hi im 36 mother of 3 n diagnosed dec 23. ive had 2 ops n 5 of 6 chemo n finding it very hard at mo. feel so peed off n cant get rid of that feeling. would love to chat. x
Hi to you all on this post and to the original Lonie
I'm 37 and mum of 4 and was diagnosed at end of Feb 2010 and found a week later its spread to liver and bones. I have struggled just like you so hard trying to be the normal mum and keep the kids lifes normal. Have you got help around you because I'v just had my third fec chemo and said to my partner that we can't do this on our own we have got to take all the help that is being from family, friends even neighbours!
Like you said the treatment is grotty but is hopefully going to make you well andin my case keep my situation under control but its all uncertainties!!! Please keep chatting on here because we are in a similar situation with a young family.
started a message to you on sunday then had visitors n my son lost it. so sorry i havent replied since.
cor whats hapened to you is terrible. what a shock. wish you all the best with your treatment n my thoughts are with you n your family. all these diseases are so awful. hoping to be well enough next month to start fundraising. just want to raise loads to help them find a cure n once they find 1 they'll find them all. stop others having this life stopping illness.
my mums not been well but shes much better now so will be getting some help with little 1. hope you are being looked after n getting the help you need. patrica has said theres help availible at the hospice. think i'll look into it. maybe you should to.
gonna have to go, so tired just couldnt let another day past. take care love leonie xx
Just wanted to wish you all the best with your chemo and the actually process of your hair coming out is worse than when it is out. I too am 42 and had fec, undergone mastectomy and reconstruction and have very unequal breasts at the moment but hey ho. I'm currently waiting for uplift(hehehe) and reduction on the other one. There are a great group of women and men who are going through similar / same here and I'm sure someone will be able to identify / assist in helping answer any worries.
Just wanted to wish you all the best. Chin up and stay strong...Liz
Your story sound identical to mine - I too will require a reduction in the good breast once all is clear and the other breast has settled, I actually feel a little guilty at looking forward to having small pert breasts( gosh is that so wrong?) The chemo still feels so unreal at the moment and I keep running my fingers through my hair wondering what it will feel like to be bald, well I shall take each day 1 day at a time for now, thanks for your message and keep well,
i agree what a beautiful lady you are n a personality to match. what an awful time for you n your new hub. my heart goes out to you both.
i felt i'd cheated my hub, what a nightmare for him to sort out n cope with. but we cant help being ill, thing is, they cant too. its a horrible cycle but gets easier in time. n my hub still fancies me. bald n all! n tells me hes still glad he married me. its so hard for them cos they just want to help n dont want to see us so down. bless em'.
look forward to talking to you, though sorry at the same time. head up lovely lady.
Hi Lee i too had beautiful long blonde hair, but recently got it cut short as i know over the next 2-3 weeks my hair will start to fall out, i just had my first chemo session on wednesday passed, felt sick the day after but feel ok yest and today. I had a lumpectomy and all lymph nodes removed in may. Ive only been with my partner just under 2 years and he has been amazing, with me every step of the way, he obviously has his bad days too but he knows if the tables were turned, id be by his side holding his hand too, as for my breast well it doesnt look too bad at all, 2 scars which will disappear and john says its part of my journey and at least im here alive and well, i've picked a lovely long blonde wig and there are loads out there to choose from, i got a couple of really nice skip hats from monsoon, so as much as im dreading the hair loss process and i know will never have the guts to get it shaved the way some women can, i know once it grows back in i can start colouring it again and getting my life back, as my consultant says, take 9 months out your life and get better and thats what i intend to do, keep posting your story on here as we love to read them. Take care Col x
Being able to talk to people is helping me immensely and you are all so strong it makes me feel humble talking to you all,
At the moment it still feels a little surreal, like any minute i will wake up and it will all just be one horrible long nightmare. Its the kind of thing you read about but never actually believe it will happen to you!
My husband is really glad I have you guys to talk to and has noticed a definite improvement in my outlook, he says whether I like it or not he will shave off all his hair when I go bald, and this is not for my benefit but his, I have tried to explain to him that this is not necessary but I guess if this helps him cope then I should respect that.
Well I'm off to have some lunch now England are playing today and I reckon I wont need to worry about the chemo at the end as I will have pulled all my hair out if they don't win he he.
All the very best to you Lonie and everyone else going through this.
thanks for your lovely reply, I shall be following your journey closely as you are only a couple of weeks ahead of me and if you can provide any tips of what may help both my husband and I get through this then I shall be forever grateful, you sound very strong and determined I hope one day to be just like you, maybe the hair cut is the start of me taking back control, I have an appointment on Monday with the wig lady so am hopeful to find something that will get me through the next few months, I guess the vanity thing is there but my pride is far worse, I cant bare the thought of people looking at me with sympathy in their eyes and as I live in a small village everyone knows everyone and will be almost impossible to hide this.
Well Im off to make some lunch as its England playing Germany today and as I mentioned to Lonie If they don't win I shall pull my hair out anyway he he
I have been reading all post related to chemo recently. I had a lumpectomy with all Lymph nodes taken out then had to have a mastectomy. I see the oncologist tomorrow about the rest of my treatment which my consultant tells me will include chemo and radiotherpy. I was just shocked to read that some of you are having up to 9 months treatment. I really never thought it would go on so long. I know at 62 I should not be so worried about my appearance but I am - at my age you are always trying to hold back the years anyway. At least younger women have a prettier unlined face so may not look so bad bald - I will look terrible!! and now think its will be for much longer than I thought. Does everyone have this treatment for sooo long?
Hi Lee, I know what you mean about people looking at you, I'm a very confident person at the best of times, but the thought of people staring at me feeling sorry for me just makes me feel terrible. Obviously the nurses say that my eyelashes which are really long and my eyebrows may fall out too, i'll just need to get used to wearing false lashes lol. We've just been out for a lovely carvery after watching the footie, we're scottish but england were doomed right from the start, never mind its only a game. anyway, yeah your right im not far ahead of you, but we'' be fine, dont be fooled im not that strong, ive been having low days too, but i know i'll be fine, its the boredom mostly during week when everybody is it work and im stuck at home, anyway enjoy the rest of your evening. lots of love. Col x
Hi my chemo will last for 24 weeks thats 1 session every 3 weeks x 8 sessions, then 1 month off then 1 month radio, so although i said 9 months i just mean for total recovery, chemo is usually about 6 months and radio 1 month, by the time i take a lovely holiday and get back to work it will be 9 months. I'm sure none of us will look gorgeous bald, but a little bit more foundation, blusher and lippy and we'll be fine, get yourself a lovely wig and some nice scarves and you'll be fine. Hope your ok and keep posting. Col x
Hi my chemo will last for 24 weeks thats 1 session every 3 weeks x 8 sessions, then 1 month off then 1 month radio, so although i said 9 months i just mean for total recovery, chemo is usually about 6 months and radio 1 month, by the time i take a lovely holiday and get back to work it will be 9 months. I'm sure none of us will look gorgeous bald, but a little bit more foundation, blusher and lippy and we'll be fine, get yourself a lovely wig and some nice scarves and you'll be fine. Hope your ok and keep posting. Col x
