I was diagnosed with early ovarian cancer four weeks ago following a total hysterectomy, there were tumours on both ovaries, I have an appointment for a kidney function test and another ct scan next Friday, if everything is ok I start taxolcarbo chemotherapy after that. I was told there will be six sessions with 3 weeks rest in between.

I do hope I am posting this in the right place, I am concerned about the chemo and hope to learn more through this forum

Dot

Hi Dot

Welcome to the site although it would be nice if you did not have to be here.

The waiting is always the worst part.Once you have your plan and things are underway it is easier to understand.I had breast cancer so can not advise you about your treatment but would like to wish you the very best of luck.Do keep coming on here for us to support you .good luck

Rose xxx

Hi everyone,

Thanks for the welcome Kathym, I am so glad to be part of this group. I hope everything works out with the carboplatin.

Eileen, I am pleased about your news. I was told my tumours had to be removed, no other options were offered, so I have no idea about shrinking tumours etc, I am sure the best decision will be made for you. I understand the worry of it coming back.

I just think it is wonderful that the tumour has shrunk so much!!

Love to all Dot xxx

Hi Ladies

Looks like things are all going well! Kathy with the carbo, on the american sites they seem to use each of the drugs on there own at times with just as good results, Eileen, yes I know what mean but I don't think physically removing the tumour is any more effective than destroying it with chemo so I would leave it to the experts, the MDT is good because a different range of onc and surgeons 'argue' what they think is the best way to go, this means there are less 'bad' judgements and on the odd occassion somebody will spot something that the others haven't seen. Very impressed at the shrinkage and I think this is what will stand you in good stead as your tumour is obviously very sensitive to the chemo which I think is the best possible news (surely its got to equate with it staying away longer??? and if not it should respond well again if needed).

Everybody sounding up-beat, so keep up the good fight and make time for fun.

Let us know what the news from the MDT is

Love to all

Jackie xxxx

Hi Ladie's,

I have some more news for you, I had a phone call yesterday morning to say that I am having surgery and I will get a letter in about 2 weeks. Anyway I had a phone call this morning to say I have an appointment for 13th July ( Tuesday ) to go and see the surgeon. So things are moving fast for me. I am having my operation at Singleton which is in Swansea, the reason I am having it at a different Hospital is because when I moved down to Wales in March I had all my medical records transfered and that was the Hopsital that I was given. However because I needed to start the chemo quickly I was sent to Bronglais ( I love it there I think I said before ) Anyway Singleton is a larger and a bit more modern than Bronglais and my Dr suggested the op there.

I would like to know though Ladie's what the surgeon does when you go and see him ( I hope no internals ) but I want to know if it is so I can sort my ibs out ( Dot you know what I mean ha ha )

I am thinking of you all now esp you Jackie & Dot as your chemo is soon.....

Keep messaging as its great to have you all to offload to.... xxxxxxxx:blush:

Welcome to Singleton !!!I had my op in Llanelli but have all other treatment in Singleton.Let me know if you want any info as to getting there etc.Have you someone going with you ?Cant help with the details as mine is BC.Shopping afterwards in Swansea i hope .

Rose xxxx

Hi Eileen,

it is good things are moving quickly for you!!!

I had to have an internal but don't forget I had op before the chemo so you may not follow my experience. I know exactly what you mean about the IBS it is the bane of my life. I just warned them that I had little control over my bowel and on their heads be it lol.

The rest of the consultation was discussing what they were going to do, depending on what they found during the op.....it was a case of+ we may have to do this if we find that.+ So I didn't find out until it was all done and dusted lol

I have a kidney function test and another ct scan tomorrow and I will be at the hospital all day, so I will be in a state with my IBS lol it is never ending with me. The IBS bothers me over everything else.

All will be fine... it will I say......lol

Hi Rose good to see you again

Take care all xxxxxxxxxxx

Hope tomorrow goes well Dot.You really are going through the mill I wish I knew of something to ease your IBS,a friend of mine has it and is always stressed when we are out.If hugs could cure it you would be OK.

Rose xxx

Hi and welcome Rose to our little group, :grin:

We are doing very well ladies, we could soon start a football or Rugby team the way we are going. Thank you for your kindness on getting to Singleton. My partner David will take me but parking is a big issue there as last time he had to drop me off and find somewhere to park. So if you know any place we can park it would be great.

I look forward to hearing from you later. Eileen. xx

Parking is a pain on some days and the busiest clinic day is ........................Tuesdays !!! I,m afraid it is a matter of looking for a space in the main car park in front of the hospital but if that is full you need to go back out and across the road to their other car park.At least we dont have to pay any more.What time do you have to be there?It is a beautiful area if you have time to drive around later.

Rose xxxxx

Hi Dot,

I prob have missed you now but if you get this before you good luck, and if you read when you get back your prob enjoying a nice cup of tea. Hope everything is ok anyway.. Good morning Jackie, Kathym, & Rose hope you are all keeping healthy and happy. I look forward to messages later on from you all. Love Eileen. xxxx

Hi Eileen,

everything went well, even though it was a long day. I had the injection and had to wait 2 hours, then they took blood every hour (for 3 hours) but told me to check with CT desk to see if they could fit me in between blood samples, I was down to the CT area three times but it was so busy, I eventually got the cannula put in on the third visit and on the fourth visit I had the CT scan, actually going to and fro made the time pass quicker. The idea was that I might get the CT scan done sooner but it was done on my appointment time lol. The girls behind the desk were laughing when I finally came back with the cannula in lol.

I came home had a short rest then went down to my daughter's for a bbq, it was my grandson's 13th birthday, we had a lovely time, nice ending to the day!

Another hurdle crossed!!

Love to all Dot xxxxxx

Hi Eileen,

everything went well, even though it was a long day. I had the injection and had to wait 2 hours, then they took blood every hour (for 3 hours) but told me to check with CT desk to see if they could fit me in between blood samples, I was down to the CT area three times but it was so busy, I eventually got the cannula put in on the third visit and on the fourth visit I had the CT scan, actually going to and fro made the time pass quicker. The idea was that I might get the CT scan done sooner but it was done on my appointment time lol. The girls behind the desk were laughing when I finally came back with the cannula in lol.

I came home had a short rest then went down to my daughter's for a bbq, it was my grandson's 13th birthday, we had a lovely time, nice ending to the day!

Another hurdle crossed!!

Love to all Dot xxxxxx

Hi Dot,

I feel for you having to have spent that long at the Hospital, Its a very long day but as you say it makes it pass quicker. Glad you got the Scan at last and lets hope its very good news for you. When will you know the results ? I am not doing to good as the side effects have kicked in with the sore legs and joints so will have to see what Monday brings. ( Its normally when I end up in Hospital ) I am thinking I may be in as when I had the Chemo blood count was 1.6 and if it had been 1.5 then they wouldn't have done it, so I scraped through this time. Not sure why it keeps happening but at least its working so I can put up with it. I will chat soon take care . Love Eileen xxxxxx

Hi Eileen,

I am so sorry to hear about the side effects, it is awful that you feel so poorly, I do hope you don't have to go into hospital. They do say it affects people in different ways, just hard for you to go through it. You are being positive about it all and that is the best way to be, I will be thinking of you!!!

I have no idea when I will find out about the tests, but they said chemo would start shortly after that. Can't say I am in a hurry for it lol.

I really do feel for you, fingers crossed that you get through it without a hospital stay

big big hugsssssss

Love Dot xxxxx

x

Hi Ladies

We seem to be forming quite a community! Welcome to the new ones but also sorry you have ended up here. Hope your doing OK Eileen and have avoided being admitted. The appoinment on Tues may not involve an internal as they already know what they are dealing with thanks to the CT scans, its more likely to involve details of what they will do and when they will do it (usually leave it about a month post chemo) so fingers crossed for you.

Have been busy and therefore left it to long to log on and now can't remember what everyone has said! Have my sister over till wed then will have more time to keep up and get all the threads straight in my head (hopefully :) ).

Things sound like they are all moving in the right direction so hang in there everyone.

Fingers crossed for all as this is a busy week for most of us!

Love

Jackie xxxx

Hi Eileen Jackie and Rose, hope you are all doing good.

Hi Jayne,

Welcome to the group, I am sorry things didn't go as planned for you, I totally understand how you are feeling. I will keep you in my thoughts tomorrow.

I didn't find out until after my op that I had cancer although they did say it was very likely it would be, I am waiting for chemo, which should be some time this week. I had another CT scan last week and I met this lovely lady in her forties, she didn't find out she had cancer until it was very advanced but it was three years since her diagnosis and she was still very positive and made me feel a lot better. She looked really good and it has made me feel more optimistic.

Welcome to you too Hilary, Awful that you have to go through it all again, as you said being positive is the only way to deal with all of this, you have been going through this longer than me so I can only be here to support and not advise.

Love to all Dot xxx

Message was edited by: Dot

Hello everybody

I hope all goes well for you all this week. Keeping you all in my thoughts and prayers. Keep positive.

Hilary

Hope everything goes well tomorrow.One step nearer the end of the tunnel.Good luck

Rose xxx

Hi everyone,

I am back .....Well as expected I ended up in Hospital on Sunday. I have just come out about an hour ago. This time it was a urine infection so back on antibiotics. I had to cancel my appointment yesterday at Singleton so the Hospital have booked it for next Tuesday now.

I will chat properly tomor. xxxxxxxxxxxxx:blush:

Glad to see you back Eileen, I thought about you a lot and guessed you must be back in hospital, you certainly are being tested, have to keep fingers crossed for Tuesday.

I went for wig fitting today lol, no worry about IBS either, I am improving!!

Still waiting to hear about chemo.

Hi everyone else, keeping you in my thoughts, hope you are all doing ok. Love to all xxx Dot