hi im 36 mother of 3 n diagnosed dec 23. ive had 2 ops n 5 of 6 chemo n finding it very hard at mo. feel so peed off n cant get rid of that feeling. would love to chat. x
hi im 36 mother of 3 n diagnosed dec 23. ive had 2 ops n 5 of 6 chemo n finding it very hard at mo. feel so peed off n cant get rid of that feeling. would love to chat. x
Hi to each and everyone of you don't you think that we are all quite amazing to be able to even be able to come on here and tell our stories I feel like I'v made so many new friends.
Anyway Leonie I'm so glad that you've managed to get some funding for nursery at least you know that Charley will be having a nice time whilst you gain some energy back. You really are having a rough time of it but how nie that you could get to the beach, I take it you live nearby to one. That must be lovely. As for having a looney doctor me too!! Just nice to be able to speak to someone who doesn't judge and you can say what you want about anything!!!!
Don't know bout you lot but I have all different feelings creep up on me when I least expect them. People who are close to you want to see you positive all the time and tell you how well you look and now i'v lost my hair how much it suits me but no matter what personally I just don't feel remotely like the same person. People say losing hair and putting weight on are least of worries but it does alter how I feel about myself and has affected my confidence.
Anyway each and everyone of you if I don't mention you by name doesn't mean I'm not acknowleding your messages but I do think about you all.We are all at different stages and will hopefully stick together through thick and thin.
Take care and hope you are all ok
love Lou
Well said Lou,
There are so many of us on this site now .Good luck and bless you all and the lovely people who care for us.
Rose xxx
Wow Lee do you mean you've completely shaved off all your hair? I still have quite a bit of hair but it is very thin and you can see my scalp, dont think it will be much longer till its all out. Had my wig on around the house today and John came in for lunch, he says aw Ive got my sexy girlfriend back lol tho he does say im gorgeous even with the little bit of straggly hair i have left lol.Just got to get a bit of courage to wear it outside now, have you worn yours out lee? Im going for my 3rd chemo wednesday but Ive to have 8 sessions 4 of the FEC and 4 of the T or D as some call it, so you'll prob be ahead of me. Hope your well and hope everyone on here is well too. Love Col x
Amazing ladies!
T xx
Hi there Colly, Yes Its all gone!
I understand your reluctance to get rid of the hair but I feel so much better now, and I'm quite excited about all the new styles I can try out when it starts growing again, I shall try and get a picture uploaded so you can see over the next few days, I have worn the wig out and its very close to my old style but in the house I just wear my scarves and bandanas, I was really worried about people staring at me with the wig on but there are so many girls wandering around with hair pieces and extensions, that its really no big deal.
You will know when the time is right for you xxx
your doing amazing as you are
lots of love lee xx
Well done you, I really dunno what to do, I keep thinking I should just shave it off then friends and family say no theres too much hair left at the mo, so I'll prob leave it another bit yet. We are going to go outwith our town to let me get used to wearing the wig where no one knows me, weird i know but what if it blows off? The style of wig I have is very similar to what I had tho it is a few shades darker blond than what i had, i rally do need to get over this hurdle but as you said lee I'll know when im ready. Thanks babe xx
well today I had my 2nd chemo 1 3rd of the way through!! I'm now sat at home after a very very long day at the hospital, staff shortages and all that stuff,,,, anyway I'm sat here with a tube coming out of my arm into a little plastic box containing a syringe full of anti sickness medicine, so now I'm hoping that this time I wont be so ill, got to have this for the next 48 hours and then the nurse takes it out and I try the tablets.
Don't worry about the wig blowing off as there is wig tape that secures it firmly and remember this is about you and how you feel not your family and friends, do what is right for you.
take care lots of love Lee xx
hi girls
thanks for your support. im doing ok. are you meant to feel anything? my arm hurts more but sure its cos you have your arms up. other than that im expecting sore skin in about a week n any tiredness i'll probably put down to chemo anyway. body is struggling on but things are getting a bit easier n less painfull. i saw a lady i'd met before n she has the muscle pain n we were so glad because the other understood. its so hard to explain n i hadnt spoken to anyone else that has had the same problem. well 2 down n 21 to go.
we did a carboot today. mum took me for rads n jon set up with the kids. my brother was on another stall with his girls n my mums stuff but they didnt do well at all. the boys got about 50 quid (holiday spends) n we made about 90 quid (towards passports). so werent too bad for our first. bloody knackered now though!
so nice to see you colly n goodluck for tomorrow. hope you continue to feel well n had a lovely weekend with john after his holiday. n lee im so pleased you dont mind your new hair/head. good on you. still dont like mine though have got a little now. its like bum fluff mind! its lovely to hear you more up beat.
no baby news then rose. still time to be early though. are you still feeling better with thyroid med? sending you lots of love. you too patrica. are you having a nice rest?
little sis i dont know what chemo i had. its just one of many things ive forgot over the months. all i know is it can make you feel awfull but some only feel like that for a few days. unfortunately i felt like it all the time n walking was very difficult. most ladies swear by hot water bottle for sore bones. hope you have already started to feel better n good luck for the rest of your chemo. that end will come. ask anything you like n i'll try not to take too long to answer.
summer hols are going well so far. not too much argueing going on but the weather could be better. need to entertain the kids cost free this year which could be a challenge. probably will go to every different beach n just mark them off on the map. some gorgeous ones down here(cornwall). anyway i best go this has took hour n half. i cant remember what i want to write n then when i do i cant seem to get it out. so annoying!
love to you all leonie xxxxxxxxx
Hi girls
Lee I went for my bloods today and yeehaa it is only 6 sessions of chemo ive to have so thats good news, i'll be finished 6 weeks earlier than I thought. Sorry to hear your feeling sick, I also feel yucky for first 4 days but not actually sick. Leonie lucky you living down cornwall way it is lovely down there. Hope everyone is well. love Col x
Hi Girls,
Glad to hear that we are all feeling more upbeat and happier since I was last on here, my word the time seems to be flying past now for me. Have only just over one week left on my present sick/fit note, will have to go and see doctor to get another one me thinks. Not at all ready to return to work.
Leonie, the radiotherapy doesn't hurt at all whilst you are having it. The tables aren't that comfortable and the awkward positition that you may have to put your arm in could be the reason for your pain. My skin is really sore at the moment, it's like really really bad sunburn. They do warn you at the end of your treatment that it continues to work for a couple of weeks and symptoms could get worse. Some people are fine and don't react and others it affects. Sods law it would be me!! Lovely nurse at the hospice sorted out some gel for me which I hope will help. Have been taking painkillers for last few days, ibuprofen and paracetamol, which is helping also. Other than that it's 'burn your bra and let it all hang free'!!!!!!!!!!!! Well the hair is growing and as anticipated it a lovely shade of grey. Have been trying to match it up to the Dulux chart to find a more exciting name rather than just grey, Which has not been easy as it's only about 1 or 2 mm long. How does Lavender Grey or Regency Grey sound. We are meant to to having a lady coming to the hospice soon to talk about hair products that we can and can't use on our new delicate hair, it should be very interesting.
I'm still feeling tired, need to find some motivation. Do have good days and days where I can't be bothered. I do have a long list of jobs that need to be done but just can't seem to find the inspiration to tackle them.
Col, Fantastic news!!! The end of that tunnel has just been brought that bit nearer. Lee is right , you do what you feel most comfortable with. In all this it is the only thing we have control over!
GI Lee, You sound so positive at the moment, it's great. So glad they are trying to get the sickness under control, haven't come across that method that you are using but hey if it works don't knock it!
Rose, sorry to hear that you were having problems and had to take a break from treatment. Any news on that baby?
Littlesis, Jump in anytime. Sorry I can't help you as I only had FEC. Seven weeks to go and counting, have you got your flags ready. Do you have to have any other treatment after?
Well feel at bit of motivation coming on so better grab it with both hands whilst I feel like it. Not that exciting just need to go and do some shopping.
Take care
Patricia x
Hi Patricia glad youve got a bit of motivation, not be long till your back to normal, dont rush back to work as you dont get any thanks for it, take your time and relax. Had my 3rd chemo today and feel crap, body tired but brain alert so cant sleep tho hopefully when i go to bed tonight i will sleep then. Felt very positive today when i went for chemo as this is the last FEC and i was told by my breast nurses it was the E that made hair/eye brows/lashes etc fall out, and that by 4th chemo the T that hair starts growing back. Anyway chemo nurse said today thats incorrect T does make hair fall out, great I thought, Im feeling low today I really find it hatd to cope with this hairloss and thought i was getting away with thinning only. Ive been doing so well and im very positive but today was a bit of a bummer. Hopefully by next week i'll be back to normal and stop moaning lol. Take care. Col x
Hi Colly,
Sorry you are feeling down.Chemo really does take its toll,it is a poison after all.Just go with the flow and take this time to snuggle up on the settee with a box of chocs .You are allowed to leave the housework and spoil yourself.
your photo is smashing,with or without hair you will still look fab.I always wanted straight hair as mine was wavy but it grew back straight and i want curls now !!!
Have a look on the Jokes ,they always make me giggle.
Take care of yourself.It will get better,honest.
Love to everyone else as well:love:
Rose xxxx
Hi Colly,
Sorry you are feeling down.Chemo really does take its toll,it is a poison after all.Just go with the flow and take this time to snuggle up on the settee with a box of chocs .You are allowed to leave the housework and spoil yourself.
your photo is smashing,with or without hair you will still look fab.I always wanted straight hair as mine was wavy but it grew back straight and i want curls now !!!
Have a look on the Jokes ,they always make me giggle.
Take care of yourself.It will get better,honest.
Love to everyone else as well:love:
Rose xxxx