Hi, I would like to hear from anybody who had breast cancer last year, I finished all my treatment in November but still get a lot of pain in my breast, is there anybody with the same.

Hi Azalea

I had breast cancer last year - lumpectomy first then mastectomy in May - Chemo then Radiotherpy finishing just before Xmas. I think it probably depends on the Op. I had Lymph nodes removed and still get pain going from under my arm across the mastectomy scar (right side). I think what we must remember is quite a lot has happened to our bodies and it takes time to settle down. It really must depend on the type of treatment we have. I asked my GP how long it will take for me to be back to 'normal' and he said 6 months to 2 years. I know any ache or pain makes you think but I try to remember all the aches and pains I had before all this happened. Then I just took a couple of painkillers and forgot about it - now I stop and think - natural I think after what we have been through. Were you given the name of a 'breast nurse' whilst you were receiving treatment -  some-one you could contact with any queries about your treatment? Mine was good and told me that even after all treatment was finished I could still call her if I was concerned about anything. I think most breast cancer clinics are the same so perhaps you could try them - just to put your mind at rest. Others on this site have had worse or better times of it but all without doubt will help you if they can. Please try not to worry - easier said than done - check it out if you can - don't think that you might be seeing medical staff unnecessarily - they all have much experience of this - you are not the first and won't be the last to contact them with worries - they were probably heartily fed up with me calling them all the time earlier this year but they never showed it.

All the best

Jan x

Hello Lonie, tony and all

Hope you are all okay, Lonie how did you get on on Wednesday hope all was ok please let me know as am worried about you dear friend.

Tony hop your feeling better to and thank you for letting me know that you got my message.

Well now for the news, I didn't get it until Wednesday after the CT Scan results came back, as you can imagine I was and have been in pieces but the good news

Is that it is not bone cancer that they are 100 percent on, after seeing another consultant yesterday he informs me it is osteo arthritus (sorry about spelling)

They say it is easily treatable which is great and as for my hand I can either have injections or a small operation which at the moment I can't even think about. With

All that has been going on I can now have a good weekend I think I derserve that as we all do

Kathryn I saw your post so hopfully this outcome will help you speak to your doctor and dnt let m fob you oftheo

Well I will be having one or two drinks tonight to celebrate so please join me we all deserve it..

Well I'm signing of now as got another appointment with my oncologist

Speak to you all soon

Love littlesis (Linda) xxxx

Hi girls

So glad you posted been worried. Sorry it's arthritis but so glad it's not cancer! At least now you will get help to deal with it.

My app was a waste of time apart from them taking bloods. Don't know what they will test for though. It's probably side affects from meds though they don't know why I've started to feel worse. I'm not happy. I've been out 3 times in the last 3 weeks n spend most of the time laying down. What more can I do to rest n get some energy! I'm fed up being ill. I'll post later.

Will drink to you later. Xxxxx

Hi,

I hear you on the fatigue - my oncologist reckons part chemo, part drugs I am on so have told me to go back to my palliative care team as they will know of nerve treatments which don't make me so tired...I am on something called amitriptyline which knocks me for six.

I do hope they get the answers soon from the test...one thing that explained tiredness was when I had the results of my CT scan....whilst all remained stable with the cancer they noticed inflammation in one of my lungs so showed up a chest infection that I wasn't aware of. I was coughing a bit of rubbish up and like I said feeling the fatigue so now I know why.

Nice hot salt baths should help too!

Much Love

Tony xxxxx

Hi Anne,

I would like to ask you about side eff from FEC. On Friday I had my first teraphy, I was feeling a bit sick but now two three days latter I feel very tired and more sick, also dizzy. I am sorry to bother you and I know that we all have different side effects,

I hope you are ok and have a lovely evening

Mariana xx

Hi Maki, hope you are starting to feel better, I also felt sick after 1st session of chemo, but once I got the anti sickness tablets into my system I felt so much better (I also had FEC) all I can say is 1 year down the line I feel and look the picture of health, hope this bit of re assurance is of help.

Leonie, Nina & rest of you guys and gals hope everyone is doing well.

Lee how are you babe, long time no hear?

Col xxx

Hi Maki

You are not bothering me at all.  I was always sick on the first day of having the FEC and then felt sick for a few days but the anti sicknes tablets helped.  I just used to take it steady for a few days and by the second week I felt better.  Everyone is different and I would say what you are experiencing is normal, take the anti sickness tablets if you are feeling sick.  Have a ginger biscuit and a cup of tea if you cannot face anything too much.  As the days go by you will feel better and by week three you will feel stronger, ready for the next dose, but I think it sort of helps knowing what to expect.

It all seems a long old haul but it will soon pass and you will get through it like we all have.

Keep in touch - thinking of you.

I have just come back from Pilates class which is helping me to get stronger and feel better.

Lots of love Anne x

Colly - you are looking amazing - great to see. x

Thinking of all of you ladies and Tony - keep strong x

Hi Colly,

Thank you for your replay. I was expecting to feel sick but I dont like the feeling of being dizzy most of the time. Grrrrrrr. I am glade you are feeling and you are looking well, posts like yours give me the power to fight

Thank you again and all the very best

M xx

Hi Anne,

Thank you for replaying and thank you for your advice. I guess I  did way to much after the teraphy and now am paying for it. I tend to go for a walk with my boys and do bits around the house also working on Wednesday, Thu and Fri. I will take it easy now and rest as much as I can.

Thank you so much

M xx

Hi Tony ,I am on Amitriptyline aswell went to my gp because i was still getting tied and had pains in my legs and my feet felt like they were on fire but not all the time its been 2 yrs since i had my last bit of chemo .I wonder if anyone else has felt the same with there legs and feet some nights are have trouble sleeping .It is nice to now that someone else is on the same .

I hope eveyone is having a better day today . This is my first day on chat just wish i knew when i was going throw my treatment .x

Sorry that I haven't been around for a while

My Mum lost her battle with cancer last week on the 13th of August...... and to be honest, It's knocked me for six

I will be around soon, but I have to get my head round this at the moment

love to all

Caz xxxx

Sorry that I haven't been around for a while

My Mum lost her battle with cancer last week on the 13th of August...... and to be honest, It's knocked me for six

I will be around soon, but I have to get my head round this at the moment

love to all

Caz xxxx

sorry to hear that Caz, hope you are doing ok, lotsa love Col x

Hello Ladies

Firstly Caroline I am sorry to hear your news hope you are ok and here is sending you a big hug

Lonie how are you doing you havnt been on in a while and a little worried about you, please get in touch when you can

How is everyone else, Colly what have you been up to and of course the lovely Tony

Well I'm going now as my train stop is coming up and work calls calls lol, take care you lovely people

Love Littlesis (Linda) xxx

Hi everyone

How are you maki? Hope you are not suffering too much. I'm ok thanks sis, no change really. I think I have a bit more energy than last week. My body just aches n I can feel my energy draining. Ladycuddles I have the same sort of thing n I finished all treatment end of January. My legs burn, but I'm sure it's muscle. It's like it's burning til I sit down then it slowly gets better but turns into an ache. If that males any sense! I haven't heard from the hospital so I take it bloods are ok.

This is my 3rd day with charly n tomorrow we go to Brighton for jons brothers wedding. I'm so excited about the journey with my aches n pains! Don't know how I will manage 3days up there but I will. I hope you are all doing ok at the mo. Post when I get back.

Love leonie xxxxx

Hi all

I hope everyone is ok. I had my first chemo and due for the second one on the 2nd of September...grrrrr. Hair is gone, dont know how I feel at the moment , I haven't posted for a while so I just wanted to say Hi!

Love to u all xx

Hi maki

Well done for getting through your first chemo. Nearly two down now. You will get through it love n be free of the C. I know it's not nice to lose your hair n you feel poorly but it is a fight. N it's worth it! Keep strong, we will be here for you.

Much love to you. Leonie xxxxxxxx

Hi Leonie

Thank you for your post. Done with the first chemo This Friday is the second one. I was feeling ok untill the wound started leaking again and it is putting me down big time. At the moment feeling crap with pain in my back. I just keep thinking how much more can one take realising it is only the start of the fight. I hope you are feeling better with more energy. Take care

Love to you and to all fighters

Mxx

Caz,

I am so sorry about your loss, my prayers and thoughts are with you dear friend.

Much Love

Tony xxxx

Hey Linda,

Thanks for asking...all okay with me at the moment...chemo taking its toll as on No 14 of Irinotecan and No 11 Avastin so surprised I have stood it for this long....finally lost my hair after all this time...my way of coping is staying in bed most of the time and sleeping.

Much Love to all..

T xxxxx

Hi ladies/Tony

Hope you are all ok n managing to get on with things. Maki I hope it went alright on Friday. Hope you don't get many side affects love. Sis how are you getting on now? Are you on meds for it now? Hope you are feeling better now. Well I thought id post n let you know what I think I know. I have every symptom of a thyroid problem. Luckily I have blood tests on Wednesday n hope so much they come back with this. Can't believe something so easy to treat n yet I've suffered so much with it! Thinking maybe I have more cancer or problems with my muscles n back. I also can't believe how ill it makes you! I haven't said this to anyone, but after race for life, I often thought to myself 'am I dying'. No matter how much I rested, I just couldn't move. I am pretty sure it is this so feel so lucky that one day soon I will feel better n be able to get on with living. Been such a painful year n it could of been prevented. Learnt a lesson. Wanted to tell you all so you don't worry. Will let you know how it goes. Hope to hear from you all soon.

Lots of love leonie xxxxxx

Hi all. Thought I'd let you know I had my blood results back n they were normal. I couldn't believe it! Dr thinks I have ME/chronic fatigue syndrome n some muscle thing that I can't remember. I've been really down about it cos I know it can last for years. At least now I know what it is n why I've been getting worse n not better. I'm so fed up of being ill though. So fed up of not being able to do things n so bored! Really thought it was thyroid n I'd get better soon with meds. Now I know there's nothing that's gonna give me some energy n make me feel better. Very sad. Hope to hear from you all soon.

Love leonie xxxxx