Hi Girlies

Patricia you make me laugh so much lol. Met with the Oncologist today, I've to have my bloods taken next thurs and chemo was supposed to be next day but we had tickets booked for the Ayr Races that day (alexandra burke is singing at it), nurse said fine and has booked me in for mon 21st, my big day, oh god it's going to be like a first day in a new job lol, I've to have FEC-T Chemo so Flurourcil, Epirubicin, Cyclophosphamide & Taxotere (docetaxel). It all sounds so scary, the wigs havent arrived yet, but I've bought a new dress for the races lol so thats made up for it. Speak to you all soon. Enjoy your weekend everybody xx

Hi Colly,

LOL who needs a wig, I've now got this vision of you ( don't know what you look like but go with it, I've a vivid imagination) in a stunning dress with one of those big hats they wear at Ascot. Don't know what the protocol is at Ayr races but perhaps you could start a new trend! Nice to see that the hospital let you alter your start date.

I'm feeling slightly better today up to press, long may it continue.

Patricia x

Hi Patricia

I di wonder where you were lol, keeping tabs on you i am, just thought you might still be celebrating. Glad to hear you had a fantastic time with all the family but not so good that you were in hospital, what is Cellulitis, take its nothing to do with cellulite lol? Hope your feeling better. Take Care. Col x

Hi Col,

Glad someone is watching out for me, lol. Wish I had been enjoying myself. Am now, being in my own bed, with own pillows and no noises is sheer bliss! Definantly sleep tonight. LOL

If you look at this website page it will explain cellulitus a lot better than I can.

www.bbc.co.uk/.../cellulitisinfection.shtml

Forgot to mention the nurse in hospital told me that we should make sure our skin is moisturised well as this helps to prevent cracks in skin and thus help stop infection.

Love

Patricia xx

hi patrica

been thinking of you lots. sorry you were ill after such a lovely time. bloody typical. at least it wont be able to happen in future now youve finished chemo.

your weekend sounds lovely. so glad you managed to enjoy it. i have mother in law here in about half an hour. down from brighton to sunny cornwall. too cold for me though with the wind. still hoping energy levels will pick up. shes lovely but very loud.

will write when more time. glad to have you back.

love leonie xx

Hi All

Not been on for few days. Had a top up of chemo Monday and wasn'texpecting tofeel as bad as I dis Tuesday was in bed all day feeling sick and dizzy and just generally rubbish. Wednesday was alittle better then Thursdy and today felt like a different woman so went out for lunch with my sister and mum and we took Betsy with us (my 10 month old) had a lovely time. My mum has just gone through an hysterectomy because she had cancer in her womb and last week had internal radiotherapy. She is 73 and since my dad died 4 1/2 years ago has slowly started losing her memory and she told me three times how wonderful the nurses were bless her. SHe couldn't have visitors and was in a lead lined room and hated it. You have tolaugh though she has a plastic implement and she said to me that its like something you would normally put batteries in I was shocked:shocked: Didn't know she knew what they were but the she is 73 perhaps shes got a secret stash!! She then told my partner it was like a rabbit!!!!! He couldn't stop giggling to himself! Bless her sge has been through it and all she wants to do is to help us and she can't!!

Anyway how are you lonie have them bleeds stopped You sound like all yor side affects are the worse ones with the sore mouth etc. I wish I hadn't put weight on but my appetite seems to have increased!?! however nothing I eat tastes right. Before all this I'd just started losing the baby weight now I look 4 months pregnant again!! How you got on with your mother inlaw has the extra help been handy and I hope your feeling bit better and the family are ok.

I'v sent my form of for DLA but filled it in on my own. My bc nurse has told me that if I'm declined we can appeal and A Macmillan nurse will help us cpmplete. The other benefit we have been declined for we are reapplying and putting my partners flat up for sale and because we are trying to sell it will be disregarded for 26wks. We'v seen it in black and white even though the department who deal with it have told us thats not the case. The welfare bloke has shown us evidence it is right!!

Patricia You sounded like you loved having all your loved ones round you on your birthday and had a really great time!! Such a shame your now feeling ill I hope youare feeling better and up and about soon. Do u find you have a sort of normal few days but then pay for it when you've over done it? It sometimes makes me hesitate to do nice things but we have to don't we otherwise it would be all hospitals and treatments etc.

the wig sounds nice Colly. I haven't sorted one yet but suppose I really ought to get on with it as its inevitable that now I'm not having cold cap its is going to start to fall out. You sound like your really impressed so think might go next week.

Amyway I'v droned on a bit but thats me done hope not bored you all

Love to you all Lou

Hi Lou & girls

lou you certainly havent bored me i love reading everybodies posts. You should look at the wigs, there are some fab ones out there. Well our day at the races was great, John had arranged a surprise for me, i thought it was just him and me, but my mum his mum my 2 girls and their boyfriends, my 3 best friends and 1 of their partners, so i was crying when i turned up and they all shouted 'surprise' think they were just trying to cheer me up before my chemo starts on wednesday, which im dreading. What do you think of the cold cap, have you not lost any hair at all? Im gettting FEC-T and was told no matter what i'd def lose my hair as its whatever is in the E that makes hair fall out, any advise?

Col x

hi colly n girls

ur partner sounds like a darling! what a lovely thing to do for you before you start. im glad you had good time, just what the doctor ordered.

i know you must be scared about starting, just remember why you are doing it. that lovely partner, those gorgeous girls n your friends n family will all be there for you. nows the time to be strong. the more possitive you are the better you will feel. mind over matter n all that. will be thinking of you n hoping you wont get many side affects. you can talk n ask us anything you like.just remember you are not alone.

i had blood test thurs(after talking to hospital about my nose) n found out my platelets were 44(were 128) n white cell are very low. so heres me, with mother in law down, unable to go out anywhere cos of risk of infection. had bbq planed n allsorts. mind you, can just muster the energy to go up n down stairs so going out wouldnt be on my list at mo.havent been out since food shopping n then i have to use the electric buggy to get around or it would wipe me out for few days. was so embarrassed the 1st time but that was weeks ago now. i used to crash a bit but now im even good at driving it!

had nose bleed this morning, then out starts to come my clot. tried pushing it back but it wouldnt go. thought here we go n id end up going hospital. so slowly pulled it out n it stopped! couldnt believe my luck. so much more comfortable now.

n as for help around the house, jons just got more to do bless him. mother in law doesnt do anything but play with charly. ive never let her help cos its her time n jons done the same. she goes home tomorrow. its been nice but too loud for me. n stressfull for jon. she spilt red wine on our new carpet, during england game, cor he wasnt a happy bunny at all. oh mum! everytime you come! he did appologise later.

anyway best go n let her talk my head off!

take care everyone. love leonie xxx

Hi Leonie, yes my partner John is amazing, so thoughtful and kind, just wants to do anything and everything to help me, he's been by myside at every appointment and will be coming along with my to get my chemo, he's very lucky he's in management so can take as much time off as he needs, poor boy has only ever had 1 day sick in 10 years and i come along and he's been off loads, but hey ho thats life.Well just thought id check in and say hi, hope everyone had a fab weekend. Col x

hi col

been thinking of you n hoping you are ok? post when you can to let us know. fingers crossed you are well. you got a good john like me to take care of you. hes been every app, scan n chemo(last 1 was 10 hours but is normally 7). was meant to have the other 2 treatments tomorrow but platelets are too low so hoping next week they will be fine.

love leonie xx

hi patrica

getting worried about you, are you still not well? i hope something else hasnt happened to you. i know you feel very unwell after an infection, just hope its not got worse. get in touch as soon as you can. thinking of you loads n wishing you well.

love leonie xxx

Hi Leonie

well thats 1st chemo session over, it only took 45 mins in total so very quick, its weird but i'm sitting here waiting for a side effect to happen and have had nothing, feel totally fine, bit of a surprise that they didnt tell me about and thats that i need to give myself an injection tomorrow, tho john will need to do it for me lol. Think a lot of people feel fine after chemo but its next day when they start to take steroids and anti sickness tabs. Hope everything goes well next week, keep posting.

Patricia are you ok, not like you not to leave a wee post or 2 x

Col x

Hi Leonie

well thats 1st chemo session over, it only took 45 mins in total so very quick, its weird but i'm sitting here waiting for a side effect to happen and have had nothing, feel totally fine, bit of a surprise that they didnt tell me about and thats that i need to give myself an injection tomorrow, tho john will need to do it for me lol. Think a lot of people feel fine after chemo but its next day when they start to take steroids and anti sickness tabs. Hope everything goes well next week, keep posting.

Patricia are you ok, not like you not to leave a wee post or 2 x

Col x

hi glad you are ok. that was quick 45 mins! yeah it shocked me the injection, another bloody needle. didnt have my last 1 n look what happened to white cells! so think its a good thing, worth the extra needle. hope youre a lucky 1 with side affects, loads of people dont get many. cheering you on.

love leonie xx

Thanks babe, hopefully all will be well, thats john back in so i'll go and see what he's making for dinner lol take care x