Hi bubblymags

I do remember feeling tired for quite a while. My nausea eased fairly quickly. The tiredness was really all consuming though..i felt it everywhere. This did ease off after a few weeks . I took thyroxin from the start,never the other drug you have mentioned. I don t know why that is different. I take 200mcg a day of thyroxin. Even though my consultant says it shouldn t ,i always feel very tired by the evening.The group of women i know who have all had thyroid cancer all say exactly the same. we are all on slightly different doses of thyroxin which we all take in the morning. Our consultants all say our levels shouldn t drop in the evenings yet we are ALL very tired in the evenings. Even 4 years on for me. I'm getting used to that now, and my husband has had to get used to me being a bit cranky when i'm tired!

speak to your consultant...they may need to change your dose, i know it can take a while for them to work out your required amount.

Remember, you ve been through a lot and you re body is learning how to work without a thyroid and is still getting over surgery and you RAI treatment. It s going to take a while. Don t give youself a hard time about it.

Vix x

Vix, just a quick query -

I take my thyroxine in the morning too, as advised. ( I know some people take it in the evening but I haven't tried that yet, not sure what effect it would have).

I'm wondering, though, if I need to wait an hour after my dose before taking food? The consultant didn't mention this, and when I asked the chemist she was a bit vague and said maybe 15-30 minutes, but I'm sure I read somewhere that it should be an hour?

I'm just keen that my TSH level should be as supressed as possible, and want to give my thyroxine the best chance to work without taking any more than I have to, but an hour is not ideal as I end up rushing off to work with no breakfast! What are your thoughts on this?

Thanks x

hi cassie

I keep mine next to my bed and always take them as soon as i wake in the morning..first thing i do each day! I usually have breakfast about 20 mins or so later..after shower etc. I 'll do some asking around on that one and see what i can find out...i always try to leave some time before eating but as you say its always a rush in the morning.

I do always avoid eating soya products until later in the day as i have read that these can affect your absorbtion of thyroxin....

will chat to my very knowledgeable friend Bev and get back to you!

Vix x

Hi Cassie, me again!

Bev is indeed the fountain of all thyroid related knowledge!

Guidelines say...take first thing in morning on empty stomach. Wait around half hour before eating. Don t take any calcium tablets for another 4 hours as this can affect absorbtion also.

There is research looking at taking in evening on empty stomach..but results not conclusive as yet...

Hope that helps!

Vix x

Thanks Vix,

Very useful to know that I only need to wait half an hour after food. I did think an hour might be a bit over-zealous, but am still at the stage where I'm a bit wary of letting my TSH creep up at all, and trying to give the medication as much of a chance as possible. I guess even if the level ever rose I would just take a higher dose, but I'll see how things go in the meantime.

Luckily I don't have to take calcium tablets, even after two surgeries, which I fully expected to cause some problems. However, my calcium level is still being tested religiously as apparently it could still drop - nearly a year later!

Anyway, thanks again for the info. xx

hello Cassie

I'm 4 years on now and my thyroxin dose hasnt changed since initial tweeks in the early days.i take 200 mcg daily. it still freaks out the GPs if they ever do a test at my local doctors surgery, so i always refer them to my consultant at the QE.

I only took calcium tabs for a short time..even after 3 surgeries, so i'm lucky too!

I know what you mean.. i try to give my tablets the best chance of working...i'm very careful with the soya products issue, which is an issue when you re a vegetarian like me..

vx

Hi Bubblymags,

Just wondering how you're getting on - are your aches and pains any better? If not, have you asked your doctor about them, or phoned consultant?

Take care. x

hi ther im ok .i went to my doctor an my aches n pain are stress n tension ive to try n stop worryn n destress myself ,and start talkn to people instead of keepn it to myself ,they said i should go to a group or somthing but i dont know .im going on holiday on monday for two wks so hopfully that will help.then wen i get back i have to go see my consultant to see wat happens nxt ,i just want it all to be over with ,xx hope you are ok

hi hun,i had my baby in aug last year.not long after haveing her,i found a lump in my neck.i got it looked at and found out i had 3.2 on my thyroid and one in my chest,they were confirmed as cancerous.i had surgery on the 11th feb and ive just undergone radio-iodine treatment,im hopeing the treatment is successful for my 5 children.ive had a scan,so i know it hasnt spread.im keeping strong,its been a hard time for us all.xx