Hi has you can see im new to this! i was diagnosed in oct 09 after haveing full hysterectomy shocked i can tell you!

finished chemo in march had ct scan in june told a couple of weeks ago i need t have more chemo and maybe more

surgery going to hospital this morning for the verdict!! im a 52yr old mom of four and have five grandchidren. its such a relief to talk

to somone other then family members because its so hard. and my partner isnt copeing with it very well

ive been told the chemo il be haveing this time is stronger and the hairs gonna go great!!

anyway thanks wih letting me go on a bit nice to talk to somene in the same boat as me

best wishes julygirl58 xx

Hello and welcome Julygirl,

sorry to hear you have to have more chemo, and maybe more surgery. Keep us posted about your hospital appointment results.

Losing my hair wasn't as bad as I thought it would be, I have a wig which I have only worn once, everyone has got used to me without hair now lol.

It does help having others to talk to with similar problems.

Dot xxx

Hi Jackie,

I don't understand how your white cell count doesn't go down when you have a cold. Mine is down when I feel ok, I always have to be different ha ha ..

Its always nice to see on here as I have told Annie your are the gaffer so we need you on here....

Love as always Eileen xxxx:love:

Hi jackie

glad that the cold is easing up and you are feeling a bit better, I will be thinking of you tomorrow.

Got my ctscan tomorrow which should mean a shorter day than usual at the hospital then back again to chat with the team on Tuesday.

love Dot xxx

Hi Annie,

it is scary when we go down this route, being able to talk about it with people who are having a similar experience is really great, I hope that we can help you feel less scared and be with you through it all.

I find that it lessens the pressure on my family, this is my moan zone at times lol and someone always manages to put me back on track with comforting words or even a joke.

So don't be afraid to ask questions or moan about what gets you down, we will be here for you.

Dot xx

Hi everyone.

Eileen I had xray and ecg beforehand too, every time I have bloods taken too.

Strange about the fear going Eileen, I am totally at peace with myself, I decided some time ago, that today is no different to when I didn't have my diagnosis and I really don't know what tomorrow brings, there is no point to me worrying about any of it. I have my results on Tuesday and have just settled myself they will be what they will be. Much better than all the stressing of ...what if...as before. When I read back to my posts I was like a scared rabbit, I have come a long way teehee.

Love to all xxxxxx

Good luck tomorrow flower and yes,you have come a long way and we are all glad that we have been part of it.;)

Rose xxx

Hi Dot,

Good Luck for tomor with scan....Don't forget the poo tablets,,,, I will be thinking about you ...What time is it at ?? Does it not bother you taking that drink before hand .? I always dread it but have not heard any of you talking about it . Love Eileen xxx

Hi ladies,

Me again, I have just been reading back through our emails and have realised we have not heard from Kathym since July and Hilary August. hope they are ok. Have any of you heard from them them ?

Rose get your picture on here so we can put a face to our messages. I don't believe your shy ha ha xxxx

Love Eileen. x:love:

Hi Annie, welcome to this lovely group! im still quite new! but they have made me feel so much better

best thing idid.

we know our familys support us but its nice to talk to someone whos going through the same .

so when ever you wont to chat were only a click away! .

big hugs julygirl58 xx

All the best for tomorrow Dot il be thinking of you

julygirl58 xxx

Hi Sharon,

Its funny how quickly we all fit in to this group... I thought those were lovely messages you sent to the girls xxxx

Hi Sharon,

Its funny how quickly we all fit in to this group... I thought those were lovely messages you sent to the girls xxxx

Hi Eileen,thanks! just think your all fabulous!! you never know maybe one day we could all meet up even though we live miles apart!!.

that could be another milestone for us all!! im gonna get my daughter to put my picture on so you can see who your talking to.

only my good side mind!! take care of you.sharon xxx

Hi everyone,

thanks for the well wishes tomorrow, I am sure everything will be fine.

Eileen my first ctscan was at my local hospital and I had to have the drink and the injection, the next one was at the hospital I wrote about that was nearer to me than the London one, with that one I just had the injection. Tomorrow is in London and I don't know how they will handle it, hopefully just the injection in the hand lol, I hate the drink too.

I have my loperamide on hand lol wouldn't get past the door without it, I will write to you all when I get back.

You really are a lovely crowd, wouldn't have felt so positive without you all

love to all Dot xxxxxxx

Dot,

I hope I catch you before you go. Hope it goes well I know its not painful or anything but its just seeing Hospitals all the time. I had the 2 ltr drink then another one when I get there and also the canula with the dye in it..Get yourself a nice cuppa when you get home.

My Daughter is coming down today until Sunday and David is away at his friends in Berkshire until Monday so I had a lovely chilled day yesterday on my own. He is going to Kemble Air show tomorrow....

I am looking forward to seeing my new Granddaughter and the Boys as well...

Anyway good luck & hello ladies...

Love Eileen.xx!www.cancerchat.org.uk/.../love.gif!

Hello ladies, finally got the phone call ive been waiting for they have looked at my scan YESSS!!.

and ive got an appointment at 10.am on friday to finally find out if its gonna be surgery or chemo.

bring in on!!! love to you all sharon xxxxx

Hi Ladies

Too much written ion the space of a day for me to remember!

Welcome to our newbie, sorry think it was Anne, as the other have indicated the diagnosis it always a difficult process with much backwarding and forwarding however the explanations of what is happening is usually better than what you describe! Not only is it a scary time but it is the most difficult to get through. Once you have a plan things improve a lot possible cos your 'fighting' it or at least doing something. Have you definately got a tumour/growth on a cyst? I only ask because it should be a tumour/growth on the ovary so you may still be clear on the cancer front. However I would advise not getting to excited purely because its easier to be prepared for the worst and celebrate if it's not!

Dot hope the scan went OK and fingers crossed for Tues. Like you I believe it is what it is - good or bad - and I find this attitude allows me to get on with things and to except the treatment and symptoms with less disruption to my life. If its gonna be limited I want to live it!

Eileen - about to see grand-daughter at last, bet your excited and hopefully your feeling well up to it!

Sharon - only a week to go before you know, enjoy it and treat yourself because once the process starts time will go very quick!

Eileen I know you never mount a response to infection whereas its something I've not had a problem with so far - probably far to common a side effect for me, I only do rare!!!! They went ahead today (despite chesty cough which they ignored!) anyway no problems so far (apart from usual bad veins). Eyes better, much less watery, will be interesting to see if it comes back this time, sincerely hope it was a one off!

Re Kathy and Hilary, if I remember rightly (not likely at present!) one of them logged off permanently while the other one was going to the caravan and didn't expect to post till ?oct.

keep smiling ladies and keep moaning too!

Lots of love

Jackie xxxx

Hi everyone,

scan all done, I was in and out which was great.

Eileen I asked about the drink before you have scan and the nurse told me it was down to Doc preference, luckily the hospital I attend now doesn't use it lol, just the canula in the hand. I have now had three scans and every machine has been different, the first and second were very similar but yesterday was like being in a tumble drier lol I thought something was wrong with it, they scanned me then they put the dye in and scanned again, different to the others I have had.

I am going to ring up on Monday to make sure the results will be there for me on the Tuesday as I am not straggling up there for nothing lol.

stay strong all

Love Dot xxxxxxxx

Hope you enjoyed the weekend with your family, must have been lovely to see your new grand-daughter.

Keep well

Love Dot xxx

Thanks for remembering me and the CT scan tomorrow dont know what to expect really. Think i have to have a canula in my hand but nobody has mentioned a drink this far. also goning to ring my consultant to clear a few things now im not so shocked by the news. can you have a raised tumour marking result for a benign tumour? Theres def a tumour on my cyst described as having a complex nature ???????? oh i dont know.... thanks for everyones kind words and encouragent anyway, your a lovely lot x Hope you ve all had a great week end

love

annie x

Hi Anne

Tumours markers (ca125) are not overly accurate, in some ladies they don't raise at all, mine have only ever got as far as 300 while I've read about ladies with them in there thousands. They can also be raised for other reasons i.e. infections. So you can't rely on them which is why its not used without a CT scan.

I suspect your CT scan will be abdo/ pelvis/chest. So you will have an injection and a drink if your hospital still uses it (some don't apparently!).

Your consultant will know more once the result is back so if you phone make sure you get an appointment to discuss the results and bring someone with you and a pile of written questions! Believe me its the only way, as the conversation progressess you forgot everything you want to ask :confused:

Good luck for tom though its not that bad honest

let us know how you get on

Best wishes

Jackie xxx

Hi ,

I had a lovely time with the Boys, Isabella & Katie, even though it wasn't long enough. They only had Sat with me and had to leave at midday yesterday as its a 4 hour journey. The Baby is beautiful....!www.cancerchat.org.uk/.../happy.gif!

I have to go to Hospital on the 30th for anaesthetic assessment plus investigations carried out ...Any ideas what that is ladies ?

Hope everyone had a lovely weekend .

Love Eileen xxx:love: