Hi,

I am sorry to butt into your discussion but just wanted to wish you all well.

You all seem like tough cookies and am touched, truly.

I am currently waiting, I have my breast clinic appointment on 27th oct and really nervous, not eating or sleeping much to be honest but then I don't eat much anyway lol.

Really don't know what to expect with this appointment just that I will probably be having an ultrasound as I'm only 24.

The reason I went to the GP was because I have bloody nipple discharge and a rather deep dimple. I can't help but think the worst but do understand there are benign causes for this out there. Just glad my GP took me seriously.

Do you mind if I ask how you ladies felt at this stage? Am I insane or am I being normal?

Best wishes everyone

Kylie xxx

No Kylie,

You are not insane..... first let me say you are very sensible to see your doctors immediately.... you would be surprised how many think they are too young so don't bother.

I know this is a very scarey thing to try and come to terms with... and the waiting is the hardest bit.... If I had to discribe how I felt when I was waiting for appointments and tests then I think the only word I could come up with is....LOST... Very emotional and scared to death.... but I now know that all these feelings are perfectly normal.

If you are worried about what to expect, why not ring up your breast clinic and ask them.... they are normaly really good and have no problem explaining what you should expect.

When my doctor refered me to our local breast clinic, I was examined by a lady doctor, then I had to have a mammogram and an ultrasound scan..... I would suggest you take somebody with you... maybe your partner / Mum / friend just for a bit of moral support.... but I have to say that the breast care unit and all it's staff were brilliant and really did well to calm all my fears.

If you have any questions at all, please feel free to come here and ask, there is always somebody who has been in the situation you are in and able to offer help and advice.... we are all here for each other.

Take care honey... and try not to imagine the worst (easier said than done)

Love Caz xxx

Hi Tony

Funny thing about the picture is I cannot see it!! Probably have to do something and I haven't, oh well never mind.

Sorry to hear you have to have chemo again, that must be all of our worst fears but we will all do it because we want to carry on.  I wish you all the best. I liked your picture, looks like the facility is good whereever you are having your treatment.

A beannie is a good choice I have lived in mine. I wear my wig if I have to dress up a bit but I usually wear my beannie especially when I am feeling a bit s**t.  Thank goodness it is winter as I am not sure what they would make of me in Tescos with my Lions Rugby supporters bright red hat on!

All the best

Anne

x

Hi All,

nina, I have my 2nd chemo Friday, how are you feeling now? Your treatment seems to be flying by.

Tony, I have my hair cropped and yet it is still falling out and making a mess everywhere. My dad lost his hair with chemo many years ago and he always wore a hat. I think it is harder for a man to hide hair loss than a woman for so many reasons. I am not brave enough to let my neighbours see me without the long red wig, but indoors i sport my new moulting look with a little bit of pride. It is the new me and a look i can live with when the hair grows back. My hair has been below my shoulders for over 35 years so a short hair do is a real shock for me, but i am learning to live with it. I agree with you though, my biggest fear was people looking and thinking i was sick. It does make you feel vunerable. And the wig is itchy so i wear it for short bursts - like driving to the school to pick up my grandaughter or walking to the local shops. The funny thing is - i went ot my local post office today - ive known the people there for a good few years. no one batted an eye lid, so it made me feel better. My daughter did say to me though that when i wore the wig i tended to hold my face down and not walk so upright and she said that was the biggest difference in me. So all shoulders back, head up and lets face the world with pride.

Anyway I only called in tonight as i couldn't sleep - head itches and keep getting mouthfuls of hair, and for some reason i just feel fretful but not over anything i can put my finger on. I thought I'd call in and say hi and then get back to some writing and wear my self out. Sigh..... what it is to be a lady of leisure and not think about getting up in the morning.....

love to all

sara x

Hi sara, anne, lee, leonie, caz, tony, gosh there are so many of us now, rose,shents,nina, who have i missed lol

Sara I know what your daughter means with your head being down, i tend not to move my head properly whilst wearing wig and finish up with a sore neck. The last 3 treatments of chemo, taxotere, or doxitere do make your bones very sore and takes longer to recover. Hope you are all doing well, you too tony. Tho my question is really aimed at the women lol so tony cover your eyes!

During my 3rd chemo my period stopped and ive been having really bad night time sweats, its awful, anyone else getting these? Breast doc says to be patient that my period may come back, but if i have gone into early menopause i dont think i can put up with this, they are awful, any tips?

Hope all is well with everyone and hope i havent missed anybody, xxx

hi all

lovely to catch up on your news. just got few bits useless info that might help. firstly sara my head really itched i found using some sort of oil helped i bought wheatgerm oil from holland and barrat (cos it has no smell i somtimes put it on my face thoght it might help th wrinkles!! my skin alo gets dry so i use baby oil other wise itchin drives me mad .

i had my 4th chemo yesterday and i was realy dreading it as i felt rubbish after last one mainly sickness despite extra meds .but so far so good i bought those sea sick bands thay are wrist bands that are suppose to work on the pressure points on wrists thet are abot £7 from chemist i dont know if its tem or what but iam not takin them off in case.

iam having just fec not the other regeime apparently they chose either regeime a or b so glad only 2 left it feels better to be over half way new year new star last one will be 7th jan its my birtday 16th jan so plan to celebrate and in april when all finished i am having big thank fec its over party wish u all live closer and could come !!!!

colly re ?prem menopause it is a recognised side affect not sur how olsd u are i am 46 and have fibroids so bled all the time (it is the reason i went to dr in first place as they wanted me to have hysterectomy until i found the flipping lump !! so iam hoping chemo shrinks them and stops bleeding no luck yet although i did have flush yesterday so know wht u mean !!. not sure how much we can do as normally they are controlled by replacing oestrogen which of course we can do !! ther are some "natural products which are suppose to help but not sure how mix with chemo . certainly there is so evidence that soya products help milk. quorn etc but not sur how much u have to consume . i think its just case cold fannel cahnge clthes i like u be very interested in what girls have you say .

hope all well with everyone going to do some online xmas shopping to try to feel organised !!

lots love and hugs nina xxxxxxxxxxxxxxxxxxxxxxxxxxx

hi girls

colly i had the hot sweats but they seem to have calmed down, maybe cos its too bloody cold! havent had as many the last 4/6 weeks though, but still dont have any periods. who knows if this is the change, spose i'll find out next year. its not nice waking up wet n not being able to sleep because of them but we dont really have a choice. at least our chemo has finished.

nina will be thinking of you n cheering you on, roll on 7th jan. 2 more n you are finished. thats my birthday, n i'll be toasting you. hope you are managing alright.

tony i cant believe you are having to go through it all again. i didnt know. im so sorry! you just make sure you take all our love n add it to your strength n fight all the way. my heart goes out to you n your family at this awful time. wish you all the strength to get through this. lots of love coming your way.    leonie xxxxxxxxxx

Hi Everyone

Hope you are all doing well, I thought I would drop a line as I have been busy with my Radiotherapy, work etc and now only 3 more to go then that is it until next Summer when I have my reconstruction and I cannot wait to get my life back to a certain level.

Lonie like you I have terrible sweats but mine seem to be midday, the nurse has said to take my tablets in the evening and this should help, when do you take yours or are you having heceptin.

Colly how are you doing as I have not heard from you in a little while, hope all is okay with you

Tony I have not contacted you as I did not know what to say except I am so sorry to hear your news, YOU WILL BEAT IT THIS TIME. My thoughts are with you and your family but you know where we all are if you need us. Once again Tony you can give us all your words of wisdom as I know without them I would not of got through my really dark days that I had where my husband was concerned without them you are a real gem, your wife is soooooooooooooooooo lucky to have you. I will not depress you today ha ha but drop me a line so we may have a chat when your feeling up to it.

Sara how are things going with you as nobody has been on here in a while, has your infection cleared up now?

Anyway all take care of yourselves and speak to you all soon

Littlesis xxxxxx

Hi girlies and tony, thanks to you who got back to me re night time sweats lol, leonie ive started my 5 yr tamoxifen and although they are supposed to cause the sweats ive not had them as much, as you say prob cause its cold, little sis thanks to you too. Anyway radio started last fri and seems to be going ok, prob later on the tiredness and maybe sore breast will start, did anyone else get a sore breast with radio? Got my eyelashes done today £50 bu well worth it as my were very sparse(is that the right word lol) it lasts for 2 months, fab to have lashes again and got eye brows tinted to darken uo the little i had, hair coming through, but looks grey lol, im only 46 hope its just at the roots, will get it coloured as soon as its thick enough. Lee my babe where are you? Anyone who has facebook, add me if you wish- Colette Jameson, think im the only one. Radio finishes 7th jan so roll on 2011. Night night, up early for hosp, got voluntary driver to take me as too much to drive every day. lots of love xx

Hey Littlesis,

I keep telling myself I will beat it as they say you can beat anything with positive thoughts but the 'Terminal' tag just keeps slipping back in to my mind...

You only have 3 to go, fantastic...have a celebration and let us know how it goes!

You are a lovely lady and will check in on you soon so we can have a proper chat.

Much Love

T xxx

Hey Colls,

I am 46 too, 1964 was a great 'vintage'...what month?

By the way that is not grey but silver coming through or maybe even platinum unlike mine that looks the colour of lead...not the sort of colour you go to the hairdressers for and ask for...'I want my hair the colour of a lead church roof'

There you go I have added you and what a lovely picture

Much Love

T xxx

Hi all

great to here all your news love and hugs

what a year 1964 is theres loads of us

had 4th chemo took longer to get over still little rough but gettin ther only 2 left

been doing some online xmas shopping want to spoil my lovely family this year after what we all goin thru!!

we all keep goin

hope sara and caz ok

colly love pic on facebook anyone want add me its nina diplock

love hugs to all

nina xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

Hi all

great to here all your news love and hugs

what a year 1964 is theres loads of us

had 4th chemo took longer to get over still little rough but gettin ther only 2 left

been doing some online xmas shopping want to spoil my lovely family this year after what we all goin thru!!

we all keep goin

hope sara and caz ok

colly love pic on facebook anyone want add me its nina diplock

love hugs to all

nina xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx