Hi, I would like to hear from anybody who had breast cancer last year, I finished all my treatment in November but still get a lot of pain in my breast, is there anybody with the same.

Hi Azalea

I had breast cancer last year - lumpectomy first then mastectomy in May - Chemo then Radiotherpy finishing just before Xmas. I think it probably depends on the Op. I had Lymph nodes removed and still get pain going from under my arm across the mastectomy scar (right side). I think what we must remember is quite a lot has happened to our bodies and it takes time to settle down. It really must depend on the type of treatment we have. I asked my GP how long it will take for me to be back to 'normal' and he said 6 months to 2 years. I know any ache or pain makes you think but I try to remember all the aches and pains I had before all this happened. Then I just took a couple of painkillers and forgot about it - now I stop and think - natural I think after what we have been through. Were you given the name of a 'breast nurse' whilst you were receiving treatment -  some-one you could contact with any queries about your treatment? Mine was good and told me that even after all treatment was finished I could still call her if I was concerned about anything. I think most breast cancer clinics are the same so perhaps you could try them - just to put your mind at rest. Others on this site have had worse or better times of it but all without doubt will help you if they can. Please try not to worry - easier said than done - check it out if you can - don't think that you might be seeing medical staff unnecessarily - they all have much experience of this - you are not the first and won't be the last to contact them with worries - they were probably heartily fed up with me calling them all the time earlier this year but they never showed it.

All the best

Jan x

Hi Linda

I went for my 1st dose of my 2nd cycle 2 wks ago (hope that makes sense) & I was telling the Dr I had been having a lot of pain in my R.arm,she informed me it could be osteo whatsit(sorry can`t spell it)brought on by chemo I was puzzled by this but as she didn`t elaborate on it I didn`t push for more info,but as the prob is still there I`ll be asking her next wk she also said it may be the cancer from my shoulder,I`ll keep posting to keep you updated can you please do the same.Love Kathryn

Hi Littlesis,

Sorry that I have been neglecting you all....I have been a bit of a hermit and although I have a few illness related problems I am pretty much in denial for the moment. What with the ulcer in my colon that needs surgery and a permanent stoma...I am waiting on the results of my last CT scan to see how the chemo is going..Last time it was a 20% reduction and I am so waiting for similar or better....I hate this cancer and will do my best to keep my chin up however as I am sure you know it can be pretty tough at times.

Much Love

Tony xxxxxxxxxx

Hi guys

Sis I hope you have had that phone call n had some good news. It's awful that you've had to wait but I'm hoping it will be fine n one less thing on your mind. I know you will let us know when you can. Thinking of you n wishing you the best.

Tony I hope the ulcer on your Tongue has gone or is going. Can't imagine how your other ulcer feels! You are always in my thoughts n I hope so much it's shrunk more. Keep up the fight big man.

I have oncology on Wednesday. I don't feel any better really. Energy is just non existant. Hope they can help me feel better. We'll see. Hope other ladies are feeling ok. Maki how are you?

Lots of love leonie xxxxxxxx

Another newbee here. I was diagnosed 2 weeks ago after finding a lump. I have a large lump maybe 4cm on left side and cancer cells in several lymph nodes. Scans show rest of me is clear it's early at stage 2. I'm starting chemo tomorrow and I suppose I'm just scared. I think I know what to expect but until it happens i still feel in the dark. I'm 36 my boys are age 5 and 2. My husband is finding it tough. We were living abroad we've come home because of this and right now we don't even have anywhere to live we're staying with family I don't feel in control which I hate!

I've been reading many posts very reassuring x

Hi Chancer

You will find lots of company on here. Hubby can join in too, as a partner of a BC lady I have been through the journey. PMs are ok too. Anything technical or medical the nurses are brilliant, you can even give them a call.

Stay in touch.

RD.

Hi Anne,

I did log in many times and I wanted to replay however I was feeling so down I just log off. I would like to say thank you for replaying and for your words. I am starting my first treatment tomorrow and at this moment I feel ok and positive. I will probably ask you some questions as I go along :-))

How you feeling now? and did you had many side eff. from the first treatment

It is nice to know that your last treatment is in October yey that is great!

Have a lovely day and hope to speak to you soon

M x

Hi Ionie,

Just wanted to say Hi and see how was your app. I hope you are feeling better. Please let us know I hope everything is ok

M xxx

Hello Lonie, tony and all

Hope you are all okay, Lonie how did you get on on Wednesday hope all was ok please let me know as am worried about you dear friend.

Tony hop your feeling better to and thank you for letting me know that you got my message.

Well now for the news, I didn't get it until Wednesday after the CT Scan results came back, as you can imagine I was and have been in pieces but the good news

Is that it is not bone cancer that they are 100 percent on, after seeing another consultant yesterday he informs me it is osteo arthritus (sorry about spelling)

They say it is easily treatable which is great and as for my hand I can either have injections or a small operation which at the moment I can't even think about. With

All that has been going on I can now have a good weekend I think I derserve that as we all do

Kathryn I saw your post so hopfully this outcome will help you speak to your doctor and dnt let m fob you oftheo

Well I will be having one or two drinks tonight to celebrate so please join me we all deserve it..

Well I'm signing of now as got another appointment with my oncologist

Speak to you all soon

Love littlesis (Linda) xxxx

Hi girls

So glad you posted been worried. Sorry it's arthritis but so glad it's not cancer! At least now you will get help to deal with it.

My app was a waste of time apart from them taking bloods. Don't know what they will test for though. It's probably side affects from meds though they don't know why I've started to feel worse. I'm not happy. I've been out 3 times in the last 3 weeks n spend most of the time laying down. What more can I do to rest n get some energy! I'm fed up being ill. I'll post later.

Will drink to you later. Xxxxx

Hi,

I hear you on the fatigue - my oncologist reckons part chemo, part drugs I am on so have told me to go back to my palliative care team as they will know of nerve treatments which don't make me so tired...I am on something called amitriptyline which knocks me for six.

I do hope they get the answers soon from the test...one thing that explained tiredness was when I had the results of my CT scan....whilst all remained stable with the cancer they noticed inflammation in one of my lungs so showed up a chest infection that I wasn't aware of. I was coughing a bit of rubbish up and like I said feeling the fatigue so now I know why.

Nice hot salt baths should help too!

Much Love

Tony xxxxx

Hi,

I hear you on the fatigue - my oncologist reckons part chemo, part drugs I am on so have told me to go back to my palliative care team as they will know of nerve treatments which don't make me so tired...I am on something called amitriptyline which knocks me for six.

I do hope they get the answers soon from the test...one thing that explained tiredness was when I had the results of my CT scan....whilst all remained stable with the cancer they noticed inflammation in one of my lungs so showed up a chest infection that I wasn't aware of. I was coughing a bit of rubbish up and like I said feeling the fatigue so now I know why.

Nice hot salt baths should help too!

Much Love

Tony xxxxx

Hi Tony ,I am on Amitriptyline aswell went to my gp because i was still getting tied and had pains in my legs and my feet felt like they were on fire but not all the time its been 2 yrs since i had my last bit of chemo .I wonder if anyone else has felt the same with there legs and feet some nights are have trouble sleeping .It is nice to now that someone else is on the same .

I hope eveyone is having a better day today . This is my first day on chat just wish i knew when i was going throw my treatment .x

Sorry that I haven't been around for a while

My Mum lost her battle with cancer last week on the 13th of August...... and to be honest, It's knocked me for six

I will be around soon, but I have to get my head round this at the moment

love to all

Caz xxxx

sorry to hear that Caz, hope you are doing ok, lotsa love Col x

Hello Ladies

Firstly Caroline I am sorry to hear your news hope you are ok and here is sending you a big hug

Lonie how are you doing you havnt been on in a while and a little worried about you, please get in touch when you can

How is everyone else, Colly what have you been up to and of course the lovely Tony

Well I'm going now as my train stop is coming up and work calls calls lol, take care you lovely people

Love Littlesis (Linda) xxx

Hi everyone

How are you maki? Hope you are not suffering too much. I'm ok thanks sis, no change really. I think I have a bit more energy than last week. My body just aches n I can feel my energy draining. Ladycuddles I have the same sort of thing n I finished all treatment end of January. My legs burn, but I'm sure it's muscle. It's like it's burning til I sit down then it slowly gets better but turns into an ache. If that males any sense! I haven't heard from the hospital so I take it bloods are ok.

This is my 3rd day with charly n tomorrow we go to Brighton for jons brothers wedding. I'm so excited about the journey with my aches n pains! Don't know how I will manage 3days up there but I will. I hope you are all doing ok at the mo. Post when I get back.

Love leonie xxxxx

Hi all

I hope everyone is ok. I had my first chemo and due for the second one on the 2nd of September...grrrrr. Hair is gone, dont know how I feel at the moment , I haven't posted for a while so I just wanted to say Hi!

Love to u all xx

Hi maki

Well done for getting through your first chemo. Nearly two down now. You will get through it love n be free of the C. I know it's not nice to lose your hair n you feel poorly but it is a fight. N it's worth it! Keep strong, we will be here for you.

Much love to you. Leonie xxxxxxxx

Hi Leonie

Thank you for your post. Done with the first chemo This Friday is the second one. I was feeling ok untill the wound started leaking again and it is putting me down big time. At the moment feeling crap with pain in my back. I just keep thinking how much more can one take realising it is only the start of the fight. I hope you are feeling better with more energy. Take care

Love to you and to all fighters

Mxx

Caz,

I am so sorry about your loss, my prayers and thoughts are with you dear friend.

Much Love

Tony xxxx

Hey Linda,

Thanks for asking...all okay with me at the moment...chemo taking its toll as on No 14 of Irinotecan and No 11 Avastin so surprised I have stood it for this long....finally lost my hair after all this time...my way of coping is staying in bed most of the time and sleeping.

Much Love to all..

T xxxxx