hi im 36 mother of 3 n diagnosed dec 23. ive had 2 ops n 5 of 6 chemo n finding it very hard at mo. feel so peed off n cant get rid of that feeling. would love to chat. x
ur partner sounds like a darling! what a lovely thing to do for you before you start. im glad you had good time, just what the doctor ordered.
i know you must be scared about starting, just remember why you are doing it. that lovely partner, those gorgeous girls n your friends n family will all be there for you. nows the time to be strong. the more possitive you are the better you will feel. mind over matter n all that. will be thinking of you n hoping you wont get many side affects. you can talk n ask us anything you like.just remember you are not alone.
i had blood test thurs(after talking to hospital about my nose) n found out my platelets were 44(were 128) n white cell are very low. so heres me, with mother in law down, unable to go out anywhere cos of risk of infection. had bbq planed n allsorts. mind you, can just muster the energy to go up n down stairs so going out wouldnt be on my list at mo.havent been out since food shopping n then i have to use the electric buggy to get around or it would wipe me out for few days. was so embarrassed the 1st time but that was weeks ago now. i used to crash a bit but now im even good at driving it!
had nose bleed this morning, then out starts to come my clot. tried pushing it back but it wouldnt go. thought here we go n id end up going hospital. so slowly pulled it out n it stopped! couldnt believe my luck. so much more comfortable now.
n as for help around the house, jons just got more to do bless him. mother in law doesnt do anything but play with charly. ive never let her help cos its her time n jons done the same. she goes home tomorrow. its been nice but too loud for me. n stressfull for jon. she spilt red wine on our new carpet, during england game, cor he wasnt a happy bunny at all. oh mum! everytime you come! he did appologise later.
Hi Leonie, yes my partner John is amazing, so thoughtful and kind, just wants to do anything and everything to help me, he's been by myside at every appointment and will be coming along with my to get my chemo, he's very lucky he's in management so can take as much time off as he needs, poor boy has only ever had 1 day sick in 10 years and i come along and he's been off loads, but hey ho thats life.Well just thought id check in and say hi, hope everyone had a fab weekend. Col x
been thinking of you n hoping you are ok? post when you can to let us know. fingers crossed you are well. you got a good john like me to take care of you. hes been every app, scan n chemo(last 1 was 10 hours but is normally 7). was meant to have the other 2 treatments tomorrow but platelets are too low so hoping next week they will be fine.
getting worried about you, are you still not well? i hope something else hasnt happened to you. i know you feel very unwell after an infection, just hope its not got worse. get in touch as soon as you can. thinking of you loads n wishing you well.
well thats 1st chemo session over, it only took 45 mins in total so very quick, its weird but i'm sitting here waiting for a side effect to happen and have had nothing, feel totally fine, bit of a surprise that they didnt tell me about and thats that i need to give myself an injection tomorrow, tho john will need to do it for me lol. Think a lot of people feel fine after chemo but its next day when they start to take steroids and anti sickness tabs. Hope everything goes well next week, keep posting.
Patricia are you ok, not like you not to leave a wee post or 2 x
hi glad you are ok. that was quick 45 mins! yeah it shocked me the injection, another bloody needle. didnt have my last 1 n look what happened to white cells! so think its a good thing, worth the extra needle. hope youre a lucky 1 with side affects, loads of people dont get many. cheering you on.
No I haven't fallen of the face of the world, just had a hectic few days. Thank you for you concern.
After my unplanned hospital visit and being let out on Wednesday last week, things seem to have been manic round here. I did manage to rest on Thursday but Friday had a dentist appointment in the morning (if you remember I broke my denture, you can all stop sniggering now! LOL) he wanted to pull one of my teeth. No way, not after what I've been through already this week, managed to put this off until Monday 28th June. Friday afternoon went out with a friend shopping, didn't get home till 7.30 p.m. her husband was beginning to think we had got lost.
Saturday was spent doing a mini spring clean on my house (ex mother-in-law coming for visit along with my ex sister-in-law from London whom I get on with extremely well, sister-in-law that is not mother-in-law LOL). My youngest son, bless him, couldn't understand why I'm behaving like a possesed mad women with a duster and hoover! He kept asking whether the Queen was coming, which the answer was basically YES!! Now at least I don't have to worry whilst I'm having my radiotherapy as my house is now spotless!!
Anyway 'The Queen' and sister-in-law arrived at 9.15 a.m. on Sunday morning and we had Christmas, yes you've read that correctly. Usually I visit mother-in-law (who lives in Birmingham) between Xmas and New Year to do my Postman Pat bit but unfortunately was otherwise engaged this year (operations). I've done Xmas in February before now but never June. Anyway had a lovely couple of days with them.
Tuesday, watched the tennis and did a mountain of ironing. Wednesday called in at work to wish someone well who was retiring, came home and watched the football and did another mountain of ironing. Tomorrow, need to find homes for these xmas presents and watch the tennis (love Wimbledon).
Lou Sorry to hear about your mum, both of you going throught treatment at same time must be hard. She sounds like a laugh, obviously been to one or two Ann Summers parties
I agree, we've got to have some fun and treats, we deserve it with the s***t thats happening. I have found that I am better if I try to pace myself. I tried to plan activities for my third week when my immune system is on the up and tried to have a rest day after a busy day or two. It seemed to help. Not quite sure what happened recently, just unluckly I guess.
Col So glad you had a lovely time at the races and what a lovely surprise.
So that's one tick on the calendar and believe me it won't be long until your making that last tick, glad to here it's going okay at present, hope it stays like that. Yep, they don't mention the injection, managed to get the district nurses and my sister (who is a nurse) to do mine, just couldn't face doing it myself. Routing for you all the way and as Leonie says ask anything you like even if you think it's something small.
Leonie Hope your feeling better, you sound like you've been in the wars also. I'm fine now just counting down now til the start of the rads next week, into the unknown again. Have heard it can make you very tired. Spoke to my BC Nurse who said some people can get tired during and others are fine during but get tired after treatment has finished, lot of help that was!! Shouldn't complain she's lovely really.
Well that's me up to date and hopefully back to normal.
Hi patricia glad to hear you've had a couple of fab days with family and friends.
Obviously I've been a bit too cocky lol had my first chemo yest, felt totally fine, woke up this morn feeling seedy, took anti sickness tabs, waited a bit, tried to eat toast (i dont usually eat first thing) took steroids, ten mins later sick as a dog, that was at 9, just been sick again and had a case of the runs, not soo nice, please tell me this soon settles down, i hate being sick. Col x
Sorry your not so good. I was sick after my first chemo but that was during the evening. Managed to get the steroids down and keep them down the next morning. Have they given you any back up sickness pills? As you haven't managed to keep the steroids down I would try the back up pills, give the chemo unit a ring and ask them for advice. Keep drinking the fluids though, hard I know but the last thing you want now is to get dehydrated. Anything ginger flavour seemed to help me a little with the nausea, ginger ale, ginger biscuits, ginger marmarlade (rapidly going of them myself LOL). Chin up it should get better and the pills do work if you can keep them down.
