I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2 chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..
That is a great name for a book Ha Ha,,,, If calender girls can do it then so can we......
I am off to see surgeon today so happy but nervous as I hate them pressing my stomach as it feels delicate ( not sure about you ) Anyway this is the day I have waited for so will let you all know what he say's when I come back....
Good luck Eileen, am thinking of you today and hoping all goes as you wish.
I am tons better today. The aches have gone and my tastebuds are beginning to come back. The only thing is my legs don't seem to belong to me a bit jellified but I can cope with that now the pains gone.
Thanks for the giggle Rose just what we need.
Hope you are improving Jayne and well on the way to being up and about again.
glad your feeling better, that aching legs is terrible and no matter what you do it wont go.
I had an uneventful day and wasted really as the Surgeon had not actually seen the CT Scan only the report. So they will bring it up once again at the meeting tomor. I also found out that they had found nodules in my pelvis high up and I hadn't been told in Manchester about it. He is not sure if an operation is going to be needed as if its gone why put me through that and if he operates and takes everything away then I have it somewhere else then why put me through it. So again its a waiting game... Dot I had very bad ibs and waited an hour before going in so you can imagine how I was ( I was thinking of you ) Anyway I ended up ladies with an internal and a rectum internal ( yes Dot you heard right ) Ha Ha... It could only happen to me.
Well I hope everyone is good and you Jackie are still feeling good. I await some messages later.
Poor Eileen, going through all that and they can't get there act together, what is it about reading the report and not seeing the scan................ same happened to me I had a planned op date, then they looked at the scan during the MDT and found far more than had been reported, the secretary phoned and said op cancelled but didn't know anymore. I survived about an hour before phoning back and insisting on speaking to the consultant (no way could I have coped all weekend as the only reason I could think of was that it was inoperable). That was when he decided to do the 3 doses of chemo pre-op. When is he getting back to you? Assume he found nothing on the internals and that is forming the basis of his decision.
Glad things are improving Hilary, I don't seem to get the aching you poor ladies complain of (thankfully) but nor does my taste improve much (least not that I can remember!). Very tired today, keep droping off like a very very old lady lol. Taste getting worse if thats possible! Hopefully things will start getting back to normal from tom, feet still warm so ain't clotted off yet, fingers are not too tightly crossed!
Would be nice to hear from Jayne, been 7 days since the laproscopy so would have hoped she'd be home by now.
Kathym How you doing post chemo?
Dot hope your well, take advantage of being able to taste things! Roll on Friday so you can get started then we'll all be finished before we know it
I am sorry it was a wasted journey, it is so frustrating after building up your hopes and letting you down like that. Sorry you are playing the waiting game it drives me to distraction. I agree about not operating if it is gone, why go through all of that but you must be left wondering why Manchester didn't inform you about the nodules found in the pelvis. Did they say that Manchester was aware of the nodules, because as I said in an earlier post my first diagnosis was a 17cm mass. At the meeting they said they didn't know what they would find until they operated and examined the mass, but while I was on the ward waiting for the op they told me there were two, I was totally shocked, outcome was two ovarian cysts.
I hope you are more informed tomorrow after the meeting, I will keep you in my thoughts and prayers.
Oh no, I feel for you about the IBS unless someone suffers from it they can't possibly understand how debilitating it is!! I too had internal and rectum, over the months, I had so many I became accustomed to them lol.
I was wondering whether there would be a problem taking loperamide with the chemo, so I did a search and some people are treated with it if chemo upsets their tums, but I will ask before I use it.
No he said he was very pleased to at the outcome of internals as he couldn't find anything. I am not sure now if he say's yes to op if I will go ahead with it. Its a hard decision to make for me as I feel that they are not telling me everything or it could be paranoia setting in. Manchester said it was only in ovarie so unless they had grown since Feb. Anyway I wont hold my breath for a phone call. I am hoping my white cell count is low next week so I don't have to have the chemo.
I am well thank you, I really don't want to think about what side effects I will get, but my mind has been through them all, but as you say it is a small price to pay to get rid of this disease. Hope you are still feeling reasonably good, if there ever a good with chemo?
Eileen, I feel for you, it is the uncertainty of it all that makes us paranoid. If he does decide you need op, make sure you ask all the questions that are worrying you before you make your decision. I just want to give you a big hug, I am keeping you in my prayers and thoughts.
Eileen you need to think up some questions, I would have confidence in whats suggested from the meeting tom as all relevant parties discuss the results and the best way to go. But you still need to be ready with questions to put your mind at ease i.e. if you don't have hysterectomy is it more likiely to come back there or is it better not to have hysterectomy unless it comes back there. Just keep in mind how 'lucky' you are for your tumour to be so sensitive to the chemo I still feel this is what will stand you in the best staid for the future.
Dot, course there's good with chemo! But it does take some adjusting to and we are all so different. I know I felt I had to complain about my taste last time or otherewise I wouldn't have had anything to complain about lol.
Oh what a waste of time and a horrible wet day to boot.Why cant they all get their stories sorted beforehand.Hope you dont have to wait too long before you have some news.
