Ovarian Cancer

Hi,

I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2  chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..

Parents
  • HI ALL - Well, I had my scan yesterday and I AM IN REMISSION!!! Now, I of course am THRILLED and am sure you are ALL happy for me, however I have had a hard time posting this with the bad news...BUT, then I said to myself - If I can just let them know there is HOPE!!!! AND THERE IS - I am keeping it short as there is not more for me to say...Docotr every 3 months, my port flushed every 6 weeks - I asked for a blood test in six weeks, when port is flushed, and my nurse is more than happy to do so...that way I have a clue of where my #'s are as well as if anything is "off" - I will know then - I will still be here to offfer my prayers, my thoughts, my aches and pains, and best wishes for ALL of you....XXXXXXXOOOOOOOO - Becky

  • Ata girl Becky.That is such great news and dont ever feel as if you cannot tell good news.This is what keeps us focussed :love:

    Get the wine in and have a fab weekend,you deserve it !!

    Rose xxxx

  • Hi everyone,

    long day but it is over and really uneventful, two down.........lol

    Rose congratulations on the arrival of Annabell, another big baby wow, and hair, that is something my family never have, not sure it is because we are blondes but all our babies are bald lol.

    What wonderful news from you and Eileen, two beautiful new babies!!!

    Hi to you too Jackie and anyone else I missed.......hope you are all keeping well and strong......!!!

    Love Dot xx

  • Hi Ladies

    Congratulations rose! sounds like a nice healthy size!

    Dot did you go monk style???? Glad the chemo went ok!

    Eileen - just imagine how good you'll feel when you don't have to worry about the next dose! the sooner its done the sooner you can get back to 'normal', 1 more lot of misery for 2 weeks then months/years free, gotta be worth it!

    I'm doing ok, mouth still the major problem but seems to be settling so I guess this is going to be 'normal' for the 10 days following each dose! fingers crossed it will be gone by Mon (like last time) then I can have nearly 2 weeks of normal food!

    G;ad everyone doing ok

    Jackie xxxx

  • Hi everyone,

    Jackie I put this beautiful scarf on my head twiddled it on one side and draped on to my neck, it looked quite elegant, or so my husband said lol.....so I wore that, but I have to be honest I felt I would have been just as comfortable with the monk lol.

    Hoping my chemo would be similar to last one, I can do that lol..........or is my memory short lol. Hope yours settles soon Jackie.

    Doc asked what side effects were, when I mentioned the cold sweats, she said it COULD (not was) be a sign the disease was still active, menopausal etc. I am still going with.......I will live each day as it comes, singing..........who knows what tomorrow bringssssssssss lol

    Love Dot xxxxx

  • Hi Dot & Ladies',

    I am sure you looked elegant as the scarves can look so nice. David alway's knows where I am when go to Tesco as he spots my scarf....I think the cold sweats are just the chemo as I still get them with my chemo. I have had the dreaded drink sent this morning in the post, my scan is booked for the 1st Sept so not long really and its all done with....

    Jackie I am sorry your mouth is still sore, did you try the Hydrogen peroxide ?

    Well I am off to a food festival in Cardigan today so it should be good as there are belly dancers and singers on......Hope you all have a lovely weekend and the weather is good....

    Love Eileen. xxxxx:love:

  • Ladies' where are you ?????

    I have been worried as none of you have been on site.

    I hope your all ok and not ill after the chemo. I hope to hear from someone today as its spooky not having any emails.....

    Love Eileen xxxx:love:

  • Hi Eileen,

    Hope the baby is doing well.My son and DI Law have stopped holding her as if she is made of glass and after just 1 week it seems as if the house has always been full of baby things.

    How is your treatment going? i hope you are not suffering as much.

    Time for a roll call for everyone I think to stop us worrying.

    DOT how are things?You cant be out enjoying the sunshine coz there is not much of it around any more.

    JACKIE Have you retired and left the country to live in the sun?

    JAYNE How is your treatment going.We all hope things are improving for you.

    HILARY you are due back tomorrow so hope you will sign in then

    BECKY youve done a runner .Hope you are enjoying the Vermont summer.

    Anyone else welcome

    Rose xxx

  • Rose,

    How do you remember everyone ? I had my treatment put back a week so its my last one tomor. I have been ill again though as I have trouble with my legs and sore throat plus earache, so not had a great week. I have not seen the baby yet and it will be Sept now I think before I can face the drive up to Manchester....I thought I would strart to feel better but no. I had my bloods done today so hopefully no infection......

    Speak soon and glad to know that your out there as I miss all our chats.... Hope Jackie & Dot are doing ok ... xxxxxxEileen :love:

  • Hi all

    Rose and Eileen it is good to see your posts. This lot of chemo knocked me off my feet, I realise now that the first cycle had very little effect on me. I am feeling a lot better now but my hands and feet are still tingling slightly, not so much of the aching legs now and a very sore scalp. Great fun isn't it lol.

    Rose it is good to hear that the new baby is settling in nicely and sorting out her parents lol.

    Eileen hope all goes well with you tomorrow, sorry to hear you haven't been well.

    Hope everyone else is doing ok

    Dot xxxxx

  • Hi Ladies

    Rose - I wish! Got a meeting with HR on Wed where I assume they will terminate me! Still no idea (despite paperwork) what I will get but its got to be better than nothing

    Liz - hope today goes OK

    Dot - totally agree not sure what's hit me this time, don't remember feeling like this last time! Totally washed out, really tired eyes and has lasted right through till today! eyes still tired but at least energy is sort of back. Don't worry about the feet it will get worse but you get used to it, if it gets really back they will decrease dose to taxol or swap to Doxil like me.

    Can't believe chemo is due again Fri, where have the last 3 weeks gone! after Fri I'm half way through so your nearly there to Dot and Liz you'll be finished

    Have kept an eye on forum but as nobody posting and I didn't have anything to say and was feeling sooooooooooo tired I didn't post, will try harder next time!

    Good luck everyone

    Jackie xxxxx

  • Hi Ladies

    Hope everything is going ok! Brain head again so can't remember where your all up to, but I think Liz should have now had her last one - so hope your not feeling too bad and at least you know its all over and done and you won't have to feel this way for a long, long time.

    I'm now 3 down 3 to go! Ct scan next Thurs and oncol appoint the Fri after. CA 125 down to 23 and muscles much better so all looks promising!

    Chins up cos we're getting there

    Jackie xxxx

Reply
  • Hi Ladies

    Hope everything is going ok! Brain head again so can't remember where your all up to, but I think Liz should have now had her last one - so hope your not feeling too bad and at least you know its all over and done and you won't have to feel this way for a long, long time.

    I'm now 3 down 3 to go! Ct scan next Thurs and oncol appoint the Fri after. CA 125 down to 23 and muscles much better so all looks promising!

    Chins up cos we're getting there

    Jackie xxxx

Children
  • Hi Everyone,

    glad your all doing ok. I was in again overnight on Monday, I should have been having my last chemo on Tuesday but they phoned Monday at 5pm to say blood count was 1.2 so couldn't have it. I told them how ill I have been feeling with sore throat, & earache last weekend and then on Saturday night my left knee started paining me. I very sore and I can't walk was hobbling around, anyway they said I needed to get it checked out so went to my GP I actually got in to see him at 5:25 ( they are great down here ) Anyway the Dr thought I had fluid on the knee so sent me to A&E. They ended up keeping me in to do an ultrasound scan on it. Tuesday they couldn't get the scan done so let me out and I went back Wed for it. It was clear as they thought I may have had a clot. Its just Inflammation but both knees are very far.

    I am supposed to be having my chemo next week now but I have told them I just can't take another one, so I will speak to DR. My scan is next Thursday Jackie. That's great news about the tumour marker...:love: Love to all of you.

    Eileen. xxxxxxxxxxxxxxx

  • Hi all

    Jackie

    great news, I hope things continue to improve for you and that you are feeling better.

    Eileen you really do go through the mill, it is awful you have to be in hospital so often, I hope your scans are really good and that you feel in better health soon.

    I have been ok, just waiting for Friday for my 3rd chemo, then 17th for ctscan to see if there is any improvement, so not really sure what happens next, they said they wouldn't continue with the chemo if it had grown but I would be handed over to the lung team, they have a different type of chemo, just waiting to see and being positive until I am told otherwise.

    Rose I hope you are doing ok too.

    Love Dot xxxx

  • Hi Eileen,

    Hope all goes well tomorrow and you get really good results,its about time you had good news.Really praying for you:love:

    Rose xxx

  • Hi all,

    Well I had my scan yesterday but unfortunately I had severe runs so I couldn't hang around to see the Dr. I have an appointment for next Thursday 8th to see him in clinic & then he will have seen the scan result... Not sure why I had the runs but I still have it today.

    Good luck for your chemo tomor Dot & for the 17th. I am still not great and keep feeling sick. Do any of you get it ? I am afraid my knees are still bad and don't see them improving either. I am contemplating getting a stick but then I think I will start to depend on it...

    We are moving at the end of the month, so looking forward to that as the house is lovely and alot warmer than this old cottage.

    Jackie I have missed some of your messages so will read them now... Still not seen my Grandaughter as now up to it. She will be at school at this rate before I go...

    Love to all Eileen. xxxxx:love:

  • Hi all

    Eileen sorry about your upset tum, I can't think of anything worse!! Do you take loperamide? I take it before chemo otherwise I wouldn't be able to go. You are still having a dreadful time of it!!

    I felt sick but I took the tablets they gave me and so far I have been ok. I have two lots to take for three days, but one pack says to take if feeling sick, I continue with them until I feel ok. (There are more of them). I still have no energy and my legs feel like lead. The vein in my hand is like an undercooked piece of spaghetti lol.......oh the joys of it all.......... I am really not looking forward to tomorrow, why are these hospitals never on the doorstep lol.

    Moving house, something for you to look forward to and just at the right time if the cottage isn't warm, the weather will soon be much colder.

    I can only hope that things will get better for you, it is so wearing.

    Hope everyone else is ok.

    Love Dot xxxxxxx

  • Hi Dot,

    Just want to wish you well for tomorrow.You poor thing,you are suffering so much.

    Another one nearer to the end of treatment.:love:

    Good luck flower,

    Rose xxx

  • Hi Rose,

    thanks for thinking of me, the chemo is part of the package, seems not many get away without some discomfort, I could think of better things to do in London tomorrow lol.

    stay well

    Love Dot xx

  • Hi Ladies

    Dot- hope everything went ok for you today and your not to bad over the next week, hang in there your half way though!!!!!!!!! Will be thinking of you on the 17th.

    Eileen - good luck with the house move, it will be nice to be somewhere both new and warmer! Sorry to hear about the tum, I do find the contrast with the ct scan can do that but it normally settles quick (next day). Hope you continue to improve and get some good news next week.

    I to had CT yesterday but won't get the results till next Fri, I not expecting them to be bad Rose as my muscles have improved so it must be working! Mouth looks like its about to come back on-line thou its still a bit sore at the mo. Have had a good week energy wise so fingers crossed for next week which would mean the triedness from last time was a one off! Seem to be bleeding nicely at the moment so shouldn't have to worry about clots for another few weeks! Not posting that much at present as I find my eyes are very watery and I get headaches if I use the computer, this seems to have been a problem since the second dose and I don't really know whats causing it (apart from the obvious chemo!), will try and remember to discuss it next Fri lol.

    Long time since we heard from Jayne I do so hope and pray she's ok.

    Best of luck to all

    Jackie xxxxxx

  • Hi all,

    it was a long day yesterday, seems the lab was very busy had to wait two and a half hours for the results of bloods, all in all I was there nine hours lol. My husband took the car this time and managed to park but was only allowed four hours and not to return to any of the bays in that section, he had to move three times, we went through the congestion zone and had to pay that, but they said we may be able to claim some back. We didn't mind as taking the car was half the price of a taxi and we had the comfort of our own car, it also kept hubby busy lol.

    I asked about my sore scalp and I have an infection in the hair follicles, I now have cream for that.

    I have a very dry mouth this time, kicked in last night, nothing else much at the moment.

    Jackie I hope your eyes sort themselves out, I had that for a short while last time and I too can't sit at the computer for very long, but mainly because of the aching legs lol I sound like a hypochondriac.

    Eileen Rose and anyone I have missed hope you are hanging in there. I do worry about Jayne too Jackie, it is a very long time since we heard from her.

    Love to all xxxxxxxx

  • Hi Dot & Ladies,

    You poor thing its bad enough having to go to these places but having the hassle trying to park is a pain. I have a blue badge now as I can't walk far. You should get one as you / we all need as much help as we can get. Speaking of help There is a fantastic Cancer Care organisation here in Cardigan its run by a Lady who lost her husband when he was in his 30s, its over 20 years ago and she does great work with about 6 other ladies.

    I hope this treatment isn't to bad on you. I am still feeling sick after 6 weeks and very low most days. I just said to my partner I am fed up with complaining but when they ask how you are you tell them. ( I suppose I should say I am ok ) I don't know about all of you but the road to recovery seems to be getting longer. Sorry for moaning Dot as you are having it tougher than me.

    Anyway Jackie hope your eyes get better and Rose hope you are doing ok. Sorry if I forgot anyone and Love to you all..:love: Eileen xxxxxx