HI ALL - Well, I had my scan yesterday and I AM IN REMISSION!!! Now, I of course am THRILLED and am sure you are ALL happy for me, however I have had a hard time posting this with the bad news...BUT, then I said to myself - If I can just let them know there is HOPE!!!! AND THERE IS - I am keeping it short as there is not more for me to say...Docotr every 3 months, my port flushed every 6 weeks - I asked for a blood test in six weeks, when port is flushed, and my nurse is more than happy to do so...that way I have a clue of where my #'s are as well as if anything is "off" - I will know then - I will still be here to offfer my prayers, my thoughts, my aches and pains, and best wishes for ALL of you....XXXXXXXOOOOOOOO - Becky

Ata girl Becky.That is such great news and dont ever feel as if you cannot tell good news.This is what keeps us focussed :love:

Get the wine in and have a fab weekend,you deserve it !!

Rose xxxx

Hi all

Rose and Eileen it is good to see your posts. This lot of chemo knocked me off my feet, I realise now that the first cycle had very little effect on me. I am feeling a lot better now but my hands and feet are still tingling slightly, not so much of the aching legs now and a very sore scalp. Great fun isn't it lol.

Rose it is good to hear that the new baby is settling in nicely and sorting out her parents lol.

Eileen hope all goes well with you tomorrow, sorry to hear you haven't been well.

Hope everyone else is doing ok

Dot xxxxx

Hi Ladies

Rose - I wish! Got a meeting with HR on Wed where I assume they will terminate me! Still no idea (despite paperwork) what I will get but its got to be better than nothing

Liz - hope today goes OK

Dot - totally agree not sure what's hit me this time, don't remember feeling like this last time! Totally washed out, really tired eyes and has lasted right through till today! eyes still tired but at least energy is sort of back. Don't worry about the feet it will get worse but you get used to it, if it gets really back they will decrease dose to taxol or swap to Doxil like me.

Can't believe chemo is due again Fri, where have the last 3 weeks gone! after Fri I'm half way through so your nearly there to Dot and Liz you'll be finished

Have kept an eye on forum but as nobody posting and I didn't have anything to say and was feeling sooooooooooo tired I didn't post, will try harder next time!

Good luck everyone

Jackie xxxxx

Hi Ladies

Hope everything is going ok! Brain head again so can't remember where your all up to, but I think Liz should have now had her last one - so hope your not feeling too bad and at least you know its all over and done and you won't have to feel this way for a long, long time.

I'm now 3 down 3 to go! Ct scan next Thurs and oncol appoint the Fri after. CA 125 down to 23 and muscles much better so all looks promising!

Chins up cos we're getting there

Jackie xxxx

Hi Everyone,

glad your all doing ok. I was in again overnight on Monday, I should have been having my last chemo on Tuesday but they phoned Monday at 5pm to say blood count was 1.2 so couldn't have it. I told them how ill I have been feeling with sore throat, & earache last weekend and then on Saturday night my left knee started paining me. I very sore and I can't walk was hobbling around, anyway they said I needed to get it checked out so went to my GP I actually got in to see him at 5:25 ( they are great down here ) Anyway the Dr thought I had fluid on the knee so sent me to A&E. They ended up keeping me in to do an ultrasound scan on it. Tuesday they couldn't get the scan done so let me out and I went back Wed for it. It was clear as they thought I may have had a clot. Its just Inflammation but both knees are very far.

I am supposed to be having my chemo next week now but I have told them I just can't take another one, so I will speak to DR. My scan is next Thursday Jackie. That's great news about the tumour marker...:love: Love to all of you.

Eileen. xxxxxxxxxxxxxxx

Hi all

Jackie

great news, I hope things continue to improve for you and that you are feeling better.

Eileen you really do go through the mill, it is awful you have to be in hospital so often, I hope your scans are really good and that you feel in better health soon.

I have been ok, just waiting for Friday for my 3rd chemo, then 17th for ctscan to see if there is any improvement, so not really sure what happens next, they said they wouldn't continue with the chemo if it had grown but I would be handed over to the lung team, they have a different type of chemo, just waiting to see and being positive until I am told otherwise.

Rose I hope you are doing ok too.

Love Dot xxxx

Hi Eileen,

Hope all goes well tomorrow and you get really good results,its about time you had good news.Really praying for you:love:

Rose xxx

Hi Jackie,

Hope things go well for you tomorrow.Only good news allowed this week ;)

Rose xxx

Hi all,

Well I had my scan yesterday but unfortunately I had severe runs so I couldn't hang around to see the Dr. I have an appointment for next Thursday 8th to see him in clinic & then he will have seen the scan result... Not sure why I had the runs but I still have it today.

Good luck for your chemo tomor Dot & for the 17th. I am still not great and keep feeling sick. Do any of you get it ? I am afraid my knees are still bad and don't see them improving either. I am contemplating getting a stick but then I think I will start to depend on it...

We are moving at the end of the month, so looking forward to that as the house is lovely and alot warmer than this old cottage.

Jackie I have missed some of your messages so will read them now... Still not seen my Grandaughter as now up to it. She will be at school at this rate before I go...

Love to all Eileen. xxxxx:love:

Hi all

Eileen sorry about your upset tum, I can't think of anything worse!! Do you take loperamide? I take it before chemo otherwise I wouldn't be able to go. You are still having a dreadful time of it!!

I felt sick but I took the tablets they gave me and so far I have been ok. I have two lots to take for three days, but one pack says to take if feeling sick, I continue with them until I feel ok. (There are more of them). I still have no energy and my legs feel like lead. The vein in my hand is like an undercooked piece of spaghetti lol.......oh the joys of it all.......... I am really not looking forward to tomorrow, why are these hospitals never on the doorstep lol.

Moving house, something for you to look forward to and just at the right time if the cottage isn't warm, the weather will soon be much colder.

I can only hope that things will get better for you, it is so wearing.

Hope everyone else is ok.

Love Dot xxxxxxx

Hi Dot,

Just want to wish you well for tomorrow.You poor thing,you are suffering so much.

Another one nearer to the end of treatment.:love:

Good luck flower,

Rose xxx

Hi Dot,

Just want to wish you well for tomorrow.You poor thing,you are suffering so much.

Another one nearer to the end of treatment.:love:

Good luck flower,

Rose xxx

Hi Rose,

thanks for thinking of me, the chemo is part of the package, seems not many get away without some discomfort, I could think of better things to do in London tomorrow lol.

stay well

Love Dot xx

Hi Ladies

Dot- hope everything went ok for you today and your not to bad over the next week, hang in there your half way though!!!!!!!!! Will be thinking of you on the 17th.

Eileen - good luck with the house move, it will be nice to be somewhere both new and warmer! Sorry to hear about the tum, I do find the contrast with the ct scan can do that but it normally settles quick (next day). Hope you continue to improve and get some good news next week.

I to had CT yesterday but won't get the results till next Fri, I not expecting them to be bad Rose as my muscles have improved so it must be working! Mouth looks like its about to come back on-line thou its still a bit sore at the mo. Have had a good week energy wise so fingers crossed for next week which would mean the triedness from last time was a one off! Seem to be bleeding nicely at the moment so shouldn't have to worry about clots for another few weeks! Not posting that much at present as I find my eyes are very watery and I get headaches if I use the computer, this seems to have been a problem since the second dose and I don't really know whats causing it (apart from the obvious chemo!), will try and remember to discuss it next Fri lol.

Long time since we heard from Jayne I do so hope and pray she's ok.

Best of luck to all

Jackie xxxxxx

Hi all,

it was a long day yesterday, seems the lab was very busy had to wait two and a half hours for the results of bloods, all in all I was there nine hours lol. My husband took the car this time and managed to park but was only allowed four hours and not to return to any of the bays in that section, he had to move three times, we went through the congestion zone and had to pay that, but they said we may be able to claim some back. We didn't mind as taking the car was half the price of a taxi and we had the comfort of our own car, it also kept hubby busy lol.

I asked about my sore scalp and I have an infection in the hair follicles, I now have cream for that.

I have a very dry mouth this time, kicked in last night, nothing else much at the moment.

Jackie I hope your eyes sort themselves out, I had that for a short while last time and I too can't sit at the computer for very long, but mainly because of the aching legs lol I sound like a hypochondriac.

Eileen Rose and anyone I have missed hope you are hanging in there. I do worry about Jayne too Jackie, it is a very long time since we heard from her.

Love to all xxxxxxxx

Hi Dot & Ladies,

You poor thing its bad enough having to go to these places but having the hassle trying to park is a pain. I have a blue badge now as I can't walk far. You should get one as you / we all need as much help as we can get. Speaking of help There is a fantastic Cancer Care organisation here in Cardigan its run by a Lady who lost her husband when he was in his 30s, its over 20 years ago and she does great work with about 6 other ladies.

I hope this treatment isn't to bad on you. I am still feeling sick after 6 weeks and very low most days. I just said to my partner I am fed up with complaining but when they ask how you are you tell them. ( I suppose I should say I am ok ) I don't know about all of you but the road to recovery seems to be getting longer. Sorry for moaning Dot as you are having it tougher than me.

Anyway Jackie hope your eyes get better and Rose hope you are doing ok. Sorry if I forgot anyone and Love to you all..:love: Eileen xxxxxx

Dear Eileen,

I think you are having a rough deal and I have nothing compared to what you are going through, I have small irritations but whining about them often helps lol, there is no way that you should keep these things away from others thinking you are moaning, the fact you are having trouble walking shows what a bad time you are having. I hope things start looking up for you, like you said in your mail the road does seem to be getting longer but we do what we have to do.

I know I don't have a very good prognosis but you know my state of health at the moment doesn't give me cause to worry, I will hear more after the ctscan but have decided I will go off how I am feeling and not what they are saying, lol call me an ostrich if you like lol.

I am hoping you are now on the mend Eileen, you deserve it after all the strugging.

Lots of love Dot xxxxxxxxx

hi Dot & Eileen

I to think your both having a much harder time than I am! I think we accept our own symptoms but when we read about other think how horrible that sounds!

Like you Dot my prognosis is poor, and I think you summed it up really well. Its not being an ostrich if you accept whats said and temper it with how your feeling (in my opinion anyway). Apart from chemo signs my body feels fine thank you and if this doesn't fit with the prognosis thats there problem :) when the time comes I'll know and I'm sure you will too. I refused an actual prognosis as I don't want to live ticking each day off preferring to live each day as it comes but I accept my time is limited.

Hopefully we'll all have a good week with our various appoinments, as Rose says good news only.

Jackie xxxx

Hi to you brave ladies. Just thought I'd post to tell you all that mum (Jayne) lost her battle with cancer on the 3rd of September. She was diagnosed in July. I'm always reading the thread and it's amazing how strong all you ladies are. Ben x

I am so sorry Ben.I hope you will remember her as the person she was and eventually the memory of her illness will fade.Thank you for contacting us and come back to let us know how you are getting on.

Rose xxx

Hi Ben

I am so sorry to hear about your mum, we have all been concerned about her, thank you for letting us know.

My thoughts are with you and your family, I wish I could say more to you, but know we are always here if you need to talk.

Much love to you all

Dot xx

Dear Ben,

I am so sorry to here about your Mum and very shocked, she looked a beautiful woman. I thank You for letting everyone know.

Please pass on my condolances to your family and keep strong.

Love Eileen. xx