I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2 chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..
Hello ladies I have only just found this chat page and having read the posts can really identify with you all.
My first experience of Cancer was way back in 2001 when I was diagnosed with stage 2C Ovarian. I had a full hysterectomy, removal both ovaries and omentum. I then underwent 6 3 weekly chemotherapy sessions of taxol and carboplatin. It was hard at first when the 3 weekly appointments went to 6 then 12weeks then 6months then yearly. It did get easier as time went on and I knew it was only a phone call away if I had any problems.
I have had a full and active life since until the bombshell in November last when having a few problems going to the loo bowelwise I mentioned it at my yearly checkup. Scan followed confirming a tumour in pelvic area followed by exploratory op in Feb which showed I would need a colostomy. March 10th came and I underwent the op. No colostomy as the tumour was attached to the bowel and bladder and there were signs in the peritineum. It was decided after much discussion whilst I was on the table to repair a hernia which I had developed, take the top off the tumour and drain. I have made a good recovery from the op and am due to have my 4th chemo on 14th July - taxol and carbo again. I have also opted to go on a trial for a new drug so am monitored a little bit more with more frequent follow ups and scans in the next 18 months.
I'm trying to remain positive and it sounds as though you all are.
You sound so as a matter of fact about this whole thing. I hope your Chemo went ok yesterday, and I suppose your full of steroids now so will be buzzing about for a few days. Hello to my other firends, we should think of a name for ourselves. I like you Jackie can't remember who is having what this week. I think you are having the chemo again and not sure if Dot or Kathym are as well. Sorry but I think your brain cells are effected by all this as I can't remember anything....
Anyway good luck to all of you who are having the treatment this week. We should all make a date to meet somewhere when we have finished our treatment and have a good laugh. I am sure we would be thrown out of a place if we got together, but its something to aim for.....
Take Care my Friends.... Eileen.xxxxxxxx
I have a question for you, do you know how long I will have to wait before my operation ? I know all you ladies had your ops before the chemo but I am wondering about will the surgeon say tomor I have to wait until the chemo is out of me or does it not work like that. Maybe its you can't have the chemo for so long after the op. If you understand that. I am so excited about going that I am thinking all sorts of things...
Also some things I remembered before to tell you all. After my chemo I got very sore underneath ( if you know what I mean ) So I had salt baths which eased it fantastic, plus I got peppermint cordial in and drank it with hot hot water as I got trapped wind, plus terrible heartburn & indigestion so I have omeprazole, now I have a hiatus hernia so it could be because of that so maybe you won't get that. I am just trying to help you all before things take hold. If there is anything else I can think of I will forward.. Hope your feeling good still.
Hello everyone I have not been online over the past few days. Spent yesterday in bed, washed out and achey after Wednesdays chemo. Still a bit achey today but gradually getting better. Hope you manage to get to Manchester for the birth Eileen something to really look forward to. My grandchildren certainly give me a reason to battle on. Hope everyone else is doing alright and getting the treatment and answers they need.
This will they wont they isnt helping but thankfully you have a definite date.Dont let tomorrows worry spoil todays joy.(we should start a thread of how many cliches we have heard since being diagnosed ).The dreaded waiting again !
Dot I'm sure its better to get treatment started not least because of the worry aboout what its going to feel like, its not bad honest but Eileen's right, indigestion is not good (I to am on Lanzopranol but worked better when I only took it post chemo!), taste in mouth is indecribable and tonge sore (burning), nothing tastes right but the worst is even what I can taste disappears as soon as its swollowed!!! By the same token its a small price to pay to beat the cancer.
Eileen, I had 3 doses of chemo then the operation after either 3 or 4 weeks (can't quite remember) and the chemo was supposed to start again 3 weeks later.
Wish this site allowed the posts to be displayed as you responded so you could see whats been said before! Now going to try and copy it to see if I can get round my pathetic memory!
poor you, I only get the odd ulcers but I use Hydroghen peroxide spelling wrong. Its great for mouth ulcers. I also have that yellow stuff to get rid of thrush. I have a basket full of tablets. God its awful isn't it. Bad enough having chemo and then all the side effects after. They don't give you long to get over the chemo then before they operate. I am focusing on Christmas to give me something to look forward to.....
Love to all xxxxxxxxxxxxxx
Me again, just read some old messages and we all sound like we are losing our memory as none of us can remember what the others have said. Its funny we should write a book on our stories it would make a good comedy....xxxx
Reading my post I need to remember to use the spell checker!!!!!!!!!!
Synopsis:
Eillen - surgeon apppointment tom - hope I got that right Best of luck and will be thinking of you.
Hilary - had chemo 14th July so assume due again 4th Aug
Kathym - had chemo 13th July so assume due again 3rd Aug
Dot - due to start chemo 23rd July
Jayne had surgery 13th July.
Me - Chemo next 6th Aug. Got Onc appoint 23rd July but not sure why!
Hope that helps :)
Eileen, to be honest I've had taste problems since I increased the steroids a month ago, have used Nystatin (yellow stuff) twice and works while I use it but comes straight back when I stop. Have tried various mouthwashes with no luck either though hydrogen peroxide wasn't one of them, so may give that a try until my appoint on Fri when hopefully he can sort me out!
That is a great name for a book Ha Ha,,,, If calender girls can do it then so can we......
I am off to see surgeon today so happy but nervous as I hate them pressing my stomach as it feels delicate ( not sure about you ) Anyway this is the day I have waited for so will let you all know what he say's when I come back....
That is a great name for a book Ha Ha,,,, If calender girls can do it then so can we......
I am off to see surgeon today so happy but nervous as I hate them pressing my stomach as it feels delicate ( not sure about you ) Anyway this is the day I have waited for so will let you all know what he say's when I come back....
