

    and an evan better new year!!! your always in my thoughts  love and hugs. [julygirl58] sharon xxxx

  • Hi Sharon,

    Thanks for Christmas wishes..xxxx

    I hope you have a lovely time and yes we all have a healthy new year........That is the main thing...xxxxx

  • Hi all,

    got my results yesterday, cancer has gone from my left lung, abdomen is clear and all that is left is the lymph nodes in the centre of my chest, Doc said the chemo has shrunk it enough for them to be happy, CA125 is good, I am free now until March, when I will have another ctscan to ensure all is still ok. I am still struggling with this cold and have a pain in my back which made me think the worst, but the Doc is happy and I can relax wooooooo hooooooo.

    I hope everyone is doing well, I wish you all a Happy Christmas, blessings to all.

    Sharon it is good to hear from you, hugs to you, Eileen, Jackie  and Rose

    Dot xxxx

  • Dear Dot,

    That's great news I am so happy for you.....

    See Dr's don't always get it right do they ...What a great Christmas you are going have Dot xxxxxxxx I am so Bloody HAPPY  for all of you.....

    Merry Christmas & a Happy New Year. xxxxxxxxxxxOh and Healthy of course. xxxxx

  • YEEEEEEEEEESSSSSS !!!!!!!!!   

    What a wonderful Christmas present for you but also for us all !!! You must be walking on air my flower.So glad you had this news before Christmas and did not have to wait until after.This is just the start of good news for us all.Thank you for sharing this and have a wonderful Christmas.

    Rose xxxxx

  • Hi girls,

    Following the wonderful news we have just read,I have an invite under other topics ifanyone  would like to join in.

    Love and good wishes to you all

    Rose xxxx

  • Hi Eileen and the rest of the ladies,

    Just popped in to see how you all were.  That is great news Dot what a christmas present that is, i finished chemo in November and due to go back in January to see consultant.  Enjoying the very tiring break from chemo every three weeks as you can all appreciate. Ca125 levels down to 10  at last consultation.  Will see what they are doing in the new year.

    I wish all of you a very Happy Christmas and a very healthy New Year. xxxxx

  • Hi guys

    Great to hear the good news Dot, Hope you get the same Eileen.

    May you all have a Happy Christmas and a health and happy New Year

    Lots of love

    Jackie

    XXXX

  • Hi gals

    No posts at all for ages, not like you lot at all!

    Hope you all had a good christmas and new year.

    I've got a cold but otherwise fine, eyes still a biut more leaky than normal but not enough to be annoying!

    Hope the new year finds you all well

    Love Jackie xxxx

  • Hi Jackie,

    Sorry you have a cold,they are so draining .Have you retired yet?Lots of time to go for walks in the summer.

    Eileen,how are you? Hope you have managed to avoid infections so far this year.

    Blue eyedgal,any news yet or is your appt.later on?

    Sharon,hope you are getting on Ok and getting around now the snow has gone,very pretty but nice now it has gone.

    And Dot,hw are you?Still made up after your news.Which chemo were you on?

    I am picking up slowly.Actually drove to the dentist myself yesterday,only a mile but it is surprising how you loose your confidence so quickly.Still trying to put on the 1 1/2 stone that I lost 2 months ago but finding it really difficult.57 years of dieting and now Im trying to put weight on,Sods Law !! My clothes are all too big,I was walking up the stairs t my dentists and stood on the hem of my skirt and the skirt came down over my bum,started laughing which started me coughing so need to visit the sales before Im arrested for flashing !!New chemo seems Ok,scan end of month to see if it has worked but definitely getting a bit of energy back.f only I could breath I would be A 1 but after reading Dots story I am very hopeful.

    Hope i havent missed anyone.

    Take care girls

    Rose xxxx

Reply
  • Hi Jackie,

    Sorry you have a cold,they are so draining .Have you retired yet?Lots of time to go for walks in the summer.

    Eileen,how are you? Hope you have managed to avoid infections so far this year.

    Blue eyedgal,any news yet or is your appt.later on?

    Sharon,hope you are getting on Ok and getting around now the snow has gone,very pretty but nice now it has gone.

    And Dot,hw are you?Still made up after your news.Which chemo were you on?

    I am picking up slowly.Actually drove to the dentist myself yesterday,only a mile but it is surprising how you loose your confidence so quickly.Still trying to put on the 1 1/2 stone that I lost 2 months ago but finding it really difficult.57 years of dieting and now Im trying to put weight on,Sods Law !! My clothes are all too big,I was walking up the stairs t my dentists and stood on the hem of my skirt and the skirt came down over my bum,started laughing which started me coughing so need to visit the sales before Im arrested for flashing !!New chemo seems Ok,scan end of month to see if it has worked but definitely getting a bit of energy back.f only I could breath I would be A 1 but after reading Dots story I am very hopeful.

    Hope i havent missed anyone.

    Take care girls

    Rose xxxx

Children
  • Rose,

    We must have been writing at the same time.

    How are you doing ????? Well get down to the shops for lots of new clothes as you deserve plenty of treats this after what you have been through.

    I know what you been about driving as I have not drove since Feb so I have def lost my confidence..

    Hope you are in good health and you are obviously still laughing.

    Has anyone had this flu jab ? And Jackie would you recomend it ????

    Love to you Rose and your family... Thanks for the Christmas card ..

      Eileen xxxxxxxxxxxx

  • Hi Eileen,

    thank you for your card also..I asked my oncologist about the flu jab and he gave a resounding NO.but he did say that it was my decision because if I did actually catch flu I might have wished  I  had it but my system was fighting enough.One of those crystal balls would be good It is wierd how many healthy people are dying from it.

  • Hi Rose,

    just remembered you asked about my chemo, I was on  Paclitaxel and Carboplatin.

    Dot xxx

  • Hi Rose, Dot, Eileen and jackie and anyone ive forgot! hope your all well im not to bad at present.

    just in the process of changing to another hospital  not very happy with my local one  had a few problems.

    so looking forward to moving due to have another ct scan end of jan to see whats goin on!.

    anyway keep positive ladies! speak soon. and rose i wish i could loose weight i went up 2 dress sizes.

    with my treatment still tryin to move it! lots of love to you all xxxxx [my daughter is gonna put my photo

    on for me so you can see who your talking to.]

  • Hi Sharon,

    Lovely to hear from you, I hope your next Hospital is better than the first one.

    Everyone seems to be trying yo lose weight or put it on. I want another 1/2 stone on and get to 10 1/2 as I am 5ft 7 . I want it on my face but it never works like that. I also would like a face lift ha ha but hey ho we are who we are and as long as we are free from this illness we are lucky....

    Keep us informed with your treatment and Happy New Year ..

      Love Eileen. xxxxx

  • Hi Sharon it is good to see you post. Sorry you are having problems with your hospital, I had a problem with mine too but got it sorted eventually, not something you need!!

    We all need to stay positive that is for sure, it won't be long now for your ctscan, all will be good I hope!!

    Dot xxxxxxxx

  • Hi Eileen, i do hope hope so my son was in there last year and they really looked after him

    so i think il be ok.its not so close as my local but i feel happier with the move dont know if you

    would see it on the news im your area but my locals always on there! lots of complaints not good.

    take care. love sharon. xxx

  • Hi Ladies

    Hope the lack of activity on this thread means things are going well and your all getting back to 'normal'.

    Thinking of you all on a regular basis!

    Lots of love


    Jackie

  • Hi Ladies, just to let you know im still in the land of the living!.hope your all well ive now changed hospitals

    went for my first visit last week so far so good.got to go back in 2weeks to discuss treatment ie surgery or

    more chemo. [little gremlin showing on my ct scan!] good news was my blood counts dropping but

    slowly.anyway l will keep you posted.love to you all. sharon[julygirl58] xxxxx

  • Hi Jackie good to see you post, I have been waiting for tests to come back for a pain I had in my back, my doc has suggested antibiotics as she thinks all the rest has been attended to by the hospital. Apart from that I feel fine lol.

    Eileen I hope you are well, not heard from you for ages, thinking of you too Rose.

    Hugs to all xxxxx