hi i too would like to talk about breast cancer.

hi im 36 mother of 3 n diagnosed dec 23. ive had 2 ops n 5 of 6 chemo n finding it very hard at mo. feel so peed off n cant get rid of that feeling. would love to chat. x

Parents
  • Hi to each and everyone of you don't you think that we are all quite amazing to be able to even be able to come on here and tell our stories I feel like I'v made so many new friends.

    Anyway Leonie I'm so glad that you've managed to get some funding for nursery at least you know that Charley will be having a nice time whilst you gain some energy back. You really are having a rough time of it but how nie that you could get to the beach, I take it you live nearby to one. That must be lovely. As for having a looney doctor me too!! Just nice to be able to speak to someone who doesn't judge and you can say what you want about anything!!!!

    Don't know bout you lot but I have all different feelings creep up on me when I least expect them. People who are close to you want to see you positive all the time and tell you how well you look and now i'v lost my hair how much it suits me but no matter what personally I just don't feel remotely like the same person. People say losing hair and putting weight on are least of worries but it does alter how I feel about myself and has affected my confidence.

    Anyway each and everyone of you if I don't mention you by name doesn't mean I'm not acknowleding your messages but I do think about you all.We are all at different stages and will hopefully stick together through thick and thin.

    Take care and hope you are all ok

    love Lou

  • Well said Lou,

    There are so many of us on this site now .Good luck and bless you all and the lovely people who care for us.

    Rose xxx

  • Hi Colly

    Thanks for the advice, today was a little better again, eating is definately important to ease the sickness, I actually had a full sunday roast yesterday and between you and I a naughty lemon pudding to follow! have decided to stop taking the sickness tablets as they really don't seem to make any difference, have started taking the antibiotics today so think I'm having my fill of tablets for now. The paracetamol helps the headaches so will keep you posted, how's the hair coming along, ive booked into the hairdressers tomorrow for a cut and blow dry.

    Take care

    lots of love Lee xx

  • Hi Stesi

    I have just looked up the tac chemo as im on fec and wasnt sure what the difference was, anyway they do appear to be very similar but the muscle aches and pains in joints seems to be a normal side effect, however if it is persistent you must inform your doctor and they can give you suitable painkillers. The chemo is rough I haven't had the best time with t either but keep positive and inform your doctor or nurse if things get too bad, we don't have to do this alone.

    Take care

    Lee xx

  • Hi all you ladies on here,

    Sorry the dreaded SEs are affecting you all in some shape or form.A hot water bottle is my best friend when and aches start.Ive even had 2 bottles on the go at once.

    I have been really breathless for a couple of weeks and my oncologist has given me thyroid tabs as certain treatments affect the thyroid so keep a look out for this.

    The tomato soup made me smile Colly.when i was pregnant i had awful sickness all day and all I ate for 3 months was tomato soup.No wonder my son had auburn hair !!

    Good luck to you all

    Rose xxx

  • Hi Sitesi,

    How is Andy?Sorry you are suffering.Have you tried heat? a water bottle worked for me but is difficult if all the joints ache.hopefully it will be for a couple of days at a time.and then will wear off.You deserve to have a trouble free time.

    Rose xxxxx

  • Hi Girls,

    Well I have just finished my last radiotherpy treatment, so I am now sat here with a glass of something. Eight months ago when I was given my diagnosis and told that I would have to have an mastectomy, followed by chemo and radiotherapy, all I could see stretching ahead of me was unending hospital appointments and no glimmer of light at the end of the tunnel.

    Well today I walked out into the bright light (metaphorically speaking, as it's been absolutely pouring down with rain all day and still we have a hose pipe ban and what magic words they are. It's not stopped raining since they imposed it.) and feel like a great weight has been lifted from my shoulders.

    So what can I say girls, don't give up. It will pass, although you may not think so and that it feels like it's going on for ever, especially if you are suffering from some of those side effects.

    What I need now is a holiday!

    Patricia x

  • How wonderful for you - your treatment sounds the same as mine. I've only had 1 chemo so far but thats one less than this time last week. Have a wonderful holiday - roll on mine next year

  • Hi Lee,

    Sorry to hear that you have been suffering with the side effects from the chemo. I found anything ginger helped me with nausea, ginger biscuits, ginger beer, ginger marmarlade. The last one helped me get those anti sickness pills down in the first three days. Are you having the neulasta injection, this causes a lot of the aches and pains, for me it felt like flu. Fortunately these symptoms only last for about a week at the most, the rest of the time it's okay. Just listen to your body and rest. I soon learnt that I was important, everything else could wait.

    Patricia x

  • Dear Patricia

    I'm shoo very happy you have come to the end of your treatments, its so nice to hear when people get through this, I have a packet of ginger nut biscuits at the side of the bed which I must admit really do help when I'm taking the tablets, I guess this is the worst week anyway I'm kind of expecting everything what with the white cell count being so low and the anxious wait for the hair to start falling out, I went to see the psychologist yesterday and found talking to someone about all this really helped(did a fair bit of crying though) anyway she made me realise that its ok to feel sad aslong as you remember this wont be forever, and hearing you have now finished has really cheered me up, I hope this wont be the last time we get to hear from you as you are now our inspiration.

    Take care lots of love Lee xx

  • Hi Patricia, well done, congratulations and lots of love, you are such an inspiration and hopefully in another 6 months time this will be all over for myself too. I bet you cant wait for a holiday and thats actually a subject I was going to ask you girlies about. John is off to Turkey tonight with his little boy and I was supposed to e going to Spain with my friend for a girly week, anyway ive cancelled mine and wouldnt let john canel his as he works so hard and needs to take the wee guy away and spend time with him, anyway long story cut short, john not happy about leaving me and wants me to fly over at the weekend, but im apprehensive about infections etc, not felt as good this 2nd session round, sore mouth, bones, oh my period arrived (on time too), my hair is df falling out faster and more furiously Lee though i still have quite a bit but thin, i wear my little skip cap, anyway what do you guys think about going abroad during chemo? Col x

  • Hi Col,

    To be honest I think I personally would be a bit dubious about going abroad during my chemo treatment. I am a scout leader and for the last six months I have taken time off from this and going to church with them once a month as the risk of sitting in close proximity to them (kids carry lots of infections) wasn't appealing and for me wasn't worth the risk of catching an infection. (Just realised that sentence makes me sound like I don't like kids, I love them but, of course, I couldn't eat a full one :D LOL). Anyway the same could be said for being sat around in the airport and on the plane. Then there could be the problem of insurance, this could be very expensive or you may not be able to get any as you are having treatment at the moment. Plus there could be delays and you may be late home for your next treatment. Also not wishing to scare you any further but after my recent experience of getting an infection and rushing to a hospital and being kept in for two days was frightening enough here in this country never mind abroad.

    Personally I would ask myself if the risk was worth it and my answer would be no but that's your decision.

    Patricia x

Reply
  • Hi Col,

    To be honest I think I personally would be a bit dubious about going abroad during my chemo treatment. I am a scout leader and for the last six months I have taken time off from this and going to church with them once a month as the risk of sitting in close proximity to them (kids carry lots of infections) wasn't appealing and for me wasn't worth the risk of catching an infection. (Just realised that sentence makes me sound like I don't like kids, I love them but, of course, I couldn't eat a full one :D LOL). Anyway the same could be said for being sat around in the airport and on the plane. Then there could be the problem of insurance, this could be very expensive or you may not be able to get any as you are having treatment at the moment. Plus there could be delays and you may be late home for your next treatment. Also not wishing to scare you any further but after my recent experience of getting an infection and rushing to a hospital and being kept in for two days was frightening enough here in this country never mind abroad.

    Personally I would ask myself if the risk was worth it and my answer would be no but that's your decision.

    Patricia x

Children
  • Hi Patricia

    I totally agree with you, I've told him all the cons but he keeps coming up with pros lol.I will miss john but im sure it will fly by very quickly, i think he just feels bad about leaving me behind (even tho i wasnt going in the first place lol). My friend is going to come and stay for a few days and leave from work from mine etc and I have my girls and my mum and johns family too, think its just night time he's worried about me being alone plus he knows my hair is rapidly coming out and think he's worried that i'll get upset and that he wont be here to support me. Anyway we've just been to fuerteventura in march so its not as tho ive not had a holiday and we'll def get away at end of treatment for a week in the canaries. Its a wee shame, he's so sad about going and should be looking forward to it, im sure once he's there the 2 of them will have a laugh, lots of water sports and boys stuff that would just bore me anyway lol. Have a nice day, weather awful here.....again! need to get some food shopping so I dont starve whilst he's away. xx