Hi Bubblymags,

I guess you'll either get out of hospital today, or maybe tomorrow, depending on your levels. They'll give you a sheet telling you how long before you can go near people, children etc, again depending on your levels I think. Hopefully you'll be able to give your son a hug in a few days!

The worst should be over by now - I did hate the isolation and came out of hospital with a bit of a complex - I felt contaminated!! but it soon wore off and I started feeling normal again. The medication should start to kick in soon. Going by my sheet, I felt as if I were expected to go back to work the following week, but I stayed off for two weeks afterwards. Even then, I've heard of people staying off much longer, but I did feel okay and haven't had any problems back at work.

I take 100 mcg Thyroxine but they may put this dose up at my next review, as most people I've heard of with no thyroid seem to take more. I feel absolutely fine on this dose, but it depends on your blood levels, if you've had thyroid cancer they like your TSH level to be completely supressed.

If you need more information on how to cope, there is a Thyroid Disease Support Forum with a section on thyroid cancer and it is very helpful.

Wishing you a speedy recovery, xx

Hi Bubblymags

Are you out ???

You will be feeling relieved to be out i guess, but still desperate to see you children. It s not long now , and the feeling from that cuddle will be fantastic when it comes.

Hopefully you re feeling well, it didn t take me too long to stop feeling nauseous. Eating normally again helped me with this i think. I take 200 mcg thyroxin daily. I know people who take more and several who take less, your specialist will help you find the right dose, however, your thyroid function test results will continue to freak out your GP, if ever they do them, as they will be completly different to those of someone who hasn t had thyroid cancer. My consultant warned me of this and i now just refer them to him if they have any queries.

You re hopefully over the worst of it now. My advise would be to get your support network ready though. Looking back at my treatment and surgeries i can see that i was strong while i was battling through. It was when i got my first clear scan result that it all hit me, much more so than it had before. I have since found out that ths is quite common. Be prepared for that by talking about it as much as you can.

Sending lots of love

vix x

well im out its over with im so glad ,well i went into the beatson glasgow on the 23rd march 09 ,i got shown my room at first i was scared but then i thought it has to be done ,i got my drink it didnt taste of anything ,then i was left to it,my room was ok after half an hour they gave me water n by god i drank plenty of it ,i didnt get any visitors that night ,on the tuesday i woke at 6 i felt very sick well as if i had a hangover minus the drink haha,i put up with it until lunch time,my family n friends called me so that was good ,i was given antisickness tab to help n it did ,the staff wer great really friendly,i didnt get any other symtoms which was good ,on the wednesday morning i woke up i felt down n sick but i thought nope this is my body i will fight u n i did ,i went for my scan at 9 and wat a walk to get to it the doctor that took me walkd a good bit in front so that felt strange ,i came back to my room and i was really fed up i just sat on my bed then the doctor came in and said id done really well and i can get home at 2 oclock i was releaved,i was glad because i was getn depressed ,i got home now that was another story it just got harder ,my wee boy of 8 thought i was in manchester with my work so i had to lie to him ever day ,he is stayn at his aunts ,in the house people still cant come near me i felt as if i had the plague ,ive felt dizzy n really sick since ive got out i think its to do with the tablets im on ,i feel down as well but hope it will pass ,on saturday it was amazing i got a cuddle off my dad and fiance an boy wat a feeling,i get my wee boy back tomorow tuesday n i cant wait ive had him crying down the phone n thats so had because as a mother u just want to help ur kid not to upset them ,i feel hes been punished as well for me having cancer and its not fair ,anyway i could go on and on ,the whole experience wasnt as bad as i thought all i can say is if any body is going in for it is to stay positive and keep ur head down and just get on with it ,its only a couple of days its not a year of treatment n loosing hair n stuff think of the ones that are worse of than us , any questions just ask me .xxx

Hi Bubblymags

well done you

your sounding very positive

wish you well for tomorrow fancy it will be emotional for both

chin up

Well done!!!!

Keep up the positive thoughts and attitude

Have you stopped looking in the toilet to see if your wee is glowing/ flourescent yet??!!!

Vix

i got my son back wat a happy time ,ive bn on my liothyronine for my first week out of hospital 3tabs a day then i went to the doctors on friiday on got another prescription and my doctor thought i was to get one a day so i thought that was normal o my god was i the doctor so wrong the pains in my head i was dizzy feeln sick n tired so on wednesday i called the doctor and she phoned the hospital and it was 3 a day i was to be one so at the moment not feeling very good or happy wat a mistake to make messing with me like that ,

Hi Bubblymags

bet your son was so happy

these medics when they get it wrong they make absolute howlers I been trying to get my wife's morphine patches since monday finaly got them this afternoon after three visits to chemist due changing tonight @ 8-30

earlier this week got 6 dressings instead of 6 boxes

surrounded by incompetence

hope things settle down for you now

chin up

hi ther how are you ,just a wee question for you ,wen u got out of hospital n u wer on ur liothyronine how long did it take for you energy level to get back to normal ,i still get really tired and most days my body aches with pain mainly my bones on my face and i get really sore heads did u have any of these symtoms,it would just be good to get the body back to normal ,

Hi bubblymags,

After getting out of hospital I was exhausted for a week, then the second week I felt a bit better. Because no one suggested staying off work any longer, I went back to work after two and a half weeks and gradually felt back to normal after maybe a month. But everyone seems to take a different amount of time to feel normal.

There seem to be various possible side effects (although I think I've been quite lucky and not had any). Over on another forum, a girl who recently had RAI is getting pain in her neck and I think her ears, and also lost her sense of taste. Someone else got a blocked salivary gland. Others have also mentioned dry skin and hair and weight gain. Could be I'm just used to being tired though, cos I don't feel I've had much energy for years!!!!

I definitely feel better on Thyroxine than I did on Liothyronine, which gave me a really fast pulse and heartrate, but my medication wasn't changed until after my follow up scan 3 months later. Your consultant will recommend a dose for you (maybe 100 or 150mg) and will alter it according to your blood results.

Mention your symptoms to your consultant, they might be quite common and they'll be able to advise you. x