Ovarian Cancer

Hi,

I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2  chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..

Parents
  • Hi has you can see im new to this! i was diagnosed in oct 09 after haveing full hysterectomy shocked i can tell you!

    finished chemo in march had ct scan in june told a couple of weeks ago i need t have more chemo and maybe more

    surgery going to hospital this morning for the verdict!! im a 52yr old mom of four and have five grandchidren. its such a relief to talk

    to somone other then family members because its so hard. and my partner isnt copeing with it very well

    ive been told the chemo il be haveing this time is stronger and the hairs gonna go great!!

    anyway thanks wih letting me go on a bit nice to talk to somene in the same boat as me

    best wishes julygirl58 xx

  • Hello and welcome Julygirl,

    sorry to hear you have to have more chemo, and maybe more surgery. Keep us posted about your hospital appointment results.

    Losing my hair wasn't as bad as I thought it would be, I have a wig which I have only worn once, everyone has got used to me without hair now lol.

    It does help having others to talk to with similar problems.

    Dot xxx

  • Hi Ladies,

    Jackie, yes I have to have 2 or 3 more chemo after but at least I know then its finished. I hope your eyes improve and your cold. Its strange as you say how they do things different. The Surgeon did say that he can only tell me if its gone when he opens me up so its still a waiting game. He is or seems to be a very honest Dr. He always asks if he may examine me and doesn't say right lets examine you as alot have done in the past. How long after your first cancer was it Jackie when it returned again ? I don't know about you ladies but as time goes on I don't feel scared, its like you come to except it...

    Dot thank you for the email it was a lovely thought. You are such a lovely lady and I wish I had met you years ago as with all of you.... The Surgeon did say I will have to drink some awful stuff but Hey Ho, at least it should empty the bowels... I am looking forward to the op but it means I can't do any chats on here. I will have my phone with me though so I will have a look to see how you can do emails as its a new phone ..As I said as well the Hotel break is still on the cards or if your not up to it any of you then I will come to you......Fingers crossed then for a sale on the house... Rose I will be at Singleton on ward 20.... Its a pain to get to as in trying to find any department in there...I am not sure if I told you yesterday that I had to have bloods taken and a chest X-ray and also an ESG not sure if you all had to have them. I woould have thought that would be done the day before the operation. Anyway ladies that's all for now... Love Eileen. xxxxxxx

  • Morning Eileen, glad it went ok yesterday im waiting on a phone call to see if il be going in to have surgery.

    or a date to start chemo again other than that my next appointment is 20th oct.il keep you posted.

    lots of hugs julygirl58 xxx

  • Hi Sharon,

    I hope you get the call your waiting for soon, it's awful hanging around for appointments and also adds to the stress...Let us know as soon as you get a date.

    Love Eileen xxx:love:

  • Hi ladies

    The test's are routine before the op, they won't change enough to need re-doing the day before. Look on the bright side if you have bowel prep that should leave you empty for several days which will kept you sorted while you recovery :mischief: . The chemo normallly starts again after 4 weeks. Don't worry about it being gone, they didn't remove a small tumour attached to my bowel, the remaining chemo sorted it and its not come back in that area. I agree that the scary feeling goes, time is a great healer in more ways than one.

    Mine came back 8 months after the last chemo but then I'm not you and as we have discovered we are all the same but different! Cold seems to be better which is suprising as normally lasts for ages, white count is up but I have no doubt they will go ahead Fri - they did last time I had a cold!!!

    Meeting up someday sounds good if we can ever manage to all get post treatment.

    Take care all

    Jackie xxxx

  • hello everyone

    i am new to this site so excuse me if i ramble. i am in the process of being diagnosed with ovarian cancer, it is so scary (understatement) i have been referred from one hospital to one that specialisies in gyne cancer so im guessing i have even though no one has dared say the 'c' word to me.

    any words of encouragement would be great

    annie x

  • Hi Annie,

    Welcome to our little group, It is always nice to hear from someone else ( well I mean that in a good way ....) Not so great for you but if you are diagnosed with C then you have us to try and help you through it....We have Jackie who I call the team leader because she was the first one to reply to me after I was diagnosed.. Then we have the lovely Dot , followed by Rose who is the comic on here.. A new member called Sharon and my mind has gone blank now... That's what happens we worry about so much that our brain cells get confused and we all forgot names of our friends so sorry to anyone I forgot....!www.cancerchat.org.uk/.../confused.gif!

    Anyway I had the same as you in the begining as it was bowel specialist I went to see but he discovered the mass so refered me to gynaecology who then sent me to another Hospital for biopsy. Then I moved to Wales in the process so had the same over again down here..

    I know as we all do its scary but everyday that passes seems to ease the fear you have...Always remember as well your not alone as we are here to listen to you.

    Hope to hear from you soon. Love Eileen xxxx:love:

  • Hi Jackie,

    I don't understand how your white cell count doesn't go down when you have a cold. Mine is down when I feel ok, I always have to be different ha ha ..

    Its always nice to see on here as I have told Annie your are the gaffer so we need you on here....

    Love as always Eileen xxxx:love:

  • Hi jackie

    glad that the cold is easing up and you are feeling a bit better, I will be thinking of you tomorrow.

    Got my ctscan tomorrow which should mean a shorter day than usual at the hospital then back again to chat with the team on Tuesday.

    love Dot xxx

  • Hi Annie,

    it is scary when we go down this route, being able to talk about it with people who are having a similar experience is really great, I hope that we can help you feel less scared and be with you through it all.

    I find that it lessens the pressure on my family, this is my moan zone at times lol and someone always manages to put me back on track with comforting words or even a joke.

    So don't be afraid to ask questions or moan about what gets you down, we will be here for you.

    Dot xx

  • Hi everyone.

    Eileen I had xray and ecg beforehand too, every time I have bloods taken too.

    Strange about the fear going Eileen, I am totally at peace with myself, I decided some time ago, that today is no different to when I didn't have my diagnosis and I really don't know what tomorrow brings, there is no point to me worrying about any of it. I have my results on Tuesday and have just settled myself they will be what they will be. Much better than all the stressing of ...what if...as before. When I read back to my posts I was like a scared rabbit, I have come a long way teehee.

    Love to all xxxxxx

Reply
  • Hi everyone.

    Eileen I had xray and ecg beforehand too, every time I have bloods taken too.

    Strange about the fear going Eileen, I am totally at peace with myself, I decided some time ago, that today is no different to when I didn't have my diagnosis and I really don't know what tomorrow brings, there is no point to me worrying about any of it. I have my results on Tuesday and have just settled myself they will be what they will be. Much better than all the stressing of ...what if...as before. When I read back to my posts I was like a scared rabbit, I have come a long way teehee.

    Love to all xxxxxx

Children
  • Good luck tomorrow flower and yes,you have come a long way and we are all glad that we have been part of it.;)

    Rose xxx

  • Hi Dot,

    Good Luck for tomor with scan....Don't forget the poo tablets,,,, I will be thinking about you ...What time is it at ?? Does it not bother you taking that drink before hand .? I always dread it but have not heard any of you talking about it . Love Eileen xxx

  • All the best for tomorrow Dot il be thinking of you

    julygirl58 xxx

  • Hi Sharon,

    Its funny how quickly we all fit in to this group... I thought those were lovely messages you sent to the girls xxxx

  • Hi Eileen,thanks! just think your all fabulous!! you never know maybe one day we could all meet up even though we live miles apart!!.

    that could be another milestone for us all!! im gonna get my daughter to put my picture on so you can see who your talking to.

    only my good side mind!! take care of you.sharon xxx

  • Hi everyone,

    thanks for the well wishes tomorrow, I am sure everything will be fine.

    Eileen my first ctscan was at my local hospital and I had to have the drink and the injection, the next one was at the hospital I wrote about that was nearer to me than the London one, with that one I just had the injection. Tomorrow is in London and I don't know how they will handle it, hopefully just the injection in the hand lol, I hate the drink too.

    I have my loperamide on hand lol wouldn't get past the door without it, I will write to you all when I get back.

    You really are a lovely crowd, wouldn't have felt so positive without you all

    love to all Dot xxxxxxx

  • Dot,

    I hope I catch you before you go. Hope it goes well I know its not painful or anything but its just seeing Hospitals all the time. I had the 2 ltr drink then another one when I get there and also the canula with the dye in it..Get yourself a nice cuppa when you get home.

    My Daughter is coming down today until Sunday and David is away at his friends in Berkshire until Monday so I had a lovely chilled day yesterday on my own. He is going to Kemble Air show tomorrow....

    I am looking forward to seeing my new Granddaughter and the Boys as well...

    Anyway good luck & hello ladies...

    Love Eileen.xx!www.cancerchat.org.uk/.../love.gif!

  • Hello ladies, finally got the phone call ive been waiting for they have looked at my scan YESSS!!.

    and ive got an appointment at 10.am on friday to finally find out if its gonna be surgery or chemo.

    bring in on!!! love to you all sharon xxxxx

  • Hi Ladies

    Too much written ion the space of a day for me to remember!

    Welcome to our newbie, sorry think it was Anne, as the other have indicated the diagnosis it always a difficult process with much backwarding and forwarding however the explanations of what is happening is usually better than what you describe! Not only is it a scary time but it is the most difficult to get through. Once you have a plan things improve a lot possible cos your 'fighting' it or at least doing something. Have you definately got a tumour/growth on a cyst? I only ask because it should be a tumour/growth on the ovary so you may still be clear on the cancer front. However I would advise not getting to excited purely because its easier to be prepared for the worst and celebrate if it's not!

    Dot hope the scan went OK and fingers crossed for Tues. Like you I believe it is what it is - good or bad - and I find this attitude allows me to get on with things and to except the treatment and symptoms with less disruption to my life. If its gonna be limited I want to live it!

    Eileen - about to see grand-daughter at last, bet your excited and hopefully your feeling well up to it!

    Sharon - only a week to go before you know, enjoy it and treat yourself because once the process starts time will go very quick!

    Eileen I know you never mount a response to infection whereas its something I've not had a problem with so far - probably far to common a side effect for me, I only do rare!!!! They went ahead today (despite chesty cough which they ignored!) anyway no problems so far (apart from usual bad veins). Eyes better, much less watery, will be interesting to see if it comes back this time, sincerely hope it was a one off!

    Re Kathy and Hilary, if I remember rightly (not likely at present!) one of them logged off permanently while the other one was going to the caravan and didn't expect to post till ?oct.

    keep smiling ladies and keep moaning too!

    Lots of love

    Jackie xxxx

  • Hi everyone,

    scan all done, I was in and out which was great.

    Eileen I asked about the drink before you have scan and the nurse told me it was down to Doc preference, luckily the hospital I attend now doesn't use it lol, just the canula in the hand. I have now had three scans and every machine has been different, the first and second were very similar but yesterday was like being in a tumble drier lol I thought something was wrong with it, they scanned me then they put the dye in and scanned again, different to the others I have had.

    I am going to ring up on Monday to make sure the results will be there for me on the Tuesday as I am not straggling up there for nothing lol.

    stay strong all

    Love Dot xxxxxxxx