Hello Kal, Thank you for that hug.... if i could give you a big cuddle back i would.... i have been doing just that in the street to random people lately, its really strange but i think other ill people must be tuning in to me, and so many people come up to me and talk about there illness and ask what is wrong with me, i am on crutchs now , out of my wheelchair and dont really look that ill so it must be vibes or something.

I hope you are coming to terms a little more with it all, of course it is devestating for us and our partners and children..... i do have a husband, of 26 very happy years, 3 grown up children 25, 23, 21 so they are a great help to me.

I am feeling so good at the moment on this trial drug, and really just enjoying every single second of my life....

I think we are so lucky to have a warning that our time is going to be so precious as they say you can get knocked down and not have any time to let your loved ones know just how much you love them and tell them all you have wanted to.

Please let me know how you are doing, stay strong and things will be ok in the end...... we all are going to the same place one day.xxxx Debbie

Hi to Kalaidescope and to everyone elseon here, some of you may have seen me on other areas of cancer chat.

Anyway I have breast cancer that after being diagnosed at the end of Feb were told 1 week later it had spread to my liver and bones and I'm so scared like all of you. I have 4 children my eldest daughter 17, dauhter of 11 son of 7 and baby girl nearly 1 whi has tjis week come down with chicken pox.

I have to say I thought I was on my own because most people have a tumour have it removed and cheo and are ok but there seems to be many of us with spreads and the scariest thing for me is that I have been told its incurable because I'm so not ready to give up without a fight. How can a disease change us from being the person we once were to someone totally different nit just in appearancebut also mentalle and emotinally. This place is so good for us to air our views on and does help so we all need to keep in touch.

From some of the posts there are people that have beaten the odds and from what I've been told there are so many things that can be done to control the disease. I haven't been told the stage of my cancer and have had 3 fecs and am now on pacitaxel and gemcitibine and may have up to 6 cycles of this. I haven't been told whats next but have heard lots of people having different things for the bones.

I'm currently seeing a clinical psychologist because I have so many issues so part of me feels like a nutcase aswell but at least I'm here and am so thankful to all of you for sharing your journeys too.

Lets all stay in touch and keep our chins up on the *** days after chemo we will all be uo and down at different times we can fight this!!

All take care Love Lou

Hi Debbie

So pleased to hear that you are feeling much better, it must feel very liberating to be on your own feet again (albeit with the aid of crutches) rather than in a wheelchair ~ onwards and upwards ~ here`s hoping that you can do without the crutches too in time.

I am feeling much stronger now thanks, think it just takes time to adjust to everything. Still have down times of course, like everyone but it wouldn`t be normal not to. I did have some good news last time I saw my Onc. After 3 FEC he examined me and could not find the lump in my breast! It had shrunk significantly after just 2 so was really pleased he couldn`t find anything this time. Also the tumour `marker` in my bloods had been raised before treatment and is back to normal now. He has said I will have another CT scan before surgery which is now praying on my mind as previously I had been told that more scans wouldn`t be necessary just ultrasound before surgery. Oh the ups and downs!!!!

Just have to concentrate on the positive and try not to read anything sinister into it!!

My last treatment was a different drug which has affected me more than the previous one. Had lots of aches and pains, really sore finger nails ( most peculiar!) and sore mouth. But hey ho, that was a week ago and feeling almost normal again.

I hope your progress continues, please keep in touch and let me know. Here`s hoping that the sunshine returns too so you can get out and about and enjoy it. Take good care

Love and hugs

Kal x

Hello again, thank you so much for your reply.

I am so pleased for you, the treatment is going so well.

I have had a scan last week which has shown that my tumor in my right lung, the large one that is my primary has shrunk by half, it is still the same length but in width half as small.

I was not expecting that news all i was hoping was to stop the growth and stay the same size...... i was so happy, as was my lung consultant, this was after just 6 weeks on the trial drug.

My leg has stopped swelling up so much, i am getting about on my crutchs really well. Driving myself to my hospital appointments.

I am due my next scan in 6 more weeks time, i dare not hope for too much i will just wait and see.

Hope you have a lovely Sunday, love to you Debbie. xxx

I remembered a conversation i had with a nurse up the hospital, she was taking my blood and asking me if i had a ct scan before and warned me of the feeling to expect when the dye would be injected into my arm during the scan.

I asked her if she had a scan before.... she said yes, i have breast cancer that has spread to my bones and lungs and else where!!!!

She was on a trial drug , had been taking it for3 years and was still working full time as a nurse.

I was amazed, she said she has 3 monthly scans but feels well so carries on working.

I do not know the name of the drug but she did say it was on the nhs now, so maybe worth looking into.

3 years, i still can't belive it.

Debbie x

Debbie,

I just wanted to say fantastic news about the shrinkage in the primary tumour....I know you don't want to hope for too much, but I will be looking out for an update in 6 weeks.

Big hugs to you - I'm sooo happy about your news :love:

Dizzie xx

Hi Debbie

I can`t tell you how pleased I am to hear your news! It has brought tears to my eyes, I know how it feels not daring to hope for too much from your next scan so I will do the hoping for you! You are often in my thoughts & I will be keeping everything crossed.

Thanks also for the story about your nurse its so heartening to hear of others in a similar situation who are living relatively normal lives. My chemo nurse told me of a lady she gives the same drug to for breast cancer bone mets as me, who has been on the drug for 10 years!!! I guess there`s no harm in going for the record ~ I always was competitive.

Hope to hear from you again soon.

Take good care

Much love, Kal x

Just wanted to join in the congratulations:love: Always glad to hear good news.

I am 3 1/2 years on from first diagnosis and have been on tablet treatment .first chemo and now a trial drug which is not like chemo which poisons the cells but stops the cancer cells getting oxygen.and has worked for the last 3 months and fingers crossed will continue to do so,

Things are improving so much thank goodness .

Good luck to us all.and long may that light shine at the end of that tunnel

Rose xxxx

Debbie,

Add my congratulations to the mix also...every bit of good news is great but even better when the results exceed expectations.

That nurse sounds like one brave lady.

Much Love

Tony xx

Thank you so much all of you..... i know every one on here has their own worries, it means a lot to me, the support you receive as well as try and give.... we are not alone and when we say that we feel your pain, we really mean what we are saying.xxx

Debbie.