I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2 chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..
Thanks for the welcome Kathym, I am so glad to be part of this group. I hope everything works out with the carboplatin.
Eileen, I am pleased about your news. I was told my tumours had to be removed, no other options were offered, so I have no idea about shrinking tumours etc, I am sure the best decision will be made for you. I understand the worry of it coming back.
I just think it is wonderful that the tumour has shrunk so much!!
Looks like things are all going well! Kathy with the carbo, on the american sites they seem to use each of the drugs on there own at times with just as good results, Eileen, yes I know what mean but I don't think physically removing the tumour is any more effective than destroying it with chemo so I would leave it to the experts, the MDT is good because a different range of onc and surgeons 'argue' what they think is the best way to go, this means there are less 'bad' judgements and on the odd occassion somebody will spot something that the others haven't seen. Very impressed at the shrinkage and I think this is what will stand you in good stead as your tumour is obviously very sensitive to the chemo which I think is the best possible news (surely its got to equate with it staying away longer??? and if not it should respond well again if needed).
Everybody sounding up-beat, so keep up the good fight and make time for fun.
I have some more news for you, I had a phone call yesterday morning to say that I am having surgery and I will get a letter in about 2 weeks. Anyway I had a phone call this morning to say I have an appointment for 13th July ( Tuesday ) to go and see the surgeon. So things are moving fast for me. I am having my operation at Singleton which is in Swansea, the reason I am having it at a different Hospital is because when I moved down to Wales in March I had all my medical records transfered and that was the Hopsital that I was given. However because I needed to start the chemo quickly I was sent to Bronglais ( I love it there I think I said before ) Anyway Singleton is a larger and a bit more modern than Bronglais and my Dr suggested the op there.
I would like to know though Ladie's what the surgeon does when you go and see him ( I hope no internals ) but I want to know if it is so I can sort my ibs out ( Dot you know what I mean ha ha )
I am thinking of you all now esp you Jackie & Dot as your chemo is soon.....
Keep messaging as its great to have you all to offload to.... xxxxxxxx:blush:
Welcome to Singleton !!!I had my op in Llanelli but have all other treatment in Singleton.Let me know if you want any info as to getting there etc.Have you someone going with you ?Cant help with the details as mine is BC.Shopping afterwards in Swansea i hope .
I had to have an internal but don't forget I had op before the chemo so you may not follow my experience. I know exactly what you mean about the IBS it is the bane of my life. I just warned them that I had little control over my bowel and on their heads be it lol.
The rest of the consultation was discussing what they were going to do, depending on what they found during the op.....it was a case of+ we may have to do this if we find that.+ So I didn't find out until it was all done and dusted lol
I have a kidney function test and another ct scan tomorrow and I will be at the hospital all day, so I will be in a state with my IBS lol it is never ending with me. The IBS bothers me over everything else.
Hope tomorrow goes well Dot.You really are going through the mill I wish I knew of something to ease your IBS,a friend of mine has it and is always stressed when we are out.If hugs could cure it you would be OK.
We are doing very well ladies, we could soon start a football or Rugby team the way we are going. Thank you for your kindness on getting to Singleton. My partner David will take me but parking is a big issue there as last time he had to drop me off and find somewhere to park. So if you know any place we can park it would be great.
I look forward to hearing from you later. Eileen. xx
Parking is a pain on some days and the busiest clinic day is ........................Tuesdays !!! I,m afraid it is a matter of looking for a space in the main car park in front of the hospital but if that is full you need to go back out and across the road to their other car park.At least we dont have to pay any more.What time do you have to be there?It is a beautiful area if you have time to drive around later.
I prob have missed you now but if you get this before you good luck, and if you read when you get back your prob enjoying a nice cup of tea. Hope everything is ok anyway.. Good morning Jackie, Kathym, & Rose hope you are all keeping healthy and happy. I look forward to messages later on from you all.
Love Eileen. xxxx
everything went well, even though it was a long day. I had the injection and had to wait 2 hours, then they took blood every hour (for 3 hours) but told me to check with CT desk to see if they could fit me in between blood samples, I was down to the CT area three times but it was so busy, I eventually got the cannula put in on the third visit and on the fourth visit I had the CT scan, actually going to and fro made the time pass quicker. The idea was that I might get the CT scan done sooner but it was done on my appointment time lol. The girls behind the desk were laughing when I finally came back with the cannula in lol.
I came home had a short rest then went down to my daughter's for a bbq, it was my grandson's 13th birthday, we had a lovely time, nice ending to the day!
